Generated by All in One SEO v4.9.9, this is an llms.txt file, used by LLMs to index the site. # The Global Foundation for Peroxisomal Disorders ## Sitemaps - [XML Sitemap](https://thegfpd.org/sitemap.xml): Contains all public & indexable URLs for this website. ## Posts - [Promising Peroxisomal Disorder Research Published! ](https://thegfpd.org/2026/04/27/promising-peroxisomal-disorder-research-published/) - FOR IMMEDIATE RELEASEBreakthrough Gene Editing Study Signals New Momentum for Treating Zellweger Spectrum Disorder Publication in Nature Biomedical Engineering highlights transformative preclinical results and features four GFPD Medical and Scientific Advisory Board (MSAB) members April 22, 2026 — The Global Foundation for Peroxisomal Disorders (GFPD) highlights new research published in Nature Biomedical Engineering demonstrating that - [Worldwide Rare Disease Day is February 28, 2026!](https://thegfpd.org/2026/02/19/worldwide-rare-disease-day-is-february-28-2026/) - [Funding Bill Signed Into Law](https://thegfpd.org/2026/02/13/funding-bill-passes-the-house/) - The Fiscal Year 2026 (FY26) Labor-HHS-Education appropriations bill - which includes the Accelerating Kids' Access to Care Act - was signed into law by the US President as part of the FY 2026 Consolidated Appropriations Act! The Global Foundation for Peroxisomal Disorders is proud to be among the 213 organizations that have signed the letter below requesting - [2025 #PAUSEWithTheGFPD Op-Eds](https://thegfpd.org/2025/10/31/2025-pauseforthegfpd-op-eds/) - On October 5th we celebrated our annual awareness day, #PAUSEWithTheGFPD. During this time, the GFPD community works to raise awareness for peroxisomal disorders and the people effected by them. We are thrilled to have families take part in writing an Op-Ed to run in their local newspapers! Thank you to the families who took the - [GFPD BACK TO SCHOOL SERIES: EXTENDED SCHOOL YEAR](https://thegfpd.org/2025/04/21/gfpd-back-to-school-series-extended-school-year/) - In this blog series, we have already explored the Pyramid of Learning for deafblind learners, examined Modifications and Accommodations, discussed the significance of an Individualized Education Program (IEP), and learned about Tactile Techniques for Deafblind Learners. We will now discuss the nuts and bolts of Extended School Year (ESY) services. PART FIVE: EXTENDED SCHOOL YEAR - [2024 #PAUSEfortheGFPD Op-Eds](https://thegfpd.org/2024/11/21/2024-pauseforthegfpd-op-eds/) - We are grateful to the Guise, Gratton, and DelSorbo families for composing Op-Eds in support of our #PAUSEfortheGFPD campaign. These op-eds were published, bringing peroxisomal disorder awareness to many in their communities. Read The Guise Family Op-Ed Read The Gratton Family Op-Ed Read The DelSorbo Family Op-Ed - [THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS ANNOUNCES NEW EXECUTIVE DIRECTOR](https://thegfpd.org/2024/09/16/the-global-foundation-for-peroxisomal-disorders-announces-new-executive-director/) - After co-founding The Global Foundation for Peroxisomal Disorders (GFPD), and 14 years of tireless dedication, Melissa Bryce has stepped down as our Executive Director. The GFPD had a dedicated search committee that has completed a months-long search for the new Executive Director. - [BACK TO SCHOOL SERIES: TACTILE TECHNIQUES FOR DEAFBLIND LEARNERS](https://thegfpd.org/2024/09/03/back-to-school-series-tactile-techniques-for-deafblind-learners/) - As summer draws to a close in the US, families across the country are preparing for the return to school. For families with children who have peroxisomal disorders, this time of year can bring unique challenges and concerns. At the Global Foundation for Peroxisomal Disorders (GFPD), we understand the complexities that these families face, and - [BACK TO SCHOOL SERIES: INDIVIDUALIZED EDUCATION PROGRAM (IEP)](https://thegfpd.org/2024/09/03/back-to-school-series-individualized-education-program-iep/) - As summer draws to a close in the US, families across the country are preparing for the return to school. For families with children who have peroxisomal disorders, this time of year can bring unique challenges and concerns. At the Global Foundation for Peroxisomal Disorders (GFPD), we understand the complexities that these families face and - [BACK TO SCHOOL SERIES: MODIFICATIONS AND ACCOMMODATIONS](https://thegfpd.org/2024/08/28/back-to-school-series-modifications-and-accommodations/) - As summer draws to a close in the US, families across the country are preparing for the return to school. For families with children who have peroxisomal disorders, this time of year can bring unique challenges and concerns. At the Global Foundation for Peroxisomal Disorders (GFPD), we understand the complexities that these families face and - [BACK TO SCHOOL SERIES: PYRAMID OF LEARNING](https://thegfpd.org/2024/08/22/back-to-school-series-pyramid-of-learning/) - As summer draws to a close in the US, families across the country are preparing for the return to school. For families with children who have peroxisomal disorders, this time of year can bring unique challenges and concerns. At the Global Foundation for Peroxisomal Disorders (GFPD), we understand the complexities that these families face and - [The Impact of Community Connections for GFPD Warriors](https://thegfpd.org/2024/07/25/the-impact-of-community-connections-for-gfpd-warriors/) - One of the most impactful aspects of the GFPD Family and Scientific Conferences is the incredible community of professionals who come together to support GFPD Warriors and their families. During the 2024 Family and Scientific Conference Mariana, a 16-year-old GFPD Warrior from Colombia, experienced this remarkable community firsthand. Sadly, the impact of the disease progression - [Developing Retinal Gene Therapy for Zellweger Spectrum Disorder Question and Answer with Catherine Argyriou, BSc (Hons.), MSc, PhD.](https://thegfpd.org/2024/07/10/developing-retinal-gene-therapy-for-zellweger-spectrum-disorder-question-and-answer-with-catherine-argyriou-bsc-hons-msc-phd/) - Where is Pex1 normally expressed in the mouse retina (e.g. what cell types)? PEX1 is concentrated at the inner segment and outer plexiform layer in both mouse andhuman retina. Why did you choose subretinal vector delivery in the mouse model? We selected subretinal delivery to best access our target cells – the outer retina, wherethe retinal phenotype - [](https://thegfpd.org/2024/05/15/5729/) - [Melissa Bryce, Executive Director, to step down in September 2024](https://thegfpd.org/2024/03/14/gfpd-seeks-executive-director/) - [Italian Family Making a Global Impact and Shines a Light on Rare Disease Day](https://thegfpd.org/2024/03/04/italian-family-making-a-global-impact-and-shines-a-light-on-rare-disease-day/) - Rare Disease Week is held every year during the last week of February and Rare Disease Day is celebrated February 29th and is meant to bring awareness to communities and the government to advocate for change for those who have rare diseases. Keep reading to learn about a family in Italy shining a light on rare diseases, - [](https://thegfpd.org/2024/02/08/5614/) - RDD-PrintDownload - [GFPD Family And Scientific Conference: Warrior Camp Fellowship](https://thegfpd.org/2023/12/04/gfpd-family-and-scientific-conference-warrior-camp-fellowship/) - Global Rare Disease Organization to Host 2024 Family and Scientific Conference to Include Fellowship Program for the Next Generation of Rare Disease Professionals The Global Foundation for Peroxisomal Disorders (GFPD) has announced dates for the 2024 GFPD Family and Scientific Conference to be held in Washington D.C. The conference will be held May 26 – - [NIH grant establishes Mouse Mutant Peroxisome Research Resource](https://thegfpd.org/2023/12/05/nih-grant-establishes-mouse-mutant-peroxisome-research-resource/) - Jackson Laboratory Director, Technology Evaluation and Development Aamir Zuberi, Ph.D., along with co-principal investigators Joseph Hacia, Ph.D., of the University of Southern California and Nancy Braverman, M.D., from the McGill University Health Center in Montreal, Canada, have received a four-year, $3 million NIH grant to establish a Mouse Mutant Peroxisome Research Resource at The Jackson Laboratory. - [Letter to the editor: Oct. 5 is a day of remembrance for people with PBD](https://thegfpd.org/2023/12/04/oct-5-is-a-day-of-rememberence-for-people-with-pbd/) - Thank you to Kathleen Maynard for sharing her story with the Herald-Dispatch in order to bring awareness to peroxisomal disorders for PAUSE on October 5th. Read the full article at the Herald-Dispatch below. - [‘Pause’ for rare genetic disorder](https://thegfpd.org/2023/12/05/pause-for-rare-genetic-disorder/) - Thank you to the Clouse family for sharing Gwendolyn's story for awareness around peroxisomal disorders for all GFPD Warriors. The GFPD's global awareness day, PAUSE for the GFPD, is held every October 5th. Read the full article from The Gazette below. - [Pause for the GFPD](https://thegfpd.org/2023/12/05/pause-for-the-gfpd/) - Thank you to the Heath family for sharing Molly Kate's story to bring awareness of peroxisomal disorders for all GFPD Warriors. PAUSE for the GFPD takes place every year on October 5th. Read the full article from the Tifton Gazette below. - [Minor changes to the Inflation Reduction Act (IRA) will make a big difference for rare disease patients.](https://thegfpd.org/2023/12/13/minor-changes-to-the-inflation-reduction-act-ira-will-make-a-big-difference-for-rare-disease-patients/) - 170 patient organizations have signed on to the linked letter of support urging Congress to consider small technical corrections to the IRA’s orphan drug exclusion provisions that would benefit the rare disease community. Final copies of this letter were sent to House and Senate Leaders. As a reminder, the two changes our organizations are seeking - [GFPD Family and Scientific Conference - Externally Led - Patient Focused Drug Development](https://thegfpd.org/2023/11/09/gfpd-family-and-scientific-conference-externally-led-patient-focused-drug-development/) - Global Rare Disease Organization to Host 2024 Family and Scientific Conference to Include Patient Focused Drug Development Meeting The Global Foundation for Peroxisomal Disorders (GFPD) has announced dates for the 2024 GFPD Family and Scientific Conference to be held in Washington D.C. The conference will be held May 26 – 29 with registration opening November - [Orientation and Mobility: What is it? How can it benefit a GFPD Warrior? Who provides these services and what should I consider before requesting them? ](https://thegfpd.org/2023/10/11/orientation-and-mobility-what-is-it-how-can-it-benefit-a-gfpd-warrior/) - The GFPD has you covered! Read below to learn all about these important services and even participate in a 1-minute activity that can help you better understand the process of understanding your body position and where you are in space. Individuals with peroxisomal disorders often benefit from seeing several types of specialists throughout their life. - [Inflation Reduction Act Drug Negotiation Sign On Letter to CMS](https://thegfpd.org/2023/04/17/inflation-reduction-act-drug-negotiation-sign-on-letter-to-cms/) - The GFPD is one of 101 organizations that recently sent a letter to CMS regarding implications from the Inflation Reducation Act of 2022. As the Centers for Medicare and Medicaid Services (CMS) continues to implement the provisions of this law, the GFPD urges CMS to further consider the unique perspective and challenges faced by rare disease patients and provides the following recommendations to ensure this law best serves the needs of the rare disease community. - [Brain Awareness Week March 13-19, 2023](https://thegfpd.org/2023/03/15/brain-awareness-week-march-13-19-2023/) - Brain Awareness Week is a global campaign during the week of March 13-19, 2023. There are several reasons why individuals with peroxisomal disorders periodically undergo many tests to monitor the health. - [Advocacy Resources: Elevate your elevator pitch with David Lapidus](https://thegfpd.org/2023/03/07/advocacy-resources-elevate-your-elevator-pitch-with-david-lapidus/) - David Lapidus, Board Member for The GFPD, helped train the GFPD Rare Disease Day team prior to Congressional meetings. - [GFPD Advocacy Initiatives to Improve the Lives of Individuals with Peroxisomal Disorders](https://thegfpd.org/2023/03/01/gfpd-advocacy-initiatives-to-improve-the-lives-of-individuals-with-peroxisomal-disorders/) - The GFPD is bringing a team of 20 individuals to advocate for rare disease initiatives that affect the care and research of our warriors. Learn more about the five GFPD asks, along with three additional rare disease day asks below. - [The GFPD is pleased to support the BENEFIT Act, to elevate the patient voice in the FDA drug development process.](https://thegfpd.org/2023/02/23/the-gfpd-is-pleased-to-support-the-benefit-act-to-elevate-the-patient-voice-in-the-fda-drug-development-process/) - Congress and the Food and Drug Administration (FDA) have made considerable progress in driving forward policies and procedures to ensure the patient perspective is considered by FDA reviewers evaluating candidate drugs and other medical products. While much progress has been made, some significant gaps remain. Ahead of rare disease week, Senators Wicker (R-MS) and Klobuchar (D-MN) and - [GFPD Patient Ambassador Jayla Morrison and Mother, Courtney, Advocate in Colorado for Peroxisomal Disorders Awareness](https://thegfpd.org/2023/02/02/gfpd-patient-ambassador-jayla-morrison-and-mother-courtney-advocate-in-colorado-for-peroxisomal-disorders-awareness/) - Becoming a teenager is a big milestone for any young American, but Jayla Morrison’s 13th birthday celebration at her home in Colorado Springs last June was extra special. “It was a big party,” said her mother, Courtney Morrison. “We never thought she was going to make it.” Jayla has peroxisome biogenesis disorder-Zellweger spectrum disorder (PBD-ZSD), a - [Not All Supplements Are Safe](https://thegfpd.org/2023/01/11/not-all-supplements-are-safe/) - Having a rare, multi-system disease like a peroxisomal disorder often means taking multiple medications and supplements too. Nearly 95% of all rare diseases have no FDA approved treatment and hope can often be difficult to find. Rare patients and caregivers often desperately seek anything that may possibly help our loved one. Balancing hope and safety - [GFPD joins with 125 other patient advocacy groups urging congress to support critical rare disease priorities](https://thegfpd.org/2022/11/16/gfpd-joins-with-125-other-patient-advocacy-groups-urging-congress-to-support-critical-rare-disease-priorities/) - The GFPD is proud to be one of 126 organizations, representing or treating patients impacted by rare diseases and other acute or chronic health conditions, urging Congress to include a full five-year reauthorization of the programs listed in Section F, Title V of H.R. 6833 (‘Title V programs’), of the Continuing Appropriations and Ukraine Supplemental - [GFPD and the Financial Impact of Rare Disease](https://thegfpd.org/2022/10/01/gfpd-and-the-financial-impact-of-rare-disease/) - Earlier this year, the GFPD received a grant from Global Genes to support our conference and some research of our families attending the conference about the financial impact of rare disease. This grant came about as part of a larger initiative from Global Genes that included a first-of-its-kind landscape study on financial impact to patients - [GFPD joins with over 100 rare disease organizations to support Accelerating Kids' Access to Care Act](https://thegfpd.org/2022/09/08/gfpd-joins-with-over-100-rare-disease-organizations-to-support-accelerating-kids-access-to-care-act/) - Read the letter - [F2FC Groups Now Enrolling](https://thegfpd.org/2022/08/23/f2fc-groups-now-enrolling/) - Do you want to connect with other GFPD families? We are excited to share about a few ways to receive web-based peer-to-peer support. Enrollment for the GFPD F2FC Parent Group is currently open until September 1st. GFPD F2FC Support Group Highlights! Guided by trained facilitators (including bereaved and non-bereaved parents and a professional in field - [The third annual GFPD Warrior Walk Run Ride on September 30th - October 2nd](https://thegfpd.org/2022/08/08/the-third-annual-gfpd-warrior-walk-run-ride-on-september-30th-october-2nd/) - The third annual GFPD Warrior Walk Run Ride is quickly approaching! Celebrate all GFPD Warriors during this interactive family-friendly fundraising event with our global community September 30th - October 2nd! After we Walk, Run and Ride September 30th through October 2nd, our global community will PAUSE on October 5th to recognize and honor all of - [The GFPD’s Corin Chapman and Catherine Argyriou present at the World Orphan Drug Congress in Boston](https://thegfpd.org/2022/08/02/gfpds-corin-chapman-and-catherine-argyriou-presented-at-the-world-orphan-drug-congress-in-boston/) - GFPD Board Member, Corin Chapman and Catherine Argyriou, postdoctoral fellow, Braverman Lab, McGill University recently presented at the World Orphan Drug Congress in Boston. Corin and Catherine shared information about the GFPD and the advancements made toward treatments for peroxisomal disorders including retinal gene therapy and small molecule therapies. Catherine shared, "We are planning IND-enabling - [The GFPD and the Rare Disease Community Urges States to Take Advantage of Funding to Screen More Babies](https://thegfpd.org/2022/04/08/the-gfpd-and-the-rare-disease-community-urges-states-to-take-advantage-of-funding-to-screen-more-babies/) - The GFPD was one of 12 patient organizations who recently sent a letter urging nine states to expeditiously apply for a grant opportunity from the CDC to help implement critical, federally recommended newborn screening. The states include: Alabama, Alaska, Nevada, Hawaii, Iowa, Montana, North Dakota, South Dakota, and Wyoming. - [Governor Youngkin Announces Addition of Two New Disorders to Virginia’s Newborn Screening Program](https://thegfpd.org/2022/03/23/governor-youngkin-announces-addition-of-two-new-disorders-to-virginias-newborn-screening-program/) - RICHMOND, VA – Governor Glenn Youngkin today announced the addition of two new disorders to the Commonwealth’s newborn screening program, which helps detect a variety of rare, life-threatening conditions in infants. Beginning March 16, Spinal Muscular Atrophy (SMA) and X-linked Adrenoleukodystrophy (X-ALD) will join a screening panel of metabolic and genetic disorders that range from - [Rare Disease Day](https://thegfpd.org/2022/02/23/rare-disease-day/) - Do you have your colorful stripes ready?! Rare Disease Day is February 28th! For 14 years the rare disease community has been coming together to build awareness and foster change for individuals living with rare diseases. 300 million people worldwide are impacted by rare diseases, more than cancer and AIDS combined. However, although just as common - [The GFPD advocates for Paid Leave for Family Caregivers Across the Lifespan](https://thegfpd.org/2021/04/29/the-gfpd-advocates-for-paid-leave-for-family-caregivers-across-the-lifespan-2/) - Over the past year, millions of family caregivers found themselves needing to isolate or take leave to care for family members, scrambling to fill gaps in care—often without paid leave—as many older adults and people with disabilities lost access to services. Many people are sandwiched between providing care to an older adult or relative with a health condition and typical childcare duties. Children with disabilities relied on family caregivers not only for lost services, but for school demands as well. With the limited exception tax credits to cover a narrow scope of COVID-related leave, federal response legislation to the coronavirus pandemic has largely excluded support for family caregivers. The GFPD signed to a letter spearheaded by the National Alliance on Caregiving, UsAgainstAlzheimers, and The Arc to urge the Biden Administration to prioritize these families when developing additional—and needed—economic recovery policies, including a permanent paid family and medical leave policy that is inclusive of all family caregivers across the lifespan. - [The GFPD Creates a Diversity Committee to Promote Greater Health Equity for Warriors and their Families.](https://thegfpd.org/2022/01/28/gfpd-creates-diversity-committee/) - The GFPD Creates a Diversity Committee to Promote Greater Health Equity for Warriors and their Families To address equity in services and healthcare, the GFPD started at the top. In 2019, Melissa Bryce, The GFPD executive director and co-founder, recognized that the rare disease network needed to address growing disparities in the care and supports - [GFPD Supports Legislation for Newborn Screening in Iowa](https://thegfpd.org/2022/02/20/gfpd-supports-legislation-for-newborn-screening-in-iowa/) - HSB 690 /SSB 3122 both passed out of their respective committees in the Iowa State Assembly yesterday and are heading to their chamber’s floor for a vote in the coming weeks. The legislation expands newborn screening in Iowa to ensure that all federal Recommended Uniform Screening Panel (RUSP) conditions are added to the screening panel - [GFPD Updates](https://thegfpd.org/2011/05/12/gfpd-updates-d25/) - Thanks to all who have taken the time to visit our website. There has been so much that has transpired over the last few months. Most recently, we have been busy planning our first annual conference, which will be held in Omaha, Nebraska July 31 – August 2, 2011. This is a great opportunity for - [Thank You For Visiting!](https://thegfpd.org/2011/05/18/thank-you-for-visiting-d48/) - Thanks for visiting the online home of The Global Foundation for Peroxisomal Disorders (GFPD). We are thrilled you’ve dropped by to check us out. Forming this foundation has been a huge job, as has been the development of this website. Please feel free to leave a comment or email us if you have questions about - [GFPD Conference Updates](https://thegfpd.org/2011/09/15/2011-09-14-gfpd-conference-updates/) - We had an amazing first conference in Omaha, Nebraska July 31 – August 2nd! Thanks to all who supported GFPD Families through individual donations and corporate sponsorships. From our feedback, EVERYONE went home feeling a sense of community. There was a tremendous amount of information shared, and many of our families participated in clinic, which - [Zellfest 2012](https://thegfpd.org/2011/09/16/zellfest-2012-d11/) - Jennifer Murphy and her son, Clayton were featured on the news in San Antonio to talk about Zellfest 2012. Click here to read the story and watch the video and read the story about this amazing family. - [Pound the Pavement for PBDs- Tulsa, Ok- “Jogging for Ginny”](https://thegfpd.org/2011/09/26/pound-the-pavement-for-pbds-tulsa-ok-e2-80-9cjogging-for-ginny-e2-80-9d/) - Pound the Pavement for PBDs is the official Run/ Walk Fundraising Event for the Global Foundation for Peroxisomal Disorders. Pound the Pavement for PBDs events are held in communities across the world to raise awareness of Peroxisomal Biogenesis Disorders and funds for the Global Foundation for Peroxisomal Disorders. The Pound the Pavement for PBDs event in - [First ever multi-cellular model of rare disease developed at the University of Alberta](https://thegfpd.org/2011/09/27/2011-09-26-first-ever-multi-cellular-model-of-rare-disease-developed-at-the-university-of-alberta/) - First ever multi-cellular model of rare disease developed at the University of Alberta.http://www.med.ualberta.ca/Home/NewsEvents/News/article.cfm?ID=2288 - [Aspen Pollock in the News](https://thegfpd.org/2011/10/06/aspen-pollock-in-the-news-d73/) - Aspen Pollock, a thirteen-year-old girl with a Peroxisome Biogenesis Disorder, won first place at the San Benito County Fair for her photograph titled, “I am Blind but I can See.” Her story was recently published in the Hollister Free Lance Newspaper. To read more about Aspen and her accomplishments, click here. To purchase a copy of Aspen’s - [Webinar with University of Alberta Researchers](https://thegfpd.org/2011/10/22/webinar-with-university-of-alberta-researchers-1-d41/) - Follow the link below to hear a 2011 presentation by researchers from the University of Alberta: 2011 Webinar with Rick Rachubinski, Fred Mast and Andrew Simmonds (University of Alberta) - [December 2011 Update](https://thegfpd.org/2011/12/11/2011-12-10-december-2011-update/) - Follow the link below to read the GFPD’s year-end update letter from President Shannon Butalla:December 2011 Update - [Hearts Advocating Needs for Deafblind Services: The Newsletter of the Illinois Advocates for the Deafblind (IADB)](https://thegfpd.org/2012/01/25/hearts-advocating-needs-for-deafblind-services-the-newsletter-of-the-illinois-advocates-for-the-deafblind-iadb-d33/) - Maria McCarrick, mother of Katherine McCarrick, contributed this article in the most recent newsletter for the Illinois Deaf-Blind Project newsletter. Her entry highlights the 2011 GFPD Family & Scientific Conference that took place in Omaha, Nebraska July 31 – August 2. IADBWinterSpring2012 - [Researcher to Conduct PBD-ZSD Natural History Study](https://thegfpd.org/2012/08/21/researcher-to-conduct-pbd-zsd-natural-history-study-d84/) - The Global Foundation for Peroxisomal Disorders is assisting Dr. Nancy Braverman, M.S., M.D. (Associate Professor Depts. of Human Genetics and Pediatrics McGill University-Montreal Children’s Hospital) with her efforts to recruit patients for a Natural History Study of Peroxisomal Biogenesis Disorders. For more information, please visit: http://clinicaltrials.gov/ct2/show/study/NCT01668186?term=peroxisome+biogenesis+disorder&rank=1 If you are a parent/ guardian of a child or adult - [GFPD Fall 2012 Newsletter](https://thegfpd.org/2012/11/03/2012-11-02-gfpd-fall-2012-newsletter/) - The GFPD celebrated its second birthday in October 2012! Check out the GFPD Fall 2012 Newsletter for research updates and information about upcoming family-organized fundraisers, as well as an update from GFPD President Shannon Butalla.Fall 2012 Newsletter - [December 2012 Update](https://thegfpd.org/2012/12/21/december-2012-update-d17/) - Follow the link below to read the GFPD’s year-end update letter from President Shannon Butalla: December 2012 Update - [Pound the Pavement for Peter – Atlanta, GA](https://thegfpd.org/2012/12/29/pound-the-pavement-for-peter-e2-80-93-atlanta-ga/) - The Global Foundation for Peroxisomal Disorders was very grateful to be the 2012 recipient of funds from Pound the Pavement for Peter and appreciative of the efforts by Peter’s Pals, the Atlanta/ Brookhaven community, and the family and friends of Peter Amann Hopkins. In its third year, Pound the Pavement for Peter was a huge - [Painting for PBDs – Louisville, KY](https://thegfpd.org/2012/12/29/2012-12-28-painting-for-pbds-louisville-ky/) - To mark the one year anniversary of our son Chase’s death, we hosted “Painting for PBDs” at Uptown Art Uncorked in Louisville, KY. We wanted to do something special to celebrate his life and raise money for those who still struggle with these horrible disorders. Our event was a wonderful way to get people together - [Art for Archer – Meridian, MS](https://thegfpd.org/2012/12/29/art-for-archer-e2-80-93-meridian-ms/) - Our community of Meridian, Mississippi came together on October 20, 2012 for Art for Archer. The idea for this event came from my own home life with my children. I would save all of their artwork from the year, and then we would have a small art sale in our home for friends and family. - [Upcoming Event: First Annual Ilan-a-thon 5K Memorial Run/Walk](https://thegfpd.org/2013/01/29/upcoming-event-first-annual-ilan-a-thon-5k-memorial-runwalk-d38/) - On April 21, 2013, we will be holding the First Anual Ilan-a-thon 5K Memorial Run/Walk benefiting the GFPD in Patterson Park in Baltimore City, MD. This event will be held in memory of our son Ilan Betzer, who passed away October 2011 from the effects of PBD-ZSD at the age of 14 months. Individual and - [GFPD Winter 2013 Newsletter](https://thegfpd.org/2013/02/06/2013-02-05-gfpd-winter-2013-newsletter/) - Check out the GFPD 2013 Winter Newsletter for research updates, information about past and future family-organized fundraisers, news about the upcoming GFPD 2013 conference and much more. Winter 2013 Newsletter - [Small Grants Available for PBD-ZSD Research](https://thegfpd.org/2013/04/02/small-grants-available-for-pbd-zsd-research-d38/) - The GFPD is pleased to announce the availability of small grants. Grants are designed to assist investigators in obtaining preliminary findings, testing “proof of concept,” or conducting other research activities designed to prepare and support competitive, full-scale grant applications related to Peroxisomal Biogenesis Disorder – Zellweger Spectrum Disorder (PBD-ZSD).Clinicians and researchers qualified in any aspect - [Ilan-a-thon in the news](https://thegfpd.org/2013/04/03/ilan-a-thon-in-the-news-d44/) - The Ilan-a-thon Memorial 5k is coming up in a few weeks and is gaining local media attention. Check out coverage of the April 21st event in these Baltimore news sources: ABC2News: “Memorial run for toddler who died from rare disorder” Baltimore Guide: “Patterson Park 5-K to honor kids affected by little-known, deadly disorder” For more information about Ilan-a-thon - [The Brady Colbert Foundation to Host 4th Annual Bikers for Brady & Birdies for Brady Events](https://thegfpd.org/2013/05/07/2013-05-06-the-brady-colbert-foundation-to-host-4th-annual-bikers-for-brady-birdies-for-brady-events/) - Ken and Marsha Colbert founded the Brady Colbert Foundation in memory of their son Brady, who passed away from the devastating effects of PBD-ZSD in 2007. Brady was just 5 months old. The Brady Colbert Foundation is a non-profit organization dedicated to helping families cope with the diagnosis, care taking, and death of a terminally - [GFPD Conference Scholarship Fund](https://thegfpd.org/2013/05/09/gfpd-conference-scholarship-fund-d55/) - If your family is NOT planning on attending the 2013 GFPD Conference, please considermaking a donation and/or participating in our campaign to help other families participate. Do youhave extended family members and friends who would consider making a small donation in honoror memory of your child(ren)? We need your help as we establish the GFPD - [2nd Annual GFPD Dinner Dance in Denair, CA](https://thegfpd.org/2013/05/09/2nd-annual-gfpd-dinner-dance-in-denair-ca-d51/) - The Second Annual GFPD Dinner Dance benefiting the Global Foundation for Peroxisomal Disorders in memory of Diego and Adrian Alfaro will be held on Saturday, October 5th at the Denair Community Center in Denair, California. The Mike Torres Band will perform and a silent auction and raffle are also planned. More details will be made - [2nd Annual Pancakes for PBD-ZSD in Mt. Zion, IL](https://thegfpd.org/2013/05/09/2nd-annual-pancakes-for-pbd-zsd-in-mt-zion-il-d41/) - The Marshall family of Illinois will host their 2nd Annual Pancakes for PBD-ZSD benefit on Saturday, May 18th from 7:00-11:00am at the First Baptist Church in Mt. Zion, IL. The all-you-can-eat pancake and sausage breakfast will raise awareness of PBD-ZSD, as well as funds to help cover the cost for Jeff, Pamela, and Ethan to - [The ALD-AMN Global Alliance and Newborn Screening Project](https://thegfpd.org/2013/05/09/the-ald-amn-global-alliance-and-newborn-screening-project-d16/) - While PBD-ZSD and ALD (or X-ALD) are different diseases, they are related peroxisomal disorders that share many similarities. Newborn screening that has been developed to identify boys with X-ALD should also identify children with PBD-ZSD, D-bifunctional protein deficiency (DBPD) and other peroxisomal disorders. The ALD-AMN Global Alliance is supporting efforts in the United States and the - [Natural History Study of Peroxisomal Biogenesis Disorders](https://thegfpd.org/2013/05/10/natural-history-study-of-peroxisomal-biogenesis-disorders-d86/) - GFPD is assisting Dr. Nancy Braverman, M.S., M.D. (Associate Professor Depts. of Human Genetics and Pediatrics McGill University-Montreal Children’s Hospital) with her efforts to recruit patients for a Longitudinal Natural History Study of Peroxisomal Biogenesis Disorders. For more information, please visit www.clinicatrials.gov, a service of the U.S. National Institute of Health or follow this direct link. - [Flight For Phoenix](https://thegfpd.org/2013/05/11/2013-05-10-flight-for-phoenix/) - When we first began our fundraising journey so Phoenix and I could attend the 2013 GFPD Conference in the US, we were completely overwhelmed by all the rules and legalities entailed. We were incredibly lucky when through Phoenix’ Early Intervention teacher we were introduced to a local charity called Kids In Need. KIN are an - [Ilan-a-thon 5k Race 2013](https://thegfpd.org/2013/05/22/ilan-a-thon-5k-race-2013-d94/) - The First Annual Ilan-a-thon Memorial 5K benefiting the GFPD took place on April 21. 2013, in Patterson Park, Baltimore, MD. We organized this event to celebrate and honor the life of our son, Ilan, and raise awareness for PBD-ZSD. Throughout our year of planning for the race, we acquired over 20 corporate sponsors and 15 - [Kloefkorn Cubs for GFPD!](https://thegfpd.org/2013/07/07/kloefkorn-cubs-for-gfpd-d39/) - A big thank you to the 4th Grade Students at Kloefkorn Elementary in Lincoln, Nebraska for hosting “Hat Day” in honor of their friend and fellow student, Sam Butalla. These 4th Graders implemented a spirit day project that allowed the Kloefkorn School Community to wear a hat to school by donating $1 to GFPD. In - [Livi Menard in the News](https://thegfpd.org/2013/08/02/livi-menard-in-the-news-d34/) - The Clayton News-Star writes about the Menard family’s upcoming trip to Lincoln, NE to participate in the GFPD 2013 Family and Scientific Conference: http://www.claytonnewsstar.com/2013/07/22/3047707/clayton-child-with-rare-disease.html - [GFPD Awards Four Grants](https://thegfpd.org/2013/08/06/2013-08-05-gfpd-awards-four-grants/) - The Global Foundation for Peroxisomal Disorders is pleased to announce the funding of four research projects in the field of peroxisomal disorders:Dr. Nancy Braverman of McGill University in Montreal, Canada, was awarded $10,875.00 for the Canadian arm of a project entitled “A Pilot, Mult-Center Open-Label Trial Assessing the Safety and Efficacy of Betaine in Children - [Upcoming Event: 2nd Annual Dinner Dance to Honor Diego and Adrian Alfaro](https://thegfpd.org/2013/08/10/upcoming-event-2nd-annual-dinner-dance-to-honor-diego-and-adrian-alfaro-d53/) - The Second Annual GFPD Dinner Dance benefiting the Global Foundation for Peroxisomal Disorders in memory of Diego and Adrian Alfaro will be held on Saturday, October 5th at the Denair Community Center in Denair, California. The Mike Torres Band will perform and a silent auction and raffle are also planned. For more information, visit the Facebook - [NORD Provides New State Insurance InformationNORD Provides New State Insurance Information](https://thegfpd.org/2013/09/28/2013-09-27-nord-provides-new-state-insurance-informationnord-provides-new-state-insurance-informatio/) - The National Organization for Rare Disorders (NORD) has issued an interactive map detailing state-specific information about the upcoming changes to the Insurance Marketplace. Changes take place on October 1st. View the NORD Interactive Map - [Save the Date: 2nd Annual Ilan-a-thon 5k in Baltimore, MD](https://thegfpd.org/2013/10/09/save-the-date-2nd-annual-ilan-a-thon-5k-in-baltimore-md-d84/) - Save the date for the second annual Ilan-a-thon 5k Race! More information to come. Visit ilanathon.org to learn more about Ilan’s life and the annual 5k Race his family is organizing in his memory. - [Remembering Jordan: GFPD Family in the News](https://thegfpd.org/2013/10/10/remembering-jordan-gfpd-family-in-the-news-d27/) - The Highlands Today edition of the Tampa Tribune recently shared the story of one PBD family.http://highlandstoday.com/hi/local-news/remembering-jordan-20131005/ - [Diego and Adrian’s 2nd Annual Dinner Dance Benefits GFPD](https://thegfpd.org/2013/10/22/diego-and-adrian-e2-80-99s-2nd-annual-dinner-dance-benefits-gfpd/) - GFPD Dinner Dance – October 5, 2013 – Turlock, CA The Alfaro family of Turlock, CA, hosted the second annual Dinner Dance in memory of their two “angel” children, Diego & Adrian. Both brothers were diagnosed with Peroxisome Biogenesis Disorder—Zellweger Spectrum Disorder (PBD—ZSD) and before they passed, their parents Carolina and Jose promised to keep their - [GFPD Fall 2013 e-Newsletter](https://thegfpd.org/2013/10/23/gfpd-fall-2013-e-newsletter-d43/) - Read the GFPD 2013 Fall e-Newsletter for updates on GFPD news, our Family Spotlight story about the Alfaro family, and news about a recent GFPD grant recipient Dr. Joseph Hacia of University of Southern California. 2013 Fall e-Newsletter - [Kennedy Krieger Institute Launching Moser Center for Leukodystrophies](https://thegfpd.org/2013/10/29/2013-10-28-kennedy-krieger-institute-launching-moser-center-for-leukodystrophies/) - The Kenney Krieger Institute of Baltimore, MD, is launching the Moser Center for Leukodystrophies. The Moser Center, named for the late Hugo W. Moser, will focus on providing comprehensive care for children and adults affected by leukodystrophies. Read more about the launch of the center and its aims: http://www.kennedykrieger.org/patient-care/patient-care-centers/center-for-leukodystrophies - [NORD Salutes Congress for Passing Pediatric Research Bill](https://thegfpd.org/2013/11/16/nord-salutes-congress-for-passing-pediatric-research-bill-d88/) - The National Organization for Rare Disorders (NORD), has announced its support for Congress’ passage of the National Pediatric Research Network Act, which promotes “medical research on pediatric diseases and, in particular, on rare diseases affecting children.”The bill now awaits President Obama’s signature. Click below to read the NORD announcement:http://campaigns.rarediseases.us/t/ViewEmail/r/01E40045C95ADF6F2540EF23F30FEDED/D2D2A98CCB7109284936C359EC0425C0 - [Winter 2013 President’s Letter](https://thegfpd.org/2013/12/04/winter-2013-president-e2-80-99s-letter/) - Dear Friends, Holiday greetings from The Global Foundation for Peroxisomal Disorders! We have many reasons to celebrate this year, with advancements and discoveries that could help children with Peroxisome Biogenesis Disorder – Zellweger Spectrum Disorder (PBD-ZSD) in the near future. The GFPD marked its three-year anniversary in October, and we’re ecstatic about the impact we’ve had - [GFPD Joins Global Genes RARE Foundation Alliance](https://thegfpd.org/2014/02/01/2014-01-31-gfpd-joins-global-genes-rare-foundation-alliance/) - The Global Foundation for Peroxisomal Disorders has joined with the Global Genes Project in their RARE Foundation Alliance. The Alliance was formed in 2013 to “build a stronger collective impact in the rare disease community by uniting rare disease foundations in a shared commitment to advocacy.”The GFPD joins more than 135 other rare disease foundation - [Support GFPD with AmazonSmile](https://thegfpd.org/2014/02/13/support-gfpd-with-amazonsmile-d20/) - Now when you shop at AmazonSmile, Amazon with donate to Global Foundation for Peroxisomal Disorders. Support GFPD every time you shop! - [Save the Date for Pound the Pavement for Peter in Atlanta, GA](https://thegfpd.org/2014/02/13/2014-02-12-save-the-date-for-pound-the-pavement-for-peter-in-atlanta-ga/) - Save the date for the Pound the Pavement for Peter 5k Race! This year’s race will be held on Saturday, March 29th at the Capital City Club in Atlanta, GA. Visit http://www.poundthepavementforpeter.com to learn more about Peter’s life and the annual 5k Race his family is organizing in his memory. - [GFPD Families Celebrate World Rare Disease Day 2014](https://thegfpd.org/2014/03/01/gfpd-families-celebrate-world-rare-disease-day-2014-d61/) - GFPD families are celebrating World Rare Disease Day by wearing jeans. Here are just a few pictures of our supporters: To learn more about Rare Disease Day and its aims, check out http://www.rarediseaseday.org and http://rarediseaseday.us Are you wearing “Jeans for Genes” on Rare Disease Day? Send a picture to heidi@thegfpd.org to have it included here. - [GFPD Family Profiled on CutePotato.com](https://thegfpd.org/2014/03/01/gfpd-family-profiled-on-cutepotatocom-d46/) - In honor of World Rare Disease Day, blogger Jennifer Hazard wrote about her nephew Jack and his life with PBD-ZSD on her website Cute Potato: http://cutepotato.com/2014/02/28/show-your-love-redux-running-for-hope/ We love hearing about Jack’s recent successes and look forward to seeing him, along with his family, at the Ilan-a-thon 5k Family Run in Baltimore, MD in June! - [Madeline Holt in the News](https://thegfpd.org/2014/04/20/2014-04-19-madeline-holt-in-the-news/) - Sixteen month old Madeline Holt is in the news, along with her mother Meagan. Meagan is the 2014 Snohomish County March for Babies Ambassador in Washington state.Read about the Holt family here: http://edmondsbeacon.villagesoup.com/p/march-for-babies-ambassador-inspires-hope/1168766 And read more about the diagnosis and impacts of Peroxisomal Biogenesis Disorder – Zellweger Spectrum Disorder here: http://www.thegfpd.org/for-doctors/for-doctors and here: http://www.thegfpd.org/for-doctors/for-therapists - [Pound the Pavement for Peter 5k a HUGE Success!](https://thegfpd.org/2014/05/01/pound-the-pavement-for-peter-5k-a-huge-success-d29/) - Congratulations to the Pound the Pavement for Peter team for another successful 5k run in honor of Peter Hopkins! Learn about Peter and view pictures from this year’s event at www.poundthepavementforpeter.com - [Get to Know 2014 Ilan-a-Thon Honoree Livi Menard](https://thegfpd.org/2014/05/09/get-to-know-2014-ilan-a-thon-honoree-livi-menard-d76/) - Recently, I had the privilege of interviewing Jen Menard, mother to this year’s Ilan-a-thon honoree, 3-year old Livi Menard. As a mother of two, and godmother to a 19-month old nephew with PBD, Jen’s thoughtful answers meant a great deal. I’m inspired by her honesty, and her gentle way of “spreading the Livi love around.” How - [Invitation to FDA Public Meeting on Neurologic Manifestations of Inborn Errors of Metabolism](https://thegfpd.org/2014/05/14/invitation-to-fda-public-meeting-on-neurologic-manifestations-of-inborn-errors-of-metabolism-d41/) - The FDA is looking for patient advocate voices at their Public Meeting on Neurologic Manifestations of Inborn Errors of Metabolism. Read on for information about attending the meeting in person or via webcast on June 10, 2014: Dear patient stakeholder, We invite you to attend an upcoming public meeting on neurologic manifestations of inborn errors of metabolism,as - [Upcoming Ilan-a-thon 5k Race in the News](https://thegfpd.org/2014/05/15/2014-05-14-upcoming-ilan-a-thon-5k-race-in-the-news/) - The Baltimore Guide has written about the upcoming Ilan-a-thon 5k race. The 2nd Annual Ilan-a-thon will be held on June 8, 2014 in Baltimore’s Patterson Park. Take a look and pass it on! http://baltimoreguide.com/race-to-help-children-suffering-from-little-known-disease/ - [The Voice’s Kiki deVille: ‘I’ve learnt it’s OK to laugh again’](https://thegfpd.org/2014/05/19/the-voice-e2-80-99s-kiki-deville-e2-80-98i-e2-80-99ve-learnt-it-e2-80-99s-ok-to-laugh-again-e2-80-99/) - Read about “The Voice” contestant and PBD mom Kiki deVille’s experience with her son Dexter, who was diagnosed with Zellweger Syndrome (PBD-ZSD). http://www.reveal.co.uk/real-life-stories/news/a562364/the-voices-kiki-deville-ive-learnt-its-ok-to-laugh-again.html - [GFPD Summer 2014 e-Newsletter](https://thegfpd.org/2014/05/28/2014-05-27-gfpd-summer-2014-e-newsletter/) - Read the GFPD 2014 Summer e-Newsletter for GFPD news, our Family Spotlight story about the Menard family, and an update about the GFPD-funded clinical trial of Betaine in patients with PBD-ZSD. GFPD Summer 2014 e-Newsletter - [GFPD Parent Brings Special Needs Shopping Carts to Her Town](https://thegfpd.org/2014/08/03/gfpd-parent-brings-special-needs-shopping-carts-to-her-town-d66/) - Way to go, Carolina! Thanks to a GFPD mom, children with special needs in Turlock, CA, now have access to a Caroline’s Cart in their local grocery store. http://www.turlockjournal.com/section/12/article/26844/ We appreciate all of Carolina’s efforts to improve the lives of children, including those with PBD! Carolina and her husband, Jose, also hold an annual event honoring the - [A Military Mom of Four and Former Homeschooler Shares Her PBD Experience](https://thegfpd.org/2014/08/07/a-military-mom-of-four-and-former-homeschooler-shares-her-pbd-experience-d12/) - Ashley Maple, mother to Sophie (10), Lydia (8), Madden (6), and Archer—who has PBD and turns 4 in September—discusses what it’s like to raise a big family and find balance in the day-to-day at her home in Havelock, North Carolina. With four children, I’m curious how you manage each day. Do you have help?It is very - [GFPD President on Rare Disease Fundraising and the Ice Bucket Challenge](https://thegfpd.org/2014/08/26/2014-08-25-gfpd-president-on-rare-disease-fundraising-and-the-ice-bucket-challenge/) - GFPD President, Shannon Butalla, recently shared some thoughts on the Ice Bucket Challenge benefiting ALS research, and on the work of generating awareness for rare diseases. Read her comments in the Lincoln Journal Star: http://journalstar.com/news/local/cindy-lange-kubick-going-beyond-the-ice-bucket/article_f42da061-e6c4-50d1-8ef6-f82d8bd3e5cc.html - [Recent advancements in PBD research](https://thegfpd.org/2014/09/15/recent-advancements-in-pbd-research-d2/) - Exciting news about recent advancements in the study of peroxisomal disorders at the University of Alberta. We are lucky to have Dr. Richard Rachubinski on our Medical Advisory Board, and to work closely with Dr. Andrew Simmons as well. We are so grateful for the important work these researchers are doing! - [#PauseforPBDs on October 5, 2014](https://thegfpd.org/2014/09/21/2014-09-20-pauseforpbds-on-october-5-2014/) - unday, October 5, 2014 is The Global Foundation for Peroxisomal Disorders 4th birthday! Show support by taking a moment to pause for individuals & families devastated by Peroxisome Biogenesis Disorders. Release a balloon, say a prayer, light a candle, meditate, have a moment of silence… be creative! Reflect, honor, and remember a loved one impacted - [GFPD Family Organizes Vigil for Infant Loss Rememberance Day](https://thegfpd.org/2014/10/17/gfpd-family-organizes-vigil-for-infant-loss-rememberance-day-d56/) - Meagan Holt, mother to Madeline and Olivia, organized a candle lighting event in Everett, WA to mark Pregnancy and Infant Loss Remembrance Day. Meagan organized the event in part to remember her three children who were lost in or before infancy. She also has one daughter with PBD and one unaffected daughter. Read more about - [UNMC researcher heads $3.3 million national study](https://thegfpd.org/2014/10/20/unmc-researcher-heads-3-3-million-national-study/) - Dr. Rizzo said several of the diseases are so rare that between 500 and 1,000 children nationwide may be affected. Some diseases are even more rare than that, he added. - [GFPD Medical Advisory Board Member Awarded NIH Grant](https://thegfpd.org/2014/10/27/gfpd-medical-advisory-board-member-awarded-nih-grant-d62/) - Congratulations to GFPD Medical Advisory Board member Dr. William Rizzo who has received a five year, $3.3 million grant to study rare diseases, including Peroxisome Biogenesis Disorder-Zellweger Spectrum Disorder. GFPD President Shannon Butalla contributed a letter of support of Dr. Rizzo’s work to help secure the grant funds from the National Institute of Health, National - [High School Robotics Team Creates Car for GFPD Kid](https://thegfpd.org/2015/02/12/2015-02-11-high-school-robotics-team-creates-car-for-gfpd-kid/) - A high school robotics team in Illinois built and donated a custom motorized car to Ethan, a child with PBD. Great work, Mars Wars team! http://www.centralillinoisproud.com/story/d/story/metamora-robotics-team-donates-car-to-easter-seals/28149/EtVsB6QB3EqBmaGfHsgPoA - [GFPD Make-a-Wish Kid Donates Wish](https://thegfpd.org/2015/02/12/gfpd-make-a-wish-kid-donates-wish-d42/) - Levi, a boy with PBD who is not well enough to travel for his Make-a-Wish vacation, donated his trip to his best friend Emma. Emma went on Levi’s trip to Florida and she took “Flat Levi” along with her. Read about Levi and Emma’s friendship and view pictures from her trip: http://www.huffingtonpost.com/2015/01/29/make-a-wish-trip-levi-mayhew-emma-broyer_n_6571668.html - [Hope Gets You Through: An Interview with Meagan Holt](https://thegfpd.org/2015/05/01/2015-04-30-hope-gets-you-through-an-interview-with-meagan-holt/) - Meagan Holt is a portrait of strength—she’s lost multiple babies and her two-year old daughter, Madeline, was diagnosed with Zellweger Spectrum Disorder—but she continues to advocate. Meagan served as the 2014 ambassador for the Snohomish (WA) County March of Dimes March for Babies, organized a candlelight vigil for parents who have experienced pregnancy and infant - [Pound the Pavement for Peter 2015](https://thegfpd.org/2015/05/02/pound-the-pavement-for-peter-2015-d28/) - Pound the Pavement for Peter is a Family 5K Run in Atlanta that was started in honor of my son, Peter Hopkins, who lost his life to a Peroxisomal Disorder in 2010 when he was just shy of 4 years old. As with many of your children with PBD’s, he spent his life with numerous - [Novo Nordisk Nebraska Supports GFPD](https://thegfpd.org/2015/05/14/novo-nordisk-nebraska-supports-gfpd-d84/) - A beautiful balloon launch with the Novo Nordisk Nebraska Districts. Thank you for your support of GFPD! - [2015 GFPD Dinner Dance in Honor of Adrian and Diego Alfaro Planned](https://thegfpd.org/2015/07/07/2015-07-06-2015-gfpd-dinner-dance-in-honor-of-adrian-and-diego-alfaro-planned/) - Planning for the 2015 Dinner Dance benefiting the GFPD and honoring the memories of Adrian and Diego Alfaro is underway. Please mark your calendars for October 24, 2015 in Modesto, CA. More information about this third fundraiser held by the Alfaro family can be found at http://diegoandadrian.com/Events.php and on Facebook at http://www.facebook.com/events/445865698931159/ - [Ilan-a-thon 5k 2015 Goes Virtual](https://thegfpd.org/2015/07/07/ilan-a-thon-5k-2015-goes-virtual-d55/) - We’re really pleased to announce that this year’s Ilan-a-thon 5k is a virtual event that you can participate in wherever you are! Visit the Ilan-a-thon Jive-K event page to learn how you can get involved to raise awareness about peroxisomal disorders in the Zellweger spectrum. Our great thanks to Ilan’s family for their continued efforts - [July 30th Proclaimed Zellweger Disorder Awareness Day in Indiana](https://thegfpd.org/2015/07/31/2015-07-30-july-30th-proclaimed-zellweger-disorder-awareness-day-in-indiana/) - We are very moved today at the news that Levi Mayhew’s family, in a time of great grieving, has had July 30th proclaimed Zellweger Spectrum Disorder Awareness Day in the state of Indiana. We shared Levi’s story with you last winter when he gave his Make-a-Wish trip to his friend Emma because he was too - [Riley Brown named Cutest Baby by Otago Daily Times](https://thegfpd.org/2015/08/11/riley-brown-named-cutest-baby-by-otago-daily-times-d70/) - Six month old Riley Brown, who has PBD-ZSD, was named "Cutest Baby" in a contest held by the Otago Daily Times. Congratulations, Riley! And thanks to the Brown family for helping to spread awareness about PBD-ZSD. Read their thoughts on life with Riley and on winning the contest in the OTD article Riley Crowned Cutest Baby. - [Raise Awareness when you #PAUSEforPBD on October 5th](https://thegfpd.org/2015/08/11/raise-awareness-when-you-pauseforpbd-on-october-5th-d31/) - Once again, we will be commemorating the GFPD's birthday on October 5th by inviting our friends, families, and supporters to join us in a moment of reflection, memory, action, or celebration. Will you #PAUSEforPBD this year? We're excited to be offering official #PAUSEforPBD tshirts (more on that to come soon!) that you can wear on October - [A New Look at PBD-ZSD Patients Living into Adulthood](https://thegfpd.org/2015/09/05/2015-09-04-a-new-look-at-pbd-zsd-patients-living-into-adulthood/) - A newly published article in the Journal of Metabolic Disease describes a “distinct subgroup within ZSDs [Zellweger Spectrum Disorders] who survive into adulthood” and “emphasizes that ZSDs should no longer be considered solely as a paediatric disease.” Primary author Kevin Berendse, and his colleagues Drs. Bwee Pol-The and Dr. Ronald J. A. Wanders were in - [NYT Article Highlights Dr. Braverman's Work on Peroxisomal Disorders](https://thegfpd.org/2015/09/07/nyt-article-highlights-dr-bravermans-work-on-peroxisomal-disorders-d34/) - This article in today's New York Times tells a familiar story about families seeking treatment for their children suffering from a rare disease. Like those families, our families also rely on Dr. Nancy Braverman of McGill University in Montreal for much of our hope. Dr. Braverman is a researcher dedicated to PBD-ZSD and other related - [Dr. Joseph Hacia Creates Mosaic for GFPD Kids](https://thegfpd.org/2015/09/09/2015-09-08-dr-joseph-hacia-creates-mosaic-for-gfpd-kids/) - We absolutely LOVE this beautiful image, created by GFPD Scientific Advisory Board member Dr. Joseph Hacia of the Keck School of Medicine at the University of Southern California. Dr. Hacia presented the mosaic he created at the 2015 Family & Scientific Conference, where it hung at the entrance of the conference space for all to - [PBD families meet up in the UK](https://thegfpd.org/2015/10/30/2015-10-29-pbd-families-meet-up-in-the-uk/) - In September, our UK families got together for their very first PBD family meet up, kindly organised and hosted by Michelle Thompson. Our families spent the day at Synergy at Calthorpe, a gym and spa space at Calthorpe Academy, which was kindly donated for free by its owner, Andy Holden.Not only did families get the - [GFPD Co-Founder Discusses Her "Long Search" for Diagnosis](https://thegfpd.org/2015/11/17/2015-11-16-gfpd-co-founder-discusses-her-long-search-for-diagnosis/) - GFPD Co-Founder Melissa Gamble recently shared the story of her daughter Ginny's birth and their years-long search for a diagnosis. Writing for Counsyl, a provider of genetic testing for inherited diseases, Melissa discusses how Ginny's diagnosis of PBD-ZSD lead to the founding of the GFPD, and of the importance of awareness of genetic diseases in - [Family Fundraising Video Raises Big Money for GFPD](https://thegfpd.org/2015/11/28/2015-11-27-family-fundraising-video-raises-big-money-for-gfpd/) - When Max was diagnosed with PBD, my husband and I were devastated to learn that treatments were limited and that it was ultimately terminal. We were somewhat surprised that diseases with no treatments even still existed. It was obvious that we needed to raise money to support research for PBD, but it wasn’t until we - [Schumacher Group Comes Together to Celebrate Ginny Gamble](https://thegfpd.org/2015/11/28/schumacher-group-comes-together-to-celebrate-ginny-gamble-d36/) - Contributed by Jennifer Hazard of Cute Potato When communities work together to support one other, amazing things can happen. Such is the case with Schumacher Group—a healthcare staffing and hospital solutions company located in Lafayette, Louisiana. In early July, the company rallied around Brant Gamble, Vice President of Business Development, and his wife Melissa, who is - [GFPD Fall 2015 e-Newsletter](https://thegfpd.org/2015/12/01/2015-11-30-gfpd-fall-2015-e-newsletter/) - The Fall 2015 e-Newsletter has been released and features stories about all the work our families and supporters have undertaken to further the mission of the GFPD in recent months. Read it here: http://us2.campaign-archive2.com/?u=ef4ddd5e49dc04f768f88c236&id=85996d8120&e=c1ae5ab7b1 To receive future newsletters by email, click here. - [Family Dinner Dance Fundraiser Grows in its Third Year](https://thegfpd.org/2015/12/01/2015-11-30-family-dinner-dance-fundraiser-grows-in-its-third-year/) - Carolina and Jose Alfaro recently celebrated the lives of their children with their third Dinner Dance fundraiser for the GFPD. In Modesto, CA, friends of the Alfaro family came together to eat, drink, and be merry as they remembered the lives of Diego and Adrian, who were both affected by PBD-ZSD. Big brother Jose Jr. - [PBD-ZSD Treatment Guidelines published in collaboration with GFPD](https://thegfpd.org/2016/01/05/pbd-zsd-treatment-guidelines-published-in-collaboration-with-gfpd-d6/) - In a years-long effort, GFPD Family and Scientific Liaison Dr. Mousumi Bose has headed up a collaborative project with the GFPD Medical and Scientific Advisory Board, to prepare treatment guidelines for the PBD-ZSD population. Dr. Bose explains, "The expertise and insight documented in these guidelines will be a tremendous resource, as local physicians and specialists - [The GFPD in 2016: Looking Ahead to the Year of the Peroxisome](https://thegfpd.org/2016/01/16/2016-01-15-the-gfpd-in-2016-looking-ahead-to-the-year-of-the-peroxisome/) - The New Year is here and we at the GFPD have hit the ground running, with lots of work underway and upcoming in the months ahead. As the terms of several of our original board of directors have come to an end, we are looking forward to welcoming new members and have said goodbye to - [Study finds low bone mineral density common in PBD-ZSD patients](https://thegfpd.org/2016/02/01/2016-01-31-study-finds-low-bone-mineral-density-common-in-pbd-zsd-patients/) - Dr. Eric Rush, of University of Nebraska Medical Center, and who is a member of our own Scientific Advisory Board, has published his findings that low bone mineral density is a common feature of PBD-ZSD. Congratulations to Dr. Rush, and our thanks to the GFPD families who participated in his research. The full text can - [Wangler Lab at Baylor College of Medicine to focus on peroxisomal disease research](https://thegfpd.org/2016/02/03/wangler-lab-at-baylor-college-of-medicine-to-focus-on-peroxisomal-disease-research-d23/) - A huge congratulations to GFPD scientific adviser, Dr. Michael Wangler, who will be launching his own independent laboratory this summer with a focus on peroxisomal disease research. Dr. Wangler is a physician-scientist at Baylor College of Medicine and has been scientific adviser to the GFPD since 2013. The GFPD community is so grateful for Dr. - [Rare Disease Day Advocacy News](https://thegfpd.org/2016/03/01/2016-02-29-rare-disease-day-advocacy-news/) - The last day of each February is World Rare Disease Day, a time to raise awareness for rare disease. This day allows us to focus on advocacy work being done, as well as on the need for further advances in research and the development of medical treatment options for the approximately 7,000 rare diseases that - [GFPD Receives NORD Grant to Conduct Natural History Study](https://thegfpd.org/2016/04/20/2016-04-19-gfpd-receives-nord-grant-to-conduct-natural-history-study/) - We are excited to announce that the GFPD has been awarded a grant to undertake a Natural History Study project with the National Organization for Rare Disorders (NORD), funded in cooperation with the Food and Drug Administration (FDA). Our Primary Investigator, GFPD Medical and Research Liaison Dr. Mousumi Bose, will work with a Scientific Advisory - [#GFPDisFamily Video Premiers](https://thegfpd.org/2016/05/18/gfpdisfamily-video-premiers-d13/) - Attendees at the Tee It Up For The GFPD reception and auction got a first look at our new GFPD Family video tonight. Check it out and please share to help get the word out about the all the amazing kids and families that make up the GFPD. Supporting the GFPD supports these families. ‪#‎GFPDisFamily‬ ‪#‎YearofthePeroxisome‬ - [GFPD Partners to Fund Research at NCATS](https://thegfpd.org/2016/05/20/2016-05-20-gfpd-partners-to-fund-research-at-ncats/) - The GFPD has partnered with the Wynne Mateffy Research Foundation to fund a research project at the National Institutes of Health (NIH). This partnership will support a postdoctoral fellowship for research at the National Center for Advancing Translational Sciences (NCATS), using high-throughput drug screening to uncover therapies for children with PBD-ZSD. Find the position posting - [Grandmother Writes Book to Raise Awareness and Funds for the GFPD](https://thegfpd.org/2016/05/24/2016-05-24-grandmother-writes-book-to-raise-awareness-and-funds-for-the-gfpd/) - Ann Duquette is a children’s book author, educator, dog lover and grandmother to Riley (age 4) and Madalyn Duquette (age 2). Prior to her first grandchild’s birth, Ann was hiking in her home state of Maine with her Yorkshire terrier, Sam, and was impressed by the little dog’s stamina. “I swear that dog believed he - [A Community Rallies Around the Chapman Family](https://thegfpd.org/2016/05/27/a-community-rallies-around-the-chapman-family-d72/) - I attended the first annual Tee it Up for the GFPD in honor of two-year-old Max Chapman. The event included a Silent Auction reception on Wednesday night and a Golf Scramble and Reception on Thursday. I awoke on Friday with sore muscles, but still a huge smile and warm feeling in my heart. Todd Chapman, - [Update from the Annual GFPD Scientific Advisory Meeting](https://thegfpd.org/2016/06/22/2016-06-22-update-from-the-annual-gfpd-scientific-advisory-meeting/) - The summer is off to a great start for the field of PBD-ZSD research! This month, the GFPD held its annual Scientific Advisory Board meeting at the Kennedy Krieger Institute. This meeting included 20 attendees, including the GFPD Scientific Advisers, the GFPD Board of Directors, and several guests. The following current topics in in the - [More than a Race, Ilan-a-thon is a Celebration](https://thegfpd.org/2016/07/05/2016-07-05-more-than-a-race-ilan-a-thon-is-a-celebration/) - Following June's Ilan-a-thon Family 5k, a friend of Ilan and his family shared some thoughts on what makes the event so special for everyone involved. Our thanks to Bonny Ghosh for sharing. I remember sitting next to Ilan in the ICU, meeting his gaze to see if he was enjoying the Elmo book I was - [Ilan-a-thon 2016: Let the colors shine!](https://thegfpd.org/2016/08/18/ilan-a-thon-2016-let-the-colors-shine-d59/) - Ilan-a-thon is all about the colors! Well, not really, it's all about the people, but the vibrant colored t-shirts individuals and families wear tell an important story -- one I especially noticed in this year's 2016 Ilan-a-thon in June. It's really no wonder that the colored t-shirts hold a special place in my heart. As - [Family. Research. Hope.](https://thegfpd.org/2016/09/21/2016-09-21-family-research-hope/) - October 5th marks the sixth birthday of the Global Foundation for Peroxisomal Disorders. In just six short years, we have made tremendous progress in Peroxisomal disorder research, supporting families facing a Zellweger spectrum disorder, and raising awareness of Peroxisomal Biogensesis Disorders in the Zellweger Spectrum. To help celebrate our recent growth and achievements, we are - [September is Leukodystrophy Disease Awareness Month! What Do You Know About It?](https://thegfpd.org/2016/09/27/2016-09-27-september-is-leukodystrophy-disease-awareness-month-what-do-you-know-about-it/) - What is Leukodystrophy? Leukodystrophy causes the myelin, or “white matter,” of the brain to progressively decline. Myelin, which acts as an insulating cover over nerve fibers in our brains, is responsible for the correct and fast movement of nerve impulses. The less myelin present, the slower information travels between nerve cells. Some people with a - [My experience attending the 2016 Deafblind Symposium](https://thegfpd.org/2016/10/13/2016-10-13-my-experience-attending-the-2016-deafblind-symposium/) - “How was your conference?” It’s a question many people have asked me. Others have no idea what a loaded question it is. My quick ‘go to’ answer to this often quick exchange has been to simply say “Amazing! I am so full.” But those four words mean so much more than I think many can - [Developing a Game Plan for School: One Parent’s Experience with the IEP Process](https://thegfpd.org/2016/10/26/developing-a-game-plan-for-school-one-parent-e2-80-99s-experience-with-the-iep-process/) - This month, I had the pleasure of interviewing my sister, Kelly Dauer-Hubschmitt. Her four-year old son (and my nephew), Jack, began preschool in New Jersey last year. I’d talked with Kelly about the process of finding the right school for Jack, but I wanted to fully understand it from start-to-finish. In this discussion, Kelly tells me - [GFPD Fall 2016 Newsletter](https://thegfpd.org/2016/11/14/2016-11-14-gfpd-fall-2016-newsletter/) - The GFPD's Fall 2016 Newsletter features stories about all the work our families and supporters have undertaken in recent months to further the mission of the GFPD, from family organized fundraising events, to a meeting of our Scientific Advisory Board and tour of the labs in which GFPD is funding exciting research. For more about - [Your End of Year Gift Can Make Research a Reality](https://thegfpd.org/2016/11/28/your-end-of-year-gift-can-make-research-a-reality-d38/) - Season’s Greetings from the Global Foundation for Peroxisomal Disorders! We are wrapping up a busy and productive year in which we have hosted events, supported families, and promoted scientific research in the field of Peroxisomal Biogenesis Disorder-Zellweger Spectrum Disorder (PBD-ZSD). We traveled to the National Institutes of Health in Bethesda, MD, to tour the labs of - [Retinal Gene Therapy Trial Underway at McGill University](https://thegfpd.org/2017/01/10/2017-01-10-retinal-gene-therapy-trial-underway-at-mcgill-university/) - Our dedicated researchers worked hard over the holidays, making great progress on the PBD-ZSD retinal gene therapy project at McGill University. The PEX1 mice have received retinal injections of the normal PEX1 gene. The mice are doing well and soon we will be able to determine if this treatment has an effect on their vision. - [GFPD/STAIR Collaboration Invites Patient Input in Research](https://thegfpd.org/2017/01/12/2017-01-12-gfpdstair-collaboration-invites-patient-input-in-research/) - Among medical professionals, rare diseases like Peroxisome Biogenesis Disorder-Zellweger Spectrum Disorder (PBD-ZSD) are challenging to recognize in patients and even more challenging to treat. Currently, there is no specific treatment for PBD-ZSD and most therapeutic options focus on management of individual symptoms. Even the treatment of individual symptoms is difficult to address by medical professionals - [GFPD Awarded RARE Impact Innovation Grant for Pilot Study](https://thegfpd.org/2017/02/13/gfpd-awarded-rare-impact-innovation-grant-for-pilot-study-d44/) - We are very happy to announce that we have been awarded a RARE Impact Innovation Grant from Global Genes to conduct focus group sessions at our 2017 Family and Scientific Conference in a pilot study that will form the foundation for research studies addressing the unmet medical, health, and nutritional needs of children with ZSD. - [Remembering Gillian MacLean](https://thegfpd.org/2017/03/29/2017-03-29-remembering-gillian-maclean/) - The GFPD is heartbroken to report the sudden passing of Gillian MacLean, who worked with Dr. Nancy Braverman. Gillian’s research efforts were responsible for the discovery of diosmetin as a potential therapeutic option for PBD-ZSD. Diosmetin remains the most effective agent for rescuing peroxisome function in cell lines and will be used as the gold - [Please join our family at the GFPD Conference in Washington, DC this summer](https://thegfpd.org/2017/05/02/2017-05-02-please-join-our-family-at-the-gfpd-conference-in-washington-dc-this-summer/) - Greetings GFPD families, It is hard to believe that in less than three months many of us will be together in Washington DC at the 2017 GFPD Conference meeting in person for the first time and/or reuniting with friends who we haven't seen seen in two years or more. If you have not yet made - [Scientific collaboration bringing GFPD Conference to Washington, DC this summer](https://thegfpd.org/2017/05/05/scientific-collaboration-bringing-gfpd-conference-to-washington-dc-this-summer-d17/) - Our Conference Planning Committee has been hard at work for months getting ready for what we know will be our best conference yet. GFPD Board President, Melissa Bryce Gamble, answers a few questions about this year’s new location and what families attending the conference can expect from the experience. Melissa, this is the fifth GFPD Family - [Conference childcare provided by longtime volunteers and friends of the GFPD](https://thegfpd.org/2017/05/09/2017-05-08-conference-childcare-provided-by-longtime-volunteers-and-friends-of-the-gfpd/) - We’re getting excited to welcome families to the 5th GFPD Family & Scientific Conference in just over two months! To help get families ready for the conference, I asked lead childcare volunteers Abby Simpson and Catherine Ozio to tell our families a little bit about what they can expect for their kids if they choose - [PBD-ZSD Focus Group to take place at the Family & Scientific Conference](https://thegfpd.org/2017/05/10/2017-05-09-pbd-zsd-focus-group-to-take-place-at-the-family-scientific-conference/) - The ZSD Focus Group Project A program coordinated by the Global Foundation for Peroxisomal Disorders and funded by Global Genes A focus group is a data collection method used in research to obtain pertinent attitudes, perceptions, and opinions on a specific topic. In a public health forum, focus groups are used to help stakeholders (including - [Connection to other PBD families brings Montesclaros family back to 2017 Family and Scientific GFPD Conference](https://thegfpd.org/2017/07/04/connection-to-other-pbd-families-brings-montesclaros-family-back-to-2017-family-and-scientific-gfpd-conference-d30/) - The GFPD Family & Scientific Conference is for everybody – families with living children with PBD, and those with children who have passed, plus their extended families, friends, and anyone who cares about a family affected by peroxisome biogenesis disorders. Programming at our conferences runs the gamut from panels with scientific researchers, clinicians, and educators; - [Running for Riley to benefit the GFPD](https://thegfpd.org/2017/07/05/2017-07-05-running-for-riley-to-benefit-the-gfpd/) - Sunday, June 11th, the residents of Concord, NH will come together at White Park to raise awareness and help celebrate the strength and courage of Riley Duquette in the first annual Running for Riley race. Riley was diagnosed with Zellweger Spectrum Disorder soon after his birth, an extremely rare genetic condition that affects all the - [Connection to other PBD families brings Montesclaros family back to 2017 Family and Scientific GFPD](https://thegfpd.org/2017/08/30/connection-to-other-pbd-families-brings-montesclaros-family-back-to-2017-family-and-scientific-gfpd/) - The GFPD Family & Scientific Conference is for everybody – families with living children with PBD, and those with children who have passed, plus their extended families, friends, and anyone who cares about a family affected by peroxisome biogenesis disorders. Programming at our conferences runs the gamut from panels with scientific researchers, clinicians, and educators; - [Running for Riley to benefit the GFPD](https://thegfpd.org/2017/08/30/running-for-riley-to-benefit-the-gfpd/) - Sunday, June 11th, the residents of Concord, NH will come together at White Park to raise awareness and help celebrate the strength and courage of Riley Duquette in the first annual Running for Riley race. Riley was diagnosed with Zellweger Spectrum Disorder soon after his birth, an extremely rare genetic condition that affects all the - [Letter: Pause for PBD, think of Ethan](https://thegfpd.org/2017/09/18/letter-pause-for-pbd-think-of-ethan/) - Oct. 5 is a special day for our family as we celebrate Pause for PBD, the annual awareness day for The Global Foundation for Peroxisomal Disorders (GFPD). Our son, Ethan, is seven years old and is one of 175 children known to the GFPD living worldwide with Peroxisome Biogenesis Disorder (PBD). - [Business Perspective with Melissa Bryce Gamble: Use this checklist to start your nonprofit](https://thegfpd.org/2017/09/19/business-perspective-with-melissa-bryce-gamble-use-this-checklist-to-start-your-nonprofit/) - Melissa Bryce Gamble is president and co-founder of the Global Foundation for Peroxisomal Disorders, which serves over 400 families across the globe. - [Pause for PBD](https://thegfpd.org/2017/10/02/pause-for-pbd/) - Melissa Bryce Gamble shares the story of her daughter Ginny's battle with a peroxisome biogenesis disorder (PBD) and how Tulsans can help support PBD research on October 5. - [GFPD Dinner Dance to Bring Modesto, California Community Together on 10/7/2017](https://thegfpd.org/2017/10/02/gfpd-dinner-dance-to-bring-modesto-california-community-together-on-1072017-d23/) - The GFPD Dinner Dance is a biennial fundraiser that Jose and Carolina Alfaro began in memory of their children, Diego and Adrian, as a way to fundraise for the GFPD. This fundraiser, now in it's 4th year, brings people of all ages together to dance and enjoy the lively Mike Torres Band. There are also opportunities - [Jersey County Journal - Letter to Editor for Pause for PBD](https://thegfpd.org/2017/10/05/jersey-county-journal-letter-to-editor-for-pause-for-pbd/) - The Jersey County Journal featured a letter to the editor, from Vicky Maag, about our annual fundraising effort, Pause for PBD. - [A Mother’s Story: Krista Cowan Discusses her PBD Journey with 11-year old Jadin](https://thegfpd.org/2017/10/17/2017-07-05-a-mother-s-story-krista-cowan-discusses-her-pbd-journey-with-11-year-old-jadin/) - Tell me about Jadin’s birth. Were there any complications? Jadin Charles Cowan was born on January 28, 2006, a week later than expected.I went to the hospital due to abdominal pain (it occurred whenever Jadin moved in thewomb). The doctors told me I had lost most of my amniotic fluid and my baby was in - [A walk for a child with a rare disease in Saint-Quentin](https://thegfpd.org/2017/10/24/a-walk-for-a-child-with-a-rare-disease-in-saint-quentin/) - Thomas Thériault, of Saint-Quentin, will celebrate his second birthday on November 24. His community recently gathered to support him by hosting a fundraising walk. - [This unicorn wheelchair costume is truly magical](https://thegfpd.org/2017/10/30/this-unicorn-wheelchair-costume-is-truly-magical/) - She's five-years-old, loves all things pink and glitter, and will be sporting a pretty magical costume this Halloween. But what makes Maddie Holt's costume extra special is that it was designed specifically for her wheelchair. - [The family of Thomas Thériault honors their son on Pause for PBD](https://thegfpd.org/2017/11/07/2017-11-07-the-family-of-thomas-theriault-honors-their-son-on-pause-for-pbd/) - This year, we wanted to do something to honor our son, Thomas, and all the children facing PBD-ZSD. We had great support from our community! I made a short video that explains the symptoms of our son's illness and I went to school and showed it to the entire school. Then, the students had to - [NJ mom to run Philly marathon to bring attention to rare disease](https://thegfpd.org/2017/11/16/nj-mom-to-run-philly-marathon-to-bring-attention-to-rare-disease/) - De Jesus says that it was a specialist in Canada who diagnosed Jaxson with Peroxisomal disorders. The conditions are so rare that if 4 million children are born this year, less than 100 will have the disorder. - [The GFPD Fall Newsletter](https://thegfpd.org/2017/11/21/the-gfpd-fall-newsletter-d7/) - Happy Thanksgiving week everyone! We have mailed out our fall newsletter but it is also available online! View below or click here. - [Surviving the firsts, (and seconds, thirds, fourths and.....) after the loss of a child with Zellweg](https://thegfpd.org/2017/11/28/2017-11-28-surviving-the-firsts-and-seconds-thirds-fourths-and-after-the-loss-of-a-child-with-zellwe/) - It was Christmas time. I was opening a box of decorations and as I looked in the box there it was, wrapped in paper among all the others. I pulled the paper away and paused when I saw the words “Baby’s 1st Christmas”. My heart sank and the tears fell as my mind reflected on - [Family makes every moment count with terminal son](https://thegfpd.org/2017/12/10/family-makes-every-moment-count-with-terminal-son/) - Jaxon’s health has had a backslide lately. The hospice nurses hope he will make it to Christmas — the day after, he’ll be 8-months old, Mack said. - [How You Can Help](https://thegfpd.org/2017/12/13/2017-12-13-how-you-can-help/) - When our son passed away our lives changed forever. Throughout the first year we found it hard to process the different emotions that would come up. Some days we were okay and others we just wanted to stay in the house and avoid everybody. The hardest part was we never knew when our feelings would - [Texas Parents Calm Baby with Kisses Before Learning He's Blind: 'We Didn't Know What Was Wrong'](https://thegfpd.org/2017/12/22/texas-parents-calm-baby-with-kisses-before-learning-hes-blind-we-didnt-know-what-was-wrong/) - Gideon Jolicoeur, 4, was born with a rare condition that impacts his hearing and eyesight — so his parents cuddle him with kisses - [Champion of the 2017 AmorChem KNOCK OUT event: Team Braverman!](https://thegfpd.org/2018/02/06/champion-of-the-2017-amorchem-knock-out-event-team-braverman/) - Dr. Braverman’s work focuses on genes responsible for the proper function of peroxisomes, which are important components of cells that help to metabolize lipids, or fatty acids. - [Newsmaker: Tulsa-based Peroxisomal foundation names director, board](https://thegfpd.org/2018/02/16/newsmaker-tulsa-based-peroxisomal-foundation-names-director-board/) - The Tulsa-based Global Foundation for Peroxisomal Disorders has named Melissa Bryce Gamble as its first executive director and appointed four new members to its board of directors. - [Peoria family promotes Rare Diseases Day for 7-year-old son](https://thegfpd.org/2018/02/27/peoria-family-promotes-rare-diseases-day-for-7-year-old-son/) - It was a horrible diagnosis, but looking back, Pamela Marshall is thankful her son Ethan got it so early in life. - [Rare Disease Day](https://thegfpd.org/2018/02/27/rare-disease-day-d51/) - The GFPD is excited to once again be a Rare Disease Day partner. Rare Disease Day began in 2008 with the mission to raise awareness throughout the world about rare diseases and their impact on patients’ lives. Rare diseases are often not well understood and research is almost always - [Health on Earth Episode featuring Christine Yergeau of McGill University](https://thegfpd.org/2018/03/13/health-on-earth-episode-featuring-christine-yergeau-of-mcgill-university/) - McGill graduate, Christine Yergeau sat down with CKUT's Health on Earth Podcast to discuss peroxisomal disorders. She discusses what peroxisomal biogenesis disorders are and what her current research work entails. - [Pound the Pavement for Peter](https://thegfpd.org/2018/03/22/2018-03-22-pound-the-pavement-for-peter/) - Pound the Pavement for Peter returns this year on March 24th for the eighth annual family fun run and 5K/10K. Hundreds of families each year participate in the charity run. The event raises awareness for families and children who are living with debilitating diseases and disabilities. Pound the Pavement for Peter was created in 2009 - [How to Work with Doctors and Hospice Care](https://thegfpd.org/2018/04/10/2018-04-10-how-to-work-with-doctors-and-hospice-care/) - Claire Helms is a wife, mother and family practice nurse who lives in Louisiana. Her daughter Presley died of Zellweger syndrome in May 2016, a day shy of 11-months old. Like any parent who experiences the death of a child, the memories are etched into her brain — her daughter’s initial diagnosis at 5 months; - [National Volunteer Week: Longtime Volunteer Helps Connect Families with the Global Foundation for Peroxisomal Disorders](https://thegfpd.org/2018/04/18/national-volunteer-week-longtime-volunteer-helps-connect-families-with-the-global-foundation-for-peroxisomal-disorders-d26/) - Pamela Marshall has been the Support Group Coordinator for the Global Foundation for Peroxisomal Disorders (GFPD) since 2010. Pamela first became involved with the GFPD through a parent email group after her son, Ethan, was diagnosed with peroxisomal biogenesis disorder-Zellweger spectrum disorder (PBD-ZSD) in August 2010. PBD-ZSD is sometimes referred to as Zellweger syndrome, neonatal - [National Volunteer Week: Fast Five Questions with Bishop Kelley High School Junior Brian Limekiller](https://thegfpd.org/2018/04/20/2018-04-20-national-volunteer-week-fast-five-questions-with-bishop-kelley-high-school-junior-brian-l/) - Tell me about the volunteer work you’ve done for the GFPD. My school hosted a Pause for PBD event which I was able to organize where a bunch of students stuffed a ton of letters full of information for families affected by a PBD. What is your favorite volunteer memory?My favorite volunteer memory was jamming - [Kick It For Max](https://thegfpd.org/2018/04/24/kick-it-for-max/) - Kick It For Max A local high school soccer team is helping their coach’s family. - [Running for Riley Fun Run/Walk is another great race for a great cause](https://thegfpd.org/2018/05/22/running-for-riley-fun-run-walk-is-another-great-race-for-a-great-cause/) - Riley grew up playing at White Park, ringing the chimes and riding the swings, so it seemed like a natural fit for an event like this. - [Bloomington's Harmony Park will be a place for every kid to play](https://thegfpd.org/2018/07/02/bloomingtons-harmony-park-will-be-a-place-for-every-kid-to-play/) - Four nonprofits partner to develop inclusive playground - [Tulsa, Oklahoma Charitable Event - Hues for Hope](https://thegfpd.org/2018/07/23/2018-07-23-tulsa-oklahoma-charitable-event-hues-for-hope/) - Tulsa Fundraiser Hues for Hope is the inaugural, signature benefit for The Global Foundation for Peroxisomal Disorders (GFPD). Hues for Hope will raise money and spread awareness for a rare, terminal childhood disorder. Friday, October 5th, is also the GFPD's annual awareness day, #PauseforPBD. The Pearl District Building The Pearl District Building is the perfect - [What is Zellweger Syndrome? Why don’t we call it Zellweger syndrome anymore?](https://thegfpd.org/2018/07/23/2018-07-23-what-is-zellweger-syndrome-and-why-don-t-we-call-it-zellweger-syndrome-anymore/) - What is Zellweger syndrome? Zellweger syndrome is the most severe form of peroxisome biogenesis disorder-Zellweger spectrum disorder (PBD-ZSD). Peroxisomal disorders are rare, genetic, terminal conditions that affect all major organ systems of the body. A peroxisomal disorder on the Zellweger spectrum (formerly referred to as Zellweger syndrome) means that the peroxisomes in your cells aren’t - [​Good Day Tulsa interview with Jen Kerckhoff and Emily Webb about Hues for Hope.](https://thegfpd.org/2018/10/01/​good-day-tulsa-interview-with-jen-kerckhoff-and-emily-webb-about-hues-for-hope/) - [Letter to the Editor: Do an act of kindness to mark Pause for PBD](https://thegfpd.org/2018/10/04/letter-to-the-editor-do-an-act-of-kindness-to-mark-pause-for-pbd/) - Peroxisomal Biogenesis Disorder (also known as Zellweger Spectrum Disorder), is a rare, genetic, condition affecting multiple organ systems in the body. PBD is generally fatal in childhood. As a parent, it is difficult to express the sense of loneliness and feelings of isolation that enter your life when your child has a rare, genetic disease that most people have never heard of and has no cure. - [#PauseForPBD: A SLU Doctoral Student Shares His Son's Journey](https://thegfpd.org/2018/10/05/pauseforpbd-a-slu-doctoral-student-shares-his-sons-journey/) - PBD-ZSD affects approximately one in 50,000 live births and while the exact number of individuals affected by this disorder is unknown, a few hundred families are currently connected through the Global Foundation for Peroxisomal Disorders (GFPD). - [National Disability Employment Awareness Month 2018](https://thegfpd.org/2018/10/25/national-disability-awareness-month-2018-one-gfpd-family-e2-80-99s-experience-with-customized-employment/) - One GFPD Family’s Experience with Customized Employment This October, the Global Foundation for Peroxisomal Disorders(GFPD) joins organizations and employers around the country to celebrate the contributions of workers with disabilities. October is National Disability Employment Awareness Month(NDEAM), an awareness month led by the Office of Disability Employment Policy(ODEP) The ODEP is an agency that - [Archer's feeding tube experience](https://thegfpd.org/2019/02/05/2019-02-05-archers-feeding-tube-experience/) - When Archer was born, he had difficulty nursing and gaining weight and was diagnosed with failure to thrive. We began to supplement with formula, but his weight gain remained slow and minimal. We didn’t know he had pbd at that time. As he’s grown he has expanded his palate, but eating remained a regular challenge - [GFPD Advocates attend Rare Disease Week in Washington, D.C.](https://thegfpd.org/2019/02/22/2019-02-22-gfpd-advocates-attend-rare-disease-week-in-washington-dc/) - ​ ​The mission of the GFPD is to improve the quality of life for families facing peroxisomal disorders and make strides toward meaningful research that can help improve the quality of life for these families. One of the ways we are accomplishing that mission in 2019 is by taking a team to Washington, D.C. for - [Melissa's Rare Disease Conference Wrap Up](https://thegfpd.org/2019/03/12/2019-03-12-melissas-rare-disease-conference-wrap-up/) - During Ginny’s lifetime, I always thought of my role as simply being "Ginny's mom." Even though I spent my days fighting for equipment, or for her to see a particular doctor or therapist, I certainly never thought of as an advocate. Usually without realizing it, many parents DO advocate for their children whether they are - [MISSION HIGHLIGHT | Equipment Exchange](https://thegfpd.org/2019/03/26/2019-03-26-mission-highlight-equipment-exchange/) - The GFPD matches families who have medical or therapeutic equipment they are no longer using with other families in need. Jessica Gill, mother of Gretchen, shares her experience about the support she received, passed on, after her daughter was diagnosed with a peroxisomal disorder.Find out more about the Equipment Exchange program here: https://www.thegfpd.org/equipment-exchange "My Gretchen - [The Siblings' Perspective - Life with GFPD Patient Ambassador Archer](https://thegfpd.org/2019/04/10/2019-04-10-the-siblings-perspective-life-with-gfpd-patient-ambassador-archer/) - A few thoughts from Ashley, Archer's Mom: I have to say I think Archer is really special (well for many reasons) because I feel he unites his siblings. They are all very compassionate and sweet with him. They are also very understanding of the demands of taking care of him; I think because they were - [Patient Ambassador Archer - DEXA Bone Scan 2019](https://thegfpd.org/2019/08/14/patient-ambassador-archer-dexa-bone-scan-2019/) - Ashley, mom of 2019 Patient Ambassador Archer, shares their family's experience of taking Archer for DEXA bone density scans to monitor his bone mineral density. "The list of ways how peroxisomal disorders can affect children’s health is a long one. Along with feeding/nutrition, liver, hearing, vision, neurological function, teeth, adrenal insufficiency, and kidney issues, children with - [PAUSE for PBD 2019! #PauseforPBD](https://thegfpd.org/2019/09/05/2019-09-05-pause-for-pbd-2019-pauseforpbd/) - Pause for PBD is officially one month away! Here's 9 Ideas to celebrate the GFPD’s 9th birthday on Saturday, October 5, 2019 Organize a Pause for PBD celebration at your child’s school or at your work, church, or community group. Take a picture of your group and post to social media using #PauseforPBD. We can - [Family is at the heart of the GFPD](https://thegfpd.org/2019/11/24/2019-11-24-family-is-at-the-heart-of-the-gfpd/) - "You may often hear or see the phrase “GFPD is family,” and I fully and wholeheartedly support that statement.Our family is united through a rare, devastating disease known as PBD, and it includes more than 540 families throughout 39 countries. We are a varied group comprised of parents, extended family members, friends, doctors, scientists, and - [A bereaved mom's thoughts on grief during the Holidays.](https://thegfpd.org/2019/12/15/2019-12-15-a-bereaved-moms-thoughts-on-grief-during-the-holidays/) - "Christmas is usually one of my favorite holidays. I am one of ‘those’ parents who would ask if it’s too soon to put up the Christmas tree the day after Halloween. I typically have Christmas music blaring all through the months of November and December and my daughter and I can basically recite every line - [2019 Patient Ambassador - A year with Archer](https://thegfpd.org/2019/12/27/2019-patient-ambassador-a-year-with-archer/) - It is hard to believe 2019 is coming to a close soon. As a new year is around the corner, I reflect on the changes this past year has held for Archer. Perhaps most significantly was his g-tube placement in early January. This was a decision I wrestled with for years, and I can confidently - [Reflections on 2019 | Looking ahead to 2020](https://thegfpd.org/2019/12/30/2019-12-30-reflections-on-2019-looking-ahead-to-2020/) - As 2019 draws to a close, I’m filled with gratitude for our past and present and filled with a sense of hope for our future. Our families are supporting one another in ways that nine years ago, I would have never imagined. Our support groups are robust with empathy, innovative ideas, laughter and sorrow. Our - [Meet 2020 Patient Ambassador, Anna Violet](https://thegfpd.org/2020/01/18/2020-01-18-meet-2020-patient-ambassador-anna-violet/) - After following a year in the life of Archer in 2019, this year, we will be getting to know 2020 GFPD Patient Ambassador, Anna Violet! There's so much she and her parents want to share, but first we're going to start with the basics. Check back to the GFPD blog for more updates about Anna - [A diagnostic odyssey | How does a patient receive a diagnosis of a peroxisomal disorder?](https://thegfpd.org/2020/02/05/a-diagnostic-odyssey-how-does-a-patient-receive-a-diagnosis-of-a-peroxisomal-disorder-d26/) - A patient with either type of peroxisomal disorder (peroxisomal biogenesis disorder or single enzyme protein deficiency disorders) can be diagnosed through several biochemical tests or by sequencing the patient’s DNA to identify which mutations a patient has. While peroxisomal disorders affect each patient differently, common health issues include: hearing and vision loss, hypotonia, neurological issues, seizures, - [Types of peroxisomal disorders: peroxisomal biogenesis disorders and single enzyme protein deficienc](https://thegfpd.org/2020/02/12/2020-02-12-types-of-peroxisomal-disorders-peroxisomal-biogenesis-disorders-and-single-enzyme-protein/) - Most peroxisomal disorders are rare, genetic (autosomal recessive) conditions that are often terminal and affect several organ systems of the body. Both types of peroxisomal disorders can cause similar symptoms and affect how the peroxisomes function. - [Anna Violet's journey to a peroxisomal disorder diagnosis | GFPD 2020 Patient Ambassador](https://thegfpd.org/2020/02/16/2020-02-16-anna-violets-journey-to-a-peroxisomal-disorder-diagnosis-gfpd-2020-patient-ambassador/) - Our family’s journey to receiving Anna Violet’s diagnosis took approximately three months, but time moves a lot slower in the NICU than it does in the real world. After a traumatic emergency c-section, it took forever for us to finally be able to hold her for the first time. She was born at 37 weeks - [Spring update from GFPD Patient Ambassador, Anna Violet](https://thegfpd.org/2020/03/19/2020-03-19-spring-update-from-gfpd-patient-ambassador-anna-violet/) - Anna Violet says "Happy Spring Time" to all of her PBD family! Anna Violet has a lot of things going on and is making some serious strides! Every week she gets visits from some of her favorite therapists. She has physical therapy on Mondays, occupational therapy on Fridays and now that Anna has passed her - [Natalie and Gwendolyn's Rare Disease Week wrap up](https://thegfpd.org/2020/03/23/natalie-and-gwendolyns-rare-disease-week-wrap-up-d32/) - February 2020 was Gwendolyn and my first Rare Disease Week. Gwendolyn is my 21 month old daughter who has PBD/ZSD and she was my travel buddy for Rare Disease Week 2020.Rare Disease Week 2020 was an amazing experience. It gave me the opportunity to bond with other GFPD families—it’s difficult not to bond when you - [GFPD "Sensing Connections" Grief Support Group | Remembrance & Support](https://thegfpd.org/2020/04/26/2020-04-26-gfpd-sensing-connections-grief-support-group-remembrance-support/) - Alone. In the darkness, often feeling so incredibly hopeless. This was my reality of my grief for many, many months after Lily left this earth. Most don’t get the utter despair that comes with watching your child take their last breath. It’s hard to explain to others what it’s like feeling so empty. Feeling like - [Honoring Our Bereaved Mothers](https://thegfpd.org/2020/05/03/2020-05-03-honoring-our-bereaved-mothers/) - Alone and in the darkness, often feeling so incredibly hopeless: this was the reality of my grief for many, many months after my daughter, Lily, left this earth. Most don’t get the utter despair that comes with watching your child take their last breath. It’s hard to explain to others what it’s like feeling so - [Mother's Day](https://thegfpd.org/2020/05/10/2020-05-09-mothers-day/) - I have often been asked what it is like being the mom to a child with a peroxisomal disorder. The first time I was ever asked this question, I simply responded with, “It’s no different from being a mom to a typical child.” But in reality, it is very different- it is wonderful, scary, adventurous, - [History of peroxisome biogenesis disorder-Zellweger spectrum disorder (PBD-ZSD) Terminology](https://thegfpd.org/2020/05/21/history-of-peroxisome-biogenesis-disorder-zellweger-spectrum-disorder-pbd-zsd-terminology-d90/) - The GFPD was founded in 2010 to fill an unmet need to provide support to families facing one of several types of peroxisomal disorders. Today, we provide targeted support to patients affected by peroxisomal biogenesis disorder-Zellweger spectrum disorder and the related single enzyme deficiencies. Generally speaking, peroxisomal disorders can be broken into two categories: peroxisomal biogenesis - [Building our Little Room – Follow up from “Discovering Our Connections- GFPD Virtual Meetup”](https://thegfpd.org/2020/06/05/2020-06-05-building-our-little-room-e2-80-93-follow-up-from-e2-80-9cdiscovering-our-connections-g/) - Recently I attended the Discovering Our Connections Virtual Family Meetup hosted by the GFPD. I initially attended in support of the GFPD and a desire to learn anything and everything I can to assist my son, Judson. Judson recently celebrated his 6-month birthday and wasdiagnosed with a peroxisomal disorder in the Zellweger spectrum at 22 - [Happy First Day of Summer!!](https://thegfpd.org/2020/06/20/2020-06-16-happy-first-day-of-summer/) - Happy first day of summer! Due to Covid-19, we haven’t been able to do a lot of things that we had planned since Anna Violet’s health is top priority. Just as things were looking up in our area, the number of new cases has increased causing reopening in our town to be put on hold. - [#PAUSEforTheGFPD](https://thegfpd.org/2020/09/28/2020-09-28-pauseforthegfpd/) - Pause for The GFPD is officially 1 week away! Below are 8 great ways you can participate leading up to and on Monday, October 5, 2020 Submit a Pause for GFPD Op Ed utilizing the GFPD template. What is an Op-Ed? Click here to learn more! Post a video or a picture online with our - [Support local baby Oct. 5 on Pause for the GFPD Awareness Day](https://thegfpd.org/2020/09/30/support-local-baby-oct-5-on-pause-for-the-gfpd-awareness-day/) - Archer is one of fewer than 1,000 children living worldwide with PBD-ZSD. That is why Archer’s family is grateful for GFPD and the dedication they have to learning more about this rare disorder. - [Gainesville parents raise awareness of rare disorder, PBD, which claimed daughter's life](https://thegfpd.org/2020/10/02/gainesville-parents-raise-awareness-of-rare-disorder-pbd-which-claimed-daughters-life/) - To remember their daughter and help other families who are in a similar situation, Christopher and Katina went to the governor hoping to have Oct. 5 selected as Peroxisomal Awareness Day. After more than a year, the Rees' wish was granted. - [#PauseForPBD: A SLU Doctoral Student Shares His Son's Journey](https://thegfpd.org/2021/02/02/pauseforpbd-a-slu-doctoral-student-shares-his-sons-journey-2/) - PBD-ZSD affects approximately one in 50,000 live births and while the exact number of individuals affected by this disorder is unknown, a few hundred families are currently connected through the Global Foundation for Peroxisomal Disorders (GFPD). - [Support local baby Oct. 5 on Pause for the GFPD Awareness Day](https://thegfpd.org/2021/02/02/support-local-baby-oct-5-on-pause-for-the-gfpd-awareness-day-2/) - Archer is one of fewer than 1,000 children living worldwide with PBD-ZSD. That is why Archer’s family is grateful for GFPD and the dedication they have to learning more about this rare disorder. - [Gainesville parents raise awareness of rare disorder, PBD, which claimed daughter's life](https://thegfpd.org/2021/02/02/gainesville-parents-raise-awareness-of-rare-disorder-pbd-which-claimed-daughters-life-2/) - To remember their daughter and help other families who are in a similar situation, Christopher and Katina went to the governor hoping to have Oct. 5 selected as Peroxisomal Awareness Day. After more than a year, the Rees' wish was granted. - [Letter to the Editor: Do an act of kindness to mark Pause for PBD](https://thegfpd.org/2021/02/03/letter-to-the-editor-do-an-act-of-kindness-to-mark-pause-for-pbd-2/) - Peroxisomal Biogenesis Disorder (also known as Zellweger Spectrum Disorder), is a rare, genetic, condition affecting multiple organ systems in the body. PBD is generally fatal in childhood. As a parent, it is difficult to express the sense of loneliness and feelings of isolation that enter your life when your child has a rare, genetic disease that most people have never heard of and has no cure. - [​Good Day Tulsa interview with Jen Kerckhoff and Emily Webb about Hues for Hope.](https://thegfpd.org/2021/02/03/​good-day-tulsa-interview-with-jen-kerckhoff-and-emily-webb-about-hues-for-hope-2/) - [Bloomington's Harmony Park will be a place for every kid to play](https://thegfpd.org/2021/02/03/bloomingtons-harmony-park-will-be-a-place-for-every-kid-to-play-2/) - Four nonprofits partner to develop inclusive playground - [Running for Riley Fun Run/Walk is another great race for a great cause](https://thegfpd.org/2021/02/03/running-for-riley-fun-run-walk-is-another-great-race-for-a-great-cause-2/) - Riley grew up playing at White Park, ringing the chimes and riding the swings, so it seemed like a natural fit for an event like this. - [Kick It For Max](https://thegfpd.org/2021/02/03/kick-it-for-max-2/) - Kick It For Max A local high school soccer team is helping their coach’s family. - [Health on Earth Episode featuring Christine Yergeau of McGill University](https://thegfpd.org/2021/02/03/health-on-earth-episode-featuring-christine-yergeau-of-mcgill-university-2/) - McGill graduate, Christine Yergeau sat down with CKUT's Health on Earth Podcast to discuss peroxisomal disorders. She discusses what peroxisomal biogenesis disorders are and what her current research work entails. - [Peoria family promotes Rare Diseases Day for 7-year-old son](https://thegfpd.org/2021/02/03/peoria-family-promotes-rare-diseases-day-for-7-year-old-son-2/) - It was a horrible diagnosis, but looking back, Pamela Marshall is thankful her son Ethan got it so early in life. - [Newsmaker: Tulsa-based Peroxisomal foundation names director, board](https://thegfpd.org/2021/02/03/newsmaker-tulsa-based-peroxisomal-foundation-names-director-board-2/) - The Tulsa-based Global Foundation for Peroxisomal Disorders has named Melissa Bryce Gamble as its first executive director and appointed four new members to its board of directors. - [Champion of the 2017 AmorChem KNOCK OUT event: Team Braverman!](https://thegfpd.org/2021/02/03/champion-of-the-2017-amorchem-knock-out-event-team-braverman-2/) - Dr. Braverman’s work focuses on genes responsible for the proper function of peroxisomes, which are important components of cells that help to metabolize lipids, or fatty acids. - [Texas Parents Calm Baby with Kisses Before Learning He's Blind: 'We Didn't Know What Was Wrong'](https://thegfpd.org/2021/02/03/texas-parents-calm-baby-with-kisses-before-learning-hes-blind-we-didnt-know-what-was-wrong-2/) - Gideon Jolicoeur, 4, was born with a rare condition that impacts his hearing and eyesight — so his parents cuddle him with kisses - [Family makes every moment count with terminal son](https://thegfpd.org/2021/02/03/family-makes-every-moment-count-with-terminal-son-2/) - Jaxon’s health has had a backslide lately. The hospice nurses hope he will make it to Christmas — the day after, he’ll be 8-months old, Mack said. - [NJ mom to run Philly marathon to bring attention to rare disease](https://thegfpd.org/2021/02/03/nj-mom-to-run-philly-marathon-to-bring-attention-to-rare-disease-2/) - De Jesus says that it was a specialist in Canada who diagnosed Jaxson with Peroxisomal disorders. The conditions are so rare that if 4 million children are born this year, less than 100 will have the disorder. - [This unicorn wheelchair costume is truly magical](https://thegfpd.org/2021/02/03/this-unicorn-wheelchair-costume-is-truly-magical-2/) - She's five-years-old, loves all things pink and glitter, and will be sporting a pretty magical costume this Halloween. But what makes Maddie Holt's costume extra special is that it was designed specifically for her wheelchair. - [A walk for a child with a rare disease in Saint-Quentin](https://thegfpd.org/2021/02/03/a-walk-for-a-child-with-a-rare-disease-in-saint-quentin-2/) - Thomas Thériault, of Saint-Quentin, will celebrate his second birthday on November 24. His community recently gathered to support him by hosting a fundraising walk. - [Jersey County Journal - Letter to Editor for Pause for PBD](https://thegfpd.org/2021/02/03/jersey-county-journal-letter-to-editor-for-pause-for-pbd-2/) - The Jersey County Journal featured a letter to the editor, from Vicky Maag, about our annual fundraising effort, Pause for PBD. - [Pause for PBD](https://thegfpd.org/2021/02/03/pause-for-pbd-2/) - Melissa Bryce Gamble shares the story of her daughter Ginny's battle with a peroxisome biogenesis disorder (PBD) and how Tulsans can help support PBD research on October 5. - [Business Perspective with Melissa Bryce Gamble: Use this checklist to start your nonprofit](https://thegfpd.org/2021/02/03/business-perspective-with-melissa-bryce-gamble-use-this-checklist-to-start-your-nonprofit-2/) - Melissa Bryce Gamble is president and co-founder of the Global Foundation for Peroxisomal Disorders, which serves over 400 families across the globe. - [Letter: Pause for PBD, think of Ethan](https://thegfpd.org/2021/02/03/letter-pause-for-pbd-think-of-ethan-2/) - Oct. 5 is a special day for our family as we celebrate Pause for PBD, the annual awareness day for The Global Foundation for Peroxisomal Disorders (GFPD). Our son, Ethan, is seven years old and is one of 175 children known to the GFPD living worldwide with Peroxisome Biogenesis Disorder (PBD). - [UNMC researcher heads $3.3 million national study](https://thegfpd.org/2021/02/03/unmc-researcher-heads-3-3-million-national-study-2/) - Dr. Rizzo said several of the diseases are so rare that between 500 and 1,000 children nationwide may be affected. Some diseases are even more rare than that, he added. - [The GFPD joins with the TS Alliance to Advocate for Prioritization of Individuals with Rare Diseases and their Caregivers to have Immediate access to COVID-19 Vaccines.](https://thegfpd.org/2021/02/12/the-gfpd-joins-with-the-ts-alliance-to-advocate-for-prioritization-of-individuals-with-rare-diseases-and-their-caregivers-to-have-immediate-access-to-covid-19-vaccines/) - On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy groups, healthcare providers and biotech companies to submit a letter to the National Governors Association imploring them for immediate and improved access to COVID-19 vaccines. Additionally, following the lead of the TS Alliance, the GFPD created a template letter for parents and caregivers of individuals with peroxisomal disorders to personalize and submit to their respective local officials requesting immediate vaccine access. GFPD families can reach out to operations@thegfpd.org for a copy of this letter. - [The GFPD (along with hundreds of other U.S. nonprofits) advocates for additional 2021 COVID relief, led by the National Council of Nonprofits.](https://thegfpd.org/2021/03/02/the-gfpd-along-with-hundreds-of-other-u-s-nonprofits-advocates-for-additional-2021-covid-relief-led-by-the-national-council-of-nonprofits/) - At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be little doubt that America desperately needs leadership, unity, and aggressive actions to overcome these and many other challenges. The GFPD, along with hundreds of other U.S. nonprofits asks Congress and the Administration to recognize the unique role of charitable nonprofits in providing pandemic relief and economic recovery by enacting a package of relief solutions tailored to the actual needs and realities of these organizations that are devoted to serving the public good. - [The GFPD (along with hundreds of other U.S. nonprofits) advocates for additional 2021 COVID relief, led by the National Council of Nonprofits.](https://thegfpd.org/2021/03/22/the-gfpd-along-with-hundreds-of-other-u-s-nonprofits-advocates-for-additional-2021-covid-relief-led-by-the-national-council-of-nonprofits-2/) - At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be little doubt that America desperately needs leadership, unity, and aggressive actions to overcome these and many other challenges. The GFPD, along with hundreds of other U.S. nonprofits asks Congress and the Administration to recognize the unique role of charitable nonprofits in providing pandemic relief and economic recovery by enacting a package of relief solutions tailored to the actual needs and realities of these organizations that are devoted to serving the public good. - [The GFPD joins with the TS Alliance to Advocate for Prioritization of Individuals with Rare Diseases and their Caregivers to have Immediate access to COVID-19 Vaccines.](https://thegfpd.org/2021/03/25/the-gfpd-joins-with-the-ts-alliance-to-advocate-for-prioritization-of-individuals-with-rare-diseases-and-their-caregivers-to-have-immediate-access-to-covid-19-vaccines-2/) - On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy groups, healthcare providers and biotech companies to submit a letter to the National Governors Association imploring them for immediate and improved access to COVID-19 vaccines. Additionally, following the lead of the TS Alliance, the GFPD created a template letter for parents and caregivers of individuals with peroxisomal disorders to personalize and submit to their respective local officials requesting immediate vaccine access. GFPD families can reach out to operations@thegfpd.org for a copy of this letter. - [The GFPD advocates for Paid Leave for Family Caregivers Across the Lifespan](https://thegfpd.org/2021/04/26/the-gfpd-advocates-for-paid-leave-for-family-caregivers-across-the-lifespan/) - Over the past year, millions of family caregivers found themselves needing to isolate or take leave to care for family members, scrambling to fill gaps in care—often without paid leave—as many older adults and people with disabilities lost access to services. Many people are sandwiched between providing care to an older adult or relative with a health condition and typical childcare duties. Children with disabilities relied on family caregivers not only for lost services, but for school demands as well. With the limited exception tax credits to cover a narrow scope of COVID-related leave, federal response legislation to the coronavirus pandemic has largely excluded support for family caregivers. The GFPD signed to a letter spearheaded by the National Alliance on Caregiving, UsAgainstAlzheimers, and The Arc to urge the Biden Administration to prioritize these families when developing additional—and needed—economic recovery policies, including a permanent paid family and medical leave policy that is inclusive of all family caregivers across the lifespan. - [The GFPD Supports North Carolina HB 736](https://thegfpd.org/2021/05/11/the-gfpd-supports-north-carolina-hb-736/) - https://everylifefoundation.org/voter-voice/?vvsrc=%2fcampaigns%2f80975%2frespond - [The GFPD Supports North Carolina HB 736](https://thegfpd.org/2021/05/25/the-gfpd-supports-north-carolina-hb-736-2/) - The GFPD is proud to partner with The EveryLife Foundation for Rare Diseases and several other patient advocacy groups to support North Carolina HB 736, which would require the North Carolina Department of Health and Human Services (NCHHS) to implement new screening recommendations within three years of approval to the federal Recommended Uniform Screening Panel (RUSP), which will ensure that babies born in North Carolina have the same opportunity for diagnoses and treatments as babies born across state lines. The GFPD urges our community (especially our supporters in North Carolina) to click the link below to show support for HB 736. - [October is Liver Awareness Month](https://thegfpd.org/2021/10/06/october-is-liver-awareness-month/) - October is liver awareness month and we reached out to Dr. Nancy Braverman at McGill University to discuss the important research she is doing for individuals with peroxisomal disorders. Although the disease spectrum is broad, most individuals with peroxisomal disorders develop some degree of liver disease, which can cause significant morbidity and mortality. Complications include - [National Disability Employment Awareness Month](https://thegfpd.org/2021/10/16/national-disability-employment-awareness-month/) - This year, NDEAM’s theme is "America’s Recovery: Powered by Inclusion," focusing on employment/economic opportunity, as well as accommodations and support. Recognized every October, NDEAM is a fitting time to learn about disability employment issues and “The many and varied contributions of America's workers with disabilities.” This year, NDEAM’s theme is "America’s Recovery: Powered by Inclusion," - [Hospice and Palliative Care - Making Special Moments Possible](https://thegfpd.org/2021/11/16/hospice-and-palliative-care-making-special-moments-possible/) - “We recommend calling in hospice care." The words that every terminally ill patient and their family dread hearing. Hospice is a widely known term for the end-of- life care given to persons of all ages who are dying due to an illness. This care is given to allow the patient comfort and grace in their - [GFPD Inclusive Holiday Tips](https://thegfpd.org/2021/12/08/gfpd-inclusive-holiday-tips/) - Gatherings can be challenging for our GFPD warriors and their caregivers, especially when being held in environments that are not accessible or when others do not understand the disability. Our GFPD families have shared some of their best tips to make gatherings more inclusive of people with peroxisomal disorders, as well as people with other - [Tips for traveling with your GFPD Warrior this holiday season!](https://thegfpd.org/2021/12/16/tips-for-traveling-with-your-gfpd-warrior-this-holiday-season/) - Traveling for everyone during the holidays can often be a stressful and frustrating experience. Add in the extra necessities for GFPD Warriors and it can become overwhelming. Our GFPD families have shared some of their best travel tips to help your travel go a bit smoother! In addition to medicine, bring extra supplies (e.g., hearing - [GFPD Diversity Statement](https://thegfpd.org/2022/01/04/gfpd-diversity-statement/) - At the Global Foundation for Peroxisomal Disorders, we realized early on that equity is a significant factor in the health, care and research needs of our patient Warriors and their families. Rare diseases already create disparities within our healthcare system, and we seek to do everything in our power to eliminate the barriers to care ## Pages - [Welcome](https://thegfpd.org/) - [Project PEX1](https://thegfpd.org/project-pex1/) - For children and adults with PEX1-related peroxisome biogenesis disorder, Zellweger spectrum disorder (PBD-ZSD), progressive retinal degeneration can lead to irreversible blindness, often beginning in infancy or early childhood. - [Resources](https://thegfpd.org/care-resources/) - Bereavement Resources See our Bereavement Resources page GFPD CARE Card- A digital and printable resource created by bereaved parents to help families, friends, and communities turn caring intentions into meaningful support. Caregiver Resources Caregiver HELP Card- A valuable resource for caregivers and those who want to support them. It takes the guesswork out of how - [Northeast Regional Meetup 2026](https://thegfpd.org/northeast-regional-meetup-2026/) - Join the GFPD on August 21st - 23rd for our Northeast Regional Meetup in Newark, DE! This is a three-day, in-person gathering designed to connect families, caregivers, researchers, and medical experts impacted by peroxisomal disorders. These meetups reduce isolation, provide education, and create meaningful opportunities to build community — because no family should navigate a rare disease - [Regional Meetups](https://thegfpd.org/regional-meetups/) - What Are Regional Meetups? These in-person gatherings bring families together to learn, connect, and build hope within the peroxisomal disorder community. GFPD Regional Meetups are designed to reduce isolation and strengthen support for families affected by peroxisomal disorders. Regional meetups are more than social gatherings. They provide trusted information, meaningful relationships, and expert guidance — all in - [Atlanta Regional Meetup 2026](https://thegfpd.org/atlanta-regional-meetup-2026/) - Join the GFPD on March 27th-29th for our Atlanta Regional Meetup, a three-day, in-person gathering designed to connect families, caregivers, researchers, and medical experts impacted by peroxisomal disorders. These meetups reduce isolation, provide education, and create meaningful opportunities to build community — because no family should navigate a rare disease alone. REGISTER FOR THE ATLANTA MEETUP Location - [Ways to Give](https://thegfpd.org/ways-to-give/) - [Our Team](https://thegfpd.org/our-team/) - Ryan Maple, MBAExecutive DirectorRyan@thegfpd.org Jackie Brooks, CPAChief Financial OfficerAccounting@thegfpd.org Katie SacraDirector of Family & Community EngagementKatie@thegfpd.org Margaret Reimann, CDMP, PCM Director of MarketingMargaret@mcrbranding.com Abby Pelster, MS, CCC-SLP Lynda Meier Eddie DayFamily Programs Support SpecialistEddie@thegfpd.org Abby DenisFamily & Community Engagement AssistantAbby.denis@thegfpd.org Adrienne KingsleyEvent CoordinatorAdrienne@pearlbridgeproductions.com Paul MorrisStrategic Development Consultant Paul@thegfpd.org Krista Olsen, TVIFacilitator and Educational ConsultantKrista@thegfpd.org Kevin JohnsonPartnership - [Peroxisomal Disorders](https://thegfpd.org/peroxisomal-disorders/) - [Ohio Regional Meetup 2026](https://thegfpd.org/ohio-regional-meetup-2026/) - Join the GFPD September 25th - 27th for our Midwest–Ohio Regional Meetup, an in-person gathering designed to connect families, caregivers, researchers, and medical experts impacted by peroxisomal disorders. These meetups help reduce isolation, provide education, and create meaningful opportunities to build community—because no family should navigate a rare disease alone. In addition to the meetup, a family-led fundraising - [Fellowships](https://thegfpd.org/fellowships/) - GFPD Fellowships The Global Foundation for Peroxisomal Disorders has long championed research along with family programming and advocacy. Over the past 13 years, the GFPD has instituted a number of programs to build capacity in both science and practice, leading to comprehensive fellowship programs that impact our Warriors, families, scientific researchers and medical providers. Warrior - [Scholarly Articles](https://thegfpd.org/scholarly-articles/) - Scholarly Articles Nutrition Bone and Dental Issues Hearing (Audiology) Diagnosis Adrenal Insufficiency Case Studies in Patients Liver Function American Society of Human Genetics 2024 Annual Meeting Treatment Guidelines Animal Models Plant Models Cell Model Vision (Ophthalmic) Findings ​Posters Caregiving Nutrition Bose: "Comparison of Caregiver-Reported Dietary Intake Methods in Zellweger Spectrum Disorder" Bone and Dental Issues Acharya: - [Contact Us - Fundraise](https://thegfpd.org/contact-us-fundraise/) - [Illinois Regional Meetup 2026](https://thegfpd.org/illinois-regional-meetup-2026/) - Join the GFPD May 22nd through May 24th for our Midwest–Illinois Regional Meetup, an in-person gathering designed to connect families, caregivers, researchers, and medical experts impacted by peroxisomal disorders. These meetups help reduce isolation, provide education, and create meaningful opportunities to build community—because no family should navigate a rare disease alone. In addition to the meetup, a family-led fundraising - [Our Partners](https://thegfpd.org/our-partners/) - [Events](https://thegfpd.org/events/) - [Advocate](https://thegfpd.org/advocate/) - learn more about the GFPD’s advocacy efforts - [Bereavement Resources](https://thegfpd.org/bereavement-resources/) - GFPD Bereavement Support The GFPD is committed to supporting and empowering GFPD families at every stage, including the pursuit of a diagnosis, receiving a diagnosis, navigating and managing the diagnosis, and following the death of a loved one with this rare diagnosis. We aim to increase awareness of the profound grief experienced by parents, siblings, - [Medical and Scientific Advisors](https://thegfpd.org/scientific-advisory-board/) - Catherine Argyriou, PhDChildren's Hospital of Los AngelesKeck School of Medicine, USC Catherine Argyriou is an Assistant Professor of Ophthalmology at The Children's Hospital of Los Angeles and the Keck School of Medicine of the University of Southern California. She completed her undergraduate studies at the University of Manitoba, her MSc at the McGill University Biology - [Day of Giving](https://thegfpd.org/day-of-giving/) - Are you ready to #ShowYourStripes? Join us on February 27, 2026, for the GFPD Day of Giving, one day dedicated to transforming lives. Together, we can make a tremendous impact on GFPD Warriors and their families who are affected by peroxisomal disorders. Your support will help: – Raise Awareness about peroxisomal disorders – Fund crucial research for better treatments – Amplify the - [Voice of the Patient Report and 2024 EL-PFDD Meeting](https://thegfpd.org/externally-led-patient-focused-drug-development/) - Meeting Recordings What is an EL-PFDD? - [News](https://thegfpd.org/news/) - [Past Scientific Conferences](https://thegfpd.org/past-scientific-conferences/) - 2024 GFPD Family and Scientific Conference 2022 GFPD Family and Scientific Conference 2019 GFPD Family and Scientific Conference 2017 GFPD Family and Scientific Conference 2016 GFPD Scientific Symposium 2015 GFPD Family and Scientific Conference 2013 GFPD Family and Scientific Conference 2012 GFPD Family and Scientific Conference 2011 GFPD Family and Scientific Conference - [Clinical Trials](https://thegfpd.org/clinical-trials/) - Currently Enrolling May 2024 GFPD Patient Registry for Peroxisomal Disorders NORD IAMRARE Platform Principal Investigator:Abby Pelster Contact us ... . The GFPD Patient Registry for Peroxisomal Disorders is an online registry for people with peroxisomal disorders. A patient registry is a collection of standardized information about a group of patients who share a condition. The - [CHAMPIONS](https://thegfpd.org/champions/) - [Champions Giving Society](https://thegfpd.org/champions-giving-society/) - [Your Impact](https://thegfpd.org/your-impact/) - [About Us](https://thegfpd.org/about-us/) - Providing Worldwide Support to Patients and Families Impacted by Peroxisomal Disorders When the GFPD was incorporated and received its 501(c) (3) public charity designation in 2010, we were a small parent support group of approximately 50 families. Fifteen years later, the GFPD connects more than 800 families from over 40 countries, and we have Medical - [CHAMPIONS Chronicle](https://thegfpd.org/champions-chronicle/) - CHAMPIONS CHRONICLE - [Board of Directors](https://thegfpd.org/board-of-directors/) - [Welcome from the Executive Director](https://thegfpd.org/welcome-from-the-executive-director/) - Welcome to the Global Foundation for Peroxisomal Disorders (GFPD)! We are here to serve and be a resource for persons impacted by peroxisomal disorders (GFPD Warriors), their families, caregivers, bereaved families, the medical and scientific community, and those interested in learning more about this rare and terminal disease. My name is Ryan Maple and I - [Pause with the GFPD](https://thegfpd.org/pause/) - What is PAUSE with the GFPD? #PauseWithTheGFPD is our worldwide awareness day. Every year, on October 5th, the Global Foundation for Peroxisomal Disorders pauses to recognize and honor all of the families that have lost a child or are currently fighting a peroxisomal disorder. Show support by taking a moment to pause for individuals & - [ Meet Our Warriors](https://thegfpd.org/meet-our-gfpd-warriors/) - [Meet our GFPD Warriors](https://thegfpd.org/meet-our-gfpd-kids-2/) - EzraEzra Grace is full of energy. She teaches us every day about adapting to your circumstances. BenBen was 13 years old when he passed. JeremiahJeremiah is a very happy young man that enjoys music and being with friends and family. CameronCameron passed away at 21 years old. He was a boot scooter and washing machine hugging extraordinaire!​ GinnyGinny - [Shop](https://thegfpd.org/shop/) - [test](https://thegfpd.org/test/) - Lorem ipsum dolor sit amet, consectetuer adipiscing elit, sed diam nonummy nibh euismod tincidunt ut laoreet dolore magna aliquam erat volutpat. - [Achievement Timeline](https://thegfpd.org/copy-of-board-of-directors/) - [Research](https://thegfpd.org/research/) - We Provide Worldwide Support and Research to families with Peroxisomal Disorders. Our GFPD Medical and Scientific Advisors (MSA) are internationally renowned researchers and professionals dedicated to improving the lives of individuals with peroxisomal disorders. Explore the research area of our website to meet our MSA, learn about current research opportunities, access published scholarly articles, and - [A Letter to Newly Diagnosed Parents](https://thegfpd.org/a-letter-to-newly-diagnosed-parents/) - Dear GFPD Family, Thank you for reaching out to the Global Foundation for Peroxisomal Disorders (GFPD). We know how overwhelming it can be to receive a diagnosis of a peroxisomal disorder and we are glad you found us. Since 2010, the GFPD has been a beacon of hope and support for those impacted by peroxisomal - [Resources](https://thegfpd.org/resources/) - [Support the GFPD](https://thegfpd.org/support-the-gfpd/) - [Resources](https://thegfpd.org/resources-2/) - [Fundraise](https://thegfpd.org/fundraise/) - Download a Fundraiser Starter Kit Take ACTION and raise funds for the GFPD! Birthday or other celebration Donate your birthday to the GFPD and raise funds for peroxisomal disorder research! Get Started Honor or Memorial Donate in honor of a loved one or in memory of a special child lost to a peroxisomal disorder. Get - [Walk Run Ride](https://thegfpd.org/walkrunride/) - Start Your Fundraiser Now Join the Facebook Event What is the GFPD Warrior Walk Run Ride? The GFPD Warrior Walk Run Ride is a global fundraising event to support the GFPD and its mission to improve the lives of individuals with peroxisomal disorders! GFPD friends and family (in person or virtually) can create a team - [Current Research](https://thegfpd.org/current-research/) - Dr. Michael Wangler Houston, Texas Baylor College of Medicine A metabolomics resource for peroxisomal disorders and related conditions such as D-bifunctional protein deficiency and Rhizomelic chondrodysplasia punctata (RCDP) is being created. Learn more -> Di Wu Rockville, Maryland The National Center for Advancing Translational Sciences (NCATS) at the National Institutes of Health (NIH) has hired - [Warrior's Wish](https://thegfpd.org/warriors-wish/) - [Wishlist](https://thegfpd.org/wishlist/) - [Hope Hero](https://thegfpd.org/hopehero/) - [Donate](https://thegfpd.org/donate/) - Donate Here Give by mail: The Global Foundation for Peroxisomal Disorders P.O. Box 33238 Tulsa, OK 74153 Thank you for your interest in The Global Foundation for Peroxisomal Disorders (GFPD). By investing in GFPD, you are supporting children and families faced with a diagnosis of a Peroxisomal Biogenesis Disorder (Zellweger spectrum) and assisting family members - [Blog](https://thegfpd.org/blog/) - [2024 Family and Scientific Conference](https://thegfpd.org/2024-family-and-scientific-conference/) - The GFPD strives to make our conferences accessible to all patients, families and caregivers regardless of financial limitations. Our attendees travel from all over the globe to converge in one place to gather, share, learn, and move forward, together. Conference fees for GFPD Warriors (patients of any age) are $1000. We strongly encourage all GFPD - [](https://thegfpd.org/5436-2/) - Agenda1.18.24Download - [GFPD Support Groups](https://thegfpd.org/support-groups/) - GFPD Parent Support (Parents & Guardians only) The GFPD Parent Support Group is a space for parents of individuals with peroxisomal disorders in the Zellweger spectrum and the related single enzyme protein deficiencies to connect, share their experiences and provide/receive peer to peer support. Join our Parent Support Group Support for Dads GFPD Dads Group - [Patient Registry](https://thegfpd.org/patientregistry/) - The Global Foundation for Peroxisomal Disorders and NORD® Launch Global Registry Research study is open to participants worldwide to advance understanding and treatments for peroxisomal disorders, a group of rare diseases causing hearing and vision loss, hypotonia, neurological issues, seizures, developmental delay, feeding issues, adrenal insufficiency, leukodystrophy, and liver, kidney, and bone disease. The GFPD and - [Press Releases](https://thegfpd.org/press-releases/) - [Equipment Exchange](https://thegfpd.org/equipment-exchange/) - What is the GFPD Equipment Exchange Program? The GFPD Equipment Exchange Program has been a hallmark program of our Foundation since our incorporation in 2010. The program matches families and patients with equipment or supply needs to other families or patients who have medical equipment they are no longer using to fulfill that need. The - [Thank You](https://thegfpd.org/thank-you/) - [swpm_thank_you_page_registration] - [Password Reset](https://thegfpd.org/membership-login/password-reset/) - [swpm_reset_form] - [Profile](https://thegfpd.org/membership-login/membership-profile/) - [swpm_profile_form] - [Member Login](https://thegfpd.org/membership-login/) - [swpm_login_form] - [Registration](https://thegfpd.org/membership-join/membership-registration/) - [swpm_registration_form] - [Join Us](https://thegfpd.org/membership-join/) - This page and the content has been automatically generated for you to give you a basic idea of how a "Join Us" page should look like. You can customize this page however you like it by editing this page from your WordPress page editor.If you end up changing the URL of this page then make - [Rare Disease Day](https://thegfpd.org/events/rare-disease-day/) - The GFPD will have a team attending Rare Disease Week in Washington D.C. to advocate for our Warriors and their families. - [Family Directory](https://thegfpd.org/family-directory/) - We Provide Worldwide Support and Research to Families and Individuals with Peroxisomal Disorders. The Global Foundation for Peroxisomal Disorders maintains the most comprehensive list of patients with a peroxisomal disorder in the world. Our Family Directory (formerly known from 2010-2018 as the GFPD Family Registry) is a comprehensive and secure database. We have grown our - [Join Our Global Community Today! ](https://thegfpd.org/join-our-global-community-today/) - The GFPD Community Directory Professionals, extended family, and friends are invited to join The GFPD Community Directory. Joining our Community Directory allows The GFPD to stay in touch with you and share updates about the GFPD, support, research, advocacy, events, and more! The GFPD Family Directory Patients and parents of individuals with peroxisomal disorders are invited - [Impact Reports](https://thegfpd.org/impact-reports/) - [Join a Committee](https://thegfpd.org/join-a-committee/) - The GFPD has several different committees that you can join. Community Advisory Council The CAC is made up of GFPD families and other members of our global community including educators and deaf-blind professionals. The goal of the CAC is to help ensure the programming of the GFPD is family-centric. ​ Conference Planning Committee The GFPD - [Information for Newly Diagnosed Patients](https://thegfpd.org/newly-diagnosed/) - Frequently Asked Questions about Peroxisomal Disorders You have been told that you or your child has or may have a peroxisomal disorder. We understand this is a scary and difficult time for you and your family. We all have questions about the diagnosis and what it means for ourselves and loved ones. You may have some - [GFPD 2022 Family & Scientific Conference](https://thegfpd.org/gfpd-2022-family-scientific-conference/) - GFPD 2022 Family & Scientific Conference UNC Charlotte Marriott Hotel and Conference Center Charlotte, North Carolina As of 5/20/2022 registration is closed for the 2022 GFPD Family and Scientific Conference being held in Charlotte, N.C., from June 15-19. However, if you are a newly diagnosed family, please reach out to kylie@thegfpd.org for information about last - [Facts at a Glance](https://thegfpd.org/facts-at-a-glance/) ## UX Blocks - [Footer - About us](https://thegfpd.org/blocks/footer-about-us/) - [Blog Header](https://thegfpd.org/blocks/blog-header/) - [Features Overview](https://thegfpd.org/blocks/features-overview/) - [Footer - Newsletter Signup](https://thegfpd.org/blocks/footer-newsletter-signup/) - Lorem ipsum dolor sit amet, consectetuer adipiscing elit, sed diam nonummy nibh euismod tincidunt ut laoreet. (insert contact form here) - [Elements Overview](https://thegfpd.org/blocks/elements-overview/) ## Notes - [How to Categorize Posts](https://thegfpd.org/wpf_post_it/new-note/) - Categorizing Posts Use "blog" for any post that you want to show up in the Blog area, but use "news" for any post that you want to show up on the News Page. Use both categories and the post will show in both pages. ## Products - [Path To Hope Tee](https://thegfpd.org/product/path-to-hope-tee/) - [15 Years | Make A Difference | Hoodie](https://thegfpd.org/product/15-years-make-a-difference-hoodie/) - [15 Years | Family, Research, Hope | Hoodie](https://thegfpd.org/product/15-years-family-research-hope-hoodie/) - [15 Years | Make A Difference | Crewneck](https://thegfpd.org/product/15-years-make-a-difference-crewneck/) - [15 Years | Family, Research, Hope | Crewneck](https://thegfpd.org/product/15-years-family-research-hope-crewneck/) - [15 Years | Make A Difference | Long Sleeve](https://thegfpd.org/product/15-years-make-a-difference-long-sleeve/) - [15 Years | Family, Research, Hope | Long Sleeve](https://thegfpd.org/product/15-years-family-research-hope-long-sleeve/) - [15 Years | Make a Difference | Tee](https://thegfpd.org/product/15-years-make-a-difference/) - [15 Years | Family, Research, Hope | Tee](https://thegfpd.org/product/15-years-family-reserach-hope-tee/) ## Warriors - [Camila](https://thegfpd.org/warrior/camila/) - Camila was our beautiful warrior. She taught us the true meaning of strength, love, and resilience. Although her journey was filled with challenges, her smile and spirit touched everyone around her. Her memory lives in our hearts every single day. - [Jess Alberts](https://thegfpd.org/warrior/jess-alberts/) - Jess is a mom of three littles and has mild ZSD (formerly known as Heimler syndrome). She has been married for 9 years and spends her days chasing kids, fueled by coffee, sneaking in runs, and enjoying books and music. She is grateful to be a part of this community. - [Elijah Lucas](https://thegfpd.org/warrior/elijah-lucas/) - Elijah was born in December and just turned 4 months old. He is a joy to be around and full of wonder. Navigating his PBD-ZSD diagnosis has been difficult, but loving him unconditionally has not. Elijah gives full smiles to everyone he meets and loves interacting with his big sister the most. - [Ana DelSorbo](https://thegfpd.org/warrior/ana-delsorbo/) - Ana was born on April 1st and continued to fool doctors for 43 years as she lived her best life as a GFPD Warrior. She loved her family and friends from all over the world. Without ever saying a word, Ana touched countless lives and will continue to do so through her lasting legacy, and - [Naya Morris](https://thegfpd.org/warrior/naya-morris/) - Naya is 6 years old and was diagnosed with a peroxisomal disease caused by two PEX 7 variants. She is happy in her wee world, very loving, and takes everything in her stride! - [Franco](https://thegfpd.org/warrior/franco/) - Franco é um bebê que transmite uma calma e paz todas as vezes que estamos perto dele. Ele ama nadar e ouvir as músicas que sua família gravaram pra ele. Nasceu 08/01/2025 e ainda vai vier muito! - [George Payne](https://thegfpd.org/warrior/george-payne/) - George is a happy, cheeky little man who lives in Australia. George enjoys being outside in the sunshine, noisy toys, and lots of cuddles. He is such a loved little man, and we cherish every day we get to spend with him. - [Eden Alexandra](https://thegfpd.org/warrior/eden-alexandra/) - Eden Alexandra was born on January 10, 2025. Eden suffered from a severe form of ZSD and her prognosis was terminal. On February 11, she took her final breath outside, with the sun shining down on her.Eden loved her toy octopus, being read to, listening to music, and snuggles with Mom and Dad. She has a sister - [Lincoln Ray](https://thegfpd.org/warrior/lincoln-ray/) - Lincoln was pure love and joy. He was so sweet, feisty, and incredibly resilient. He had the most beautiful blue eyes and a smile that lit up the room. His laughter was infectious. Lincoln loved bright lights, vibration and loud music (especially banjo!). He had such a special bond with his parents, and loved their - [Keely](https://thegfpd.org/warrior/keely/) - Keely was a beautiful soul and a brave warrior. She loved being cuddled, enjoyed being outside, and she will always be a blessing to our family! Keely passed away just shy of her 2nd birthday, but continues to touch many lives around the world! - [Christopher DelSorbo](https://thegfpd.org/warrior/christopher-delsorbo/) - Christopher died at 5 months old. His love and memory lives on in his family. - [Ilan Betzer](https://thegfpd.org/warrior/ilan/) - Ilan (Lonny to those he loved) loved music, laying on his Daddy’s chest, and telling people exactly how he felt with just the raise of his hand. Ilan was 1 years old when he passed. - [Elijah Torres](https://thegfpd.org/warrior/elijah-torres/) - Elijah, 28, has PBD-ZSD. Despite vision, hearing, and sensory challenges, he radiates pure love and joy. He enjoys swings, lights, vibrations, and relaxing in his recliner. Hugs are only on his terms, but the best! His smile brightens each day and reminds us not to take anything for granted. - [Anna Violet Day](https://thegfpd.org/warrior/anna-violet-day/) - Anna Violet loved nothing more than to swim and snuggle. She was the happiest baby that loved to play with her toy fish bowl and could blow raspberries with the best of them! She loved to take naps in her momma’s arms and pull on her daddy’s beard any chance she could. Anna Violet passed - [Gwendolyn Hayes](https://thegfpd.org/warrior/gwendolyn-hayes/) - Gwen's smile and giggle could melt any heart. She loved over-easy eggs on toast, chocolate milk, and animal crackers. Her favorite toy was a string of beads. She worked hard to learn to sit up on her own and was beginning to bear weight on her legs with support. Gwen was almost 4 when she - [Chloe Carlson](https://thegfpd.org/warrior/chloe-carlson/) - Chloe loved swimming, loud noises like thunder and motorcycles, and being pushed really fast in her stroller. She passed when she was 7 years old. - [Dillon Honns](https://thegfpd.org/warrior/dillon-honns/) - Dillon loved to snuggle, keep one arm above his head, be held by his big brother, and his hiccups put a smile on all of our faces. Dillon passed at just 1 month old. - [Evie Thompson](https://thegfpd.org/warrior/evie/) - Evie loved cuddles, the water, sensory light and sound toys. Evie lost her fight when she was 2 years old. - [Archer Maple](https://thegfpd.org/warrior/archer-maple/) - Archer is a happy boy who enjoys riding the bus to school, interacting with others, playing with vehicle toys, and snuggling on the couch. Despite his many health challenges, his vibrant spirit spreads joy and laughter to all who know him. - [Kenna Maag](https://thegfpd.org/warrior/kenna-maag/) - Kenna’s love of her family is inspiring. She loves snuggling with Mommy, Daddy or big sister, Clancy. Elmo is still her favorite show. She enjoys swimming, swinging, reading Pete the Cat books, and going for walks in her stroller. Her smile and giggles can light up any room. - [Aspen Marie Pollock](https://thegfpd.org/warrior/aspen-marie-pollock/) - My sweet Aspen Marie is a kind, loving, tenacious being I’m so proud of. - [Caleb Hobbs LaMarie](https://thegfpd.org/warrior/caleb-hobbs-lamarie/) - Caleb was very sweet and loving. He loved to walk , swim and ride roller coasters. His laugh was contagious, and he blew the longest raspberries ever. He was so much joy to all who knew him. - [Ciera Charbonneau](https://thegfpd.org/warrior/ciera-charbonneau/) - Ciera graduated in the class of 2024, and continues to excel as a "Grad Student" at our local High School!! - [Cody Coulter](https://thegfpd.org/warrior/cody-coulter/) - Cody loves life especially baseball. He does not let his disabilities stop him. - [Ezra Grace Burdick](https://thegfpd.org/warrior/ezra-grace-burdick/) - Ezra Grace loves school and riding the school bus. She is happy, loving, curious and fierce! She is strong and has spent the last 17 years proving that to everyone. We love her beyond measure. - [Ginny Gamble](https://thegfpd.org/warrior/ginny-gamble/) - Ginny loved Elmo, butterflies, the color pink, music, her family, and swimming. Ginny was 6 years old when she passed. - [Gwendolyn Clouse](https://thegfpd.org/warrior/gwendolyn-clouse/) - Gwendolyn is 7 years old and absolutely incredible. She has a smile that could light up a concert hall and a laugh that can heal the deepest hurt. When she grabs your hand, the rest of the world just disappears. And her eyes…her eyes…they don't work worth a darn but they are absolutely gorgeous. - [Hans Ostertag](https://thegfpd.org/warrior/hans-ostertag/) - Hans had an infectious laugh and bright smile. Hans loved to snuggle and hold hands. Hans died at age 5 and we miss him everyday! - [Jared French](https://thegfpd.org/warrior/jared-french/) - Jared is a happy man he is always smiling and trying to get everyone around him to smile and though he has never said a word his smile speaks thousands. - [Judson Maynard](https://thegfpd.org/warrior/judson-maynard/) - Judson Maverick Maynard (11/12/2019–9/20/2020) faced PBD-ZSD surrounded by love and dedicated care. Supported by a strong medical team and community, he cherished his family, especially brother Tucker, his Hess Truck, and adaptive equipment. To live like #JMav is to love deeply and embrace life’s smallest joys. - [Lilliann Hughes](https://thegfpd.org/warrior/lilliann-hughes/) - Lilliann was born in 2021. She completed her mommy’s world alongside her two older brothers. Despite vision and hearing losses and many medical challenges, she loves dancing with her mom, swinging, water play, walks, and feeling the wind on her face. She is pure joy—spirited, determined, and never defined by diagnosis. - [Maddie Holt](https://thegfpd.org/warrior/maddie-holt/) - Maddie's big bows don't even come close to her even bigger personality. She loves football, music, Disney, and jellyfish. She can sign 30 words, say mama, & babbles in her own Wookie language. Cannabis gave Maddie a quality of life no one thought possible. She passed at 7 years old. - [William Hayes](https://thegfpd.org/warrior/william-hayes/) - William loves to be on the go, feeling his environment. Whether walking with his cane, holding your hand, or being pushed in his stroller, wagon, or wheelchair, he wants to constantly be moving. He also enjoys feeling the books at the library and going to school. He is currently 13 years old. - [Warren Draayer](https://thegfpd.org/warrior/warren-draayer/) - Warren was diagnosed with ZSD at 11 months following delayed development. He is a silly and giggly guy who loves to play peekaboo and being tickled. His favorite things are being outside, riding in his toy jeep with his brother, and snuggling. He has learned to walk on his own and is working on communication. - [Molly Kate Heath](https://thegfpd.org/warrior/molly-kate-heath/) - Molly Kate is as sassy and sweet as they come. She plays hard and loves harder. Molly Kate loves to be outside riding the side-by-side, visiting the cows, and all her family that lives nearby. She loves to sing and dance and relaxes by reading books. MK is a big foodie! Molly Kate lives every - [Lily Costello](https://thegfpd.org/warrior/lily-costello/) - Lily was a fashionista who was lovingly called Lilypants and loved jazz music. She passed when she was almost five months old. - [TJ Sacra](https://thegfpd.org/warrior/tj-sacra/) - TJ is a determined 25-year-old with PBD-ZSD who loves brushes, spatulas, playing ball, being in the water, bright lights, and going out into the community. He’s a mama’s boy, and his infectious belly laughs are the very best—the kind that makes everyone smile! - [Sophie Nuzzo](https://thegfpd.org/warrior/sophie-nuzzo/) - Sophie Nuzzo è affetta da un disturbo del biogenesi dei perossisomi (PEX1). Lei è la nostra principessa. Quando il malessere non la attanaglia è felice ed il suo sorriso illumina i nostri cuori. - [Lola Kaufman](https://thegfpd.org/warrior/lo-kaufman/) - Lola is a sweet, spirited 5-year-old whose smile lights up every room and giggle melts hearts. She loves school, story time, swinging, and dancing (a proud Swiftie!). Favorites include Nana’s chicken noodles, Friday movies, and cozy cuddles. She’s our daily reminder of joy, resilience, and love. - [Phoenix Smith](https://thegfpd.org/warrior/phoenix-smith/) - Phoenix loves anime, the water and spending time with family and friends. - [Riley Duquette](https://thegfpd.org/warrior/riley-duquette/) - Riley's strength is inspiring, his laugh is contagious, his eyes are striking, his forever love is light up toys with music and mom playing "heart and soul on the piano," school is his second favorite place beside home as long as he has his consistent person with him. Riley loves his siblings, and we are ## Donators - [Sarah Frost](https://thegfpd.org/donators/sarah-frost/) - [Leni Kuntz](https://thegfpd.org/donators/leni-kuntz/) - [La Carreta Londonberry](https://thegfpd.org/donators/la-carreta-londonberry/) - [Michele Lamanna](https://thegfpd.org/donators/michele-lamanna/) - [Nicole Lambert](https://thegfpd.org/donators/nicole-lambert/) - [LandMark Construction & Renovation LLC](https://thegfpd.org/donators/landmark-construction-renovation-llc/) - [Brittany Larsen](https://thegfpd.org/donators/brittany-larsen/) - [Sybill Light](https://thegfpd.org/donators/sybill-light/) - [Michael Lindenmeyer](https://thegfpd.org/donators/michael-lindenmeyer/) - [Laura Reynolds](https://thegfpd.org/donators/laura-reynolds/) - [June Reynolds](https://thegfpd.org/donators/june-reynolds/) - [Riverdale Elementary School](https://thegfpd.org/donators/riverdale-elementary-school/) - [Barry Rodgers](https://thegfpd.org/donators/barry-rodgers/) - [Tim Rood](https://thegfpd.org/donators/tim-rood/) - [Nick Salm](https://thegfpd.org/donators/nick-salm/) - [Becki and Matthew Sand](https://thegfpd.org/donators/becki-and-matthew-sand/) - [Matthew Sand](https://thegfpd.org/donators/matthew-sand/) - [Linda Potts](https://thegfpd.org/donators/linda-potts/) - [Steven Pruett](https://thegfpd.org/donators/steven-pruett/) - [Pub Ii](https://thegfpd.org/donators/pub-ii/) - [Sue and Larry Quane](https://thegfpd.org/donators/sue-and-larry-quane/) - [Dr. Charina Ramirez](https://thegfpd.org/donators/dr-charina-ramirez/) - [John Rees](https://thegfpd.org/donators/john-rees/) - [Revive Golf Management](https://thegfpd.org/donators/revive-golf-management/) - [Blake Zitko](https://thegfpd.org/donators/blake-zitko/) - [T om Zook](https://thegfpd.org/donators/t-om-zook/) - [Susan Fawcett](https://thegfpd.org/donators/susan-fawcett/) - [Jeff and LouAnn Fellers](https://thegfpd.org/donators/jeff-and-louann-fellers/) - [Ann Fernandes](https://thegfpd.org/donators/ann-fernandes/) - [Maribeth Ficek](https://thegfpd.org/donators/maribeth-ficek/) - [Daniel Fischer](https://thegfpd.org/donators/daniel-fischer/) - [Jill Frazier](https://thegfpd.org/donators/jill-frazier/) - [Bob Freitag](https://thegfpd.org/donators/bob-freitag/) - [Jordan Dunnett](https://thegfpd.org/donators/jordan-dunnett/) - [Carl Enchelmayer](https://thegfpd.org/donators/carl-enchelmayer/) - [Wesley Ernst](https://thegfpd.org/donators/wesley-ernst/) - [Keith Evans](https://thegfpd.org/donators/keith-evans/) - [Express Care](https://thegfpd.org/donators/express-care/) - [Cyndi Kear](https://thegfpd.org/donators/cyndi-kear/) - [Dan Kelley](https://thegfpd.org/donators/dan-kelley/) - [James Kindle](https://thegfpd.org/donators/james-kindle/) - [Martin and Cheryl Kinert](https://thegfpd.org/donators/martin-and-cheryl-kinert/) - [James King](https://thegfpd.org/donators/james-king/) - [T ony King](https://thegfpd.org/donators/t-ony-king/) - [Ken Kline](https://thegfpd.org/donators/ken-kline/) - [James Konsky](https://thegfpd.org/donators/james-konsky/) - [Brenda Phillis](https://thegfpd.org/donators/brenda-phillis/) - [Jack North](https://thegfpd.org/donators/jack-north/) - [Dan Nowak](https://thegfpd.org/donators/dan-nowak/) - [Rick Ott](https://thegfpd.org/donators/rick-ott/) - [Andrew Ott](https://thegfpd.org/donators/andrew-ott/) - [Bharti K. Patel](https://thegfpd.org/donators/bharti-k-patel/) - [John Peters](https://thegfpd.org/donators/john-peters/) - [Randy and Nancy Phillips](https://thegfpd.org/donators/randy-and-nancy-phillips/) - [Robert Watkins](https://thegfpd.org/donators/robert-watkins/) - [Jessica and Scott Weber](https://thegfpd.org/donators/jessica-and-scott-weber/) - [Staci Whitaker](https://thegfpd.org/donators/staci-whitaker/) - [Marsha White](https://thegfpd.org/donators/marsha-white/) - [Andy Wieduwilt](https://thegfpd.org/donators/andy-wieduwilt/) - [Lisa Wilson](https://thegfpd.org/donators/lisa-wilson/) - [Wilson Golf](https://thegfpd.org/donators/wilson-golf/) - [Scott Woolridge](https://thegfpd.org/donators/scott-woolridge/) - [Anthony and Christine DiLeo](https://thegfpd.org/donators/anthony-and-christine-dileo/) - [Patrice Donoghue](https://thegfpd.org/donators/patrice-donoghue/) - [Bethany Driskill](https://thegfpd.org/donators/bethany-driskill/) - [Janis Colangelo](https://thegfpd.org/donators/janis-colangelo/) - [Commonwealth Charitable Fund](https://thegfpd.org/donators/commonwealth-charitable-fund/) - [Kevin Craig](https://thegfpd.org/donators/kevin-craig/) - [Cory Dage](https://thegfpd.org/donators/cory-dage/) - [Lauren and Johnnie Danner](https://thegfpd.org/donators/lauren-and-johnnie-danner/) - [Chase Darrah](https://thegfpd.org/donators/chase-darrah/) - [Eddie and Jennifer Day](https://thegfpd.org/donators/eddie-and-jennifer-day/) - [Cory Jensen](https://thegfpd.org/donators/cory-jensen/) - [T odd Johnson](https://thegfpd.org/donators/t-odd-johnson/) - [Patricia Johnson](https://thegfpd.org/donators/patricia-johnson/) - [Mark Jontry](https://thegfpd.org/donators/mark-jontry/) - [Matthew Jontry](https://thegfpd.org/donators/matthew-jontry/) - [Deb Karl](https://thegfpd.org/donators/deb-karl/) - [Deborah Karl](https://thegfpd.org/donators/deborah-karl/) - [Christopher Kaufman](https://thegfpd.org/donators/christopher-kaufman/) - [Ethan Nelson](https://thegfpd.org/donators/ethan-nelson/) - [Srogi](https://thegfpd.org/donators/srogi/) - [St. John Paul II Regional School](https://thegfpd.org/donators/st-john-paul-ii-regional-school-2/) - [Standen](https://thegfpd.org/donators/standen/) - [Carl Streily](https://thegfpd.org/donators/carl-streily/) - [Bianca Strickland](https://thegfpd.org/donators/bianca-strickland/) - [Scott Takinen](https://thegfpd.org/donators/scott-takinen/) - [T ennova Family YMCA](https://thegfpd.org/donators/t-ennova-family-ymca/) - [Eric Thompson](https://thegfpd.org/donators/eric-thompson/) - [Treasured Friends, LLC](https://thegfpd.org/donators/treasured-friends-llc/) - [Ron and Susan Tremblay](https://thegfpd.org/donators/ron-and-susan-tremblay/) - [Trust Company Oklahoma](https://thegfpd.org/donators/trust-company-oklahoma/) - [Kato Wade](https://thegfpd.org/donators/kato-wade/) - [Hilary Wahlheim](https://thegfpd.org/donators/hilary-wahlheim/) - [Jim Walker](https://thegfpd.org/donators/jim-walker/) - [Walton Dental Group](https://thegfpd.org/donators/walton-dental-group/) - [Natalie and Phillip Clouse](https://thegfpd.org/donators/natalie-and-phillip-clouse/) - [T ony Mongkolsmai](https://thegfpd.org/donators/t-ony-mongkolsmai/) - [Neel Mookerjee](https://thegfpd.org/donators/neel-mookerjee/) - [Morris Packaging LLC](https://thegfpd.org/donators/morris-packaging-llc/) - [Paula Naour](https://thegfpd.org/donators/paula-naour/) - [National Financial Services, LLC](https://thegfpd.org/donators/national-financial-services-llc/) - [Weslie Sawyer](https://thegfpd.org/donators/weslie-sawyer/) - [Randall Schaab](https://thegfpd.org/donators/randall-schaab/) - [Randy Schaab](https://thegfpd.org/donators/randy-schaab/) - [Chris Seifert](https://thegfpd.org/donators/chris-seifert/) - [Brian and Katy Shoemaker](https://thegfpd.org/donators/brian-and-katy-shoemaker/) - [Brian Sibley](https://thegfpd.org/donators/brian-sibley/) - [Kathy and Chuck Smalley](https://thegfpd.org/donators/kathy-and-chuck-smalley/) - [Gerry Smith](https://thegfpd.org/donators/gerry-smith/) - [Beth Snapp](https://thegfpd.org/donators/beth-snapp/) - [Shirley Lowe](https://thegfpd.org/donators/shirley-lowe/) - [Larry Lowe](https://thegfpd.org/donators/larry-lowe/) - [Lucky Dog Property Solutions, LLC](https://thegfpd.org/donators/lucky-dog-property-solutions-llc/) - [Donald Mahannah](https://thegfpd.org/donators/donald-mahannah/) - [Jim Marcero](https://thegfpd.org/donators/jim-marcero/) - [David Marquardt](https://thegfpd.org/donators/david-marquardt-2/) - [Steve McManus](https://thegfpd.org/donators/steve-mcmanus/) - [Ethan McPherson](https://thegfpd.org/donators/ethan-mcpherson/) - [Keith Middleton](https://thegfpd.org/donators/keith-middleton/) - [Jane Middleton](https://thegfpd.org/donators/jane-middleton/) - [Penny Miller](https://thegfpd.org/donators/penny-miller/) - [Steve Miller](https://thegfpd.org/donators/steve-miller/) - [Christine Minguski](https://thegfpd.org/donators/christine-minguski/) - [Geralyn Miskulin](https://thegfpd.org/donators/geralyn-miskulin/) - [Joe Miskulin](https://thegfpd.org/donators/joe-miskulin/) - [Missouri Baptist Sullivan Hospital](https://thegfpd.org/donators/missouri-baptist-sullivan-hospital/) - [Shawn Hayes](https://thegfpd.org/donators/shawn-hayes/) - [Heather Heilman](https://thegfpd.org/donators/heather-heilman/) - [Patricia Heilman](https://thegfpd.org/donators/patricia-heilman/) - [Rusty Hendren](https://thegfpd.org/donators/rusty-hendren/) - [John Hensley](https://thegfpd.org/donators/john-hensley/) - [Jon Hofmann](https://thegfpd.org/donators/jon-hofmann/) - [Michael Holley](https://thegfpd.org/donators/michael-holley/) - [Peggy Hundley](https://thegfpd.org/donators/peggy-hundley/) - [Illinois Prairie Community Foundation](https://thegfpd.org/donators/illinois-prairie-community-foundation/) - [Jeff W. Lindsay, P .C.](https://thegfpd.org/donators/jeff-w-lindsay-p-c/) - [Brian Lock](https://thegfpd.org/donators/brian-lock/) - [James Lowe](https://thegfpd.org/donators/james-lowe/) - [Erica Gerber](https://thegfpd.org/donators/erica-gerber/) - [Gina Hoagland](https://thegfpd.org/donators/gina-hoagland/) - [Robert Gomez](https://thegfpd.org/donators/robert-gomez/) - [Doug Gordon](https://thegfpd.org/donators/doug-gordon/) - [Gene and Helen Grandone](https://thegfpd.org/donators/gene-and-helen-grandone/) - [Darren Guise and Bonnie Read](https://thegfpd.org/donators/darren-guise-and-bonnie-read/) - [Joseph Hacia](https://thegfpd.org/donators/joseph-hacia/) - [Hallam ICS](https://thegfpd.org/donators/hallam-ics/) - [Madelyn Hanson](https://thegfpd.org/donators/madelyn-hanson/) - [Taylor Hassan](https://thegfpd.org/donators/taylor-hassan/) - [Carol Burger](https://thegfpd.org/donators/carol-burger/) - [Julie Burns](https://thegfpd.org/donators/julie-burns/) - [Michael Burns](https://thegfpd.org/donators/michael-burns/) - [Hank and Mary Campbell](https://thegfpd.org/donators/hank-and-mary-campbell/) - [Lacey Caughron](https://thegfpd.org/donators/lacey-caughron/) - [Certa Pro Painters Of Central Illinois](https://thegfpd.org/donators/certa-pro-painters-of-central-illinois/) - [Carrie Chapman](https://thegfpd.org/donators/carrie-chapman/) - [Mike Cleary](https://thegfpd.org/donators/mike-cleary/) - [Susan Cleaver](https://thegfpd.org/donators/susan-cleaver/) - [Joseph Fuller](https://thegfpd.org/donators/joseph-fuller/) - [Julie Gacnik](https://thegfpd.org/donators/julie-gacnik/) - [Daniel Galvin](https://thegfpd.org/donators/daniel-galvin/) - [Colleen Garbe](https://thegfpd.org/donators/colleen-garbe/) - [Kate Gasparrini](https://thegfpd.org/donators/kate-gasparrini/) - [Trino Alfaro](https://thegfpd.org/donators/trino-alfaro/) - [Charles Amann](https://thegfpd.org/donators/charles-amann/) - [Perry Barbaruolo](https://thegfpd.org/donators/perry-barbaruolo/) - [Kimberly Bauer](https://thegfpd.org/donators/kimberly-bauer/) - [Josh Beal](https://thegfpd.org/donators/josh-beal/) - [Bruce Bergethon](https://thegfpd.org/donators/bruce-bergethon/) - [Nick Bernabei](https://thegfpd.org/donators/nick-bernabei/) - [Lucile Beshara](https://thegfpd.org/donators/lucile-beshara/) - [Tim and Pat Bittner](https://thegfpd.org/donators/tim-and-pat-bittner/) - [Blooming Tree Wealth MGMT LLC](https://thegfpd.org/donators/blooming-tree-wealth-mgmt-llc/) - [Bloomington Country Club](https://thegfpd.org/donators/bloomington-country-club/) - [William Boswell](https://thegfpd.org/donators/william-boswell/) - [Madeleine Bryce](https://thegfpd.org/donators/madeleine-bryce/) - [Carolina and Jose Alfaro](https://thegfpd.org/donators/carolina-and-jose-alfaro/) - [Beth Vandenberg](https://thegfpd.org/donators/beth-vandenberg/) - [Elizabeth Vartuli](https://thegfpd.org/donators/elizabeth-vartuli/) - [Christopher and Jana Villemez](https://thegfpd.org/donators/christopher-and-jana-villemez/) - [Rhonda Vineyard](https://thegfpd.org/donators/rhonda-vineyard/) - [Heather and Jared Wagner](https://thegfpd.org/donators/heather-and-jared-wagner/) - [Grant Wahlheim](https://thegfpd.org/donators/grant-wahlheim/) - [Danielle Walton](https://thegfpd.org/donators/danielle-walton/) - [Deborah and Steven Wannemacher](https://thegfpd.org/donators/deborah-and-steven-wannemacher/) - [Melissa Watkins](https://thegfpd.org/donators/melissa-watkins/) - [Smallwood Wealth](https://thegfpd.org/donators/smallwood-wealth/) - [Jack and Sue Wetzel](https://thegfpd.org/donators/jack-and-sue-wetzel/) - [T om White](https://thegfpd.org/donators/t-om-white/) - [Alexander Wylder](https://thegfpd.org/donators/alexander-wylder/) - [Lynne Yowell](https://thegfpd.org/donators/lynne-yowell/) - [Drake Zimmerman](https://thegfpd.org/donators/drake-zimmerman/) - [T ed Zook](https://thegfpd.org/donators/t-ed-zook/) - [Justin Spring](https://thegfpd.org/donators/justin-spring/) - [St. John Paul II Regional School](https://thegfpd.org/donators/st-john-paul-ii-regional-school/) - [Sandy and Jim Stilwell](https://thegfpd.org/donators/sandy-and-jim-stilwell/) - [Margaret Stiner](https://thegfpd.org/donators/margaret-stiner/) - [Jeff and Anne Smart](https://thegfpd.org/donators/jeff-and-anne-smart/) - [Student Apartment Mart Inc](https://thegfpd.org/donators/student-apartment-mart-inc-2/) - [Sullivan Bank](https://thegfpd.org/donators/sullivan-bank-2/) - [Paul Sung](https://thegfpd.org/donators/paul-sung-2/) - [TEK Systems Corporate](https://thegfpd.org/donators/tek-systems-corporate-2/) - [The Fred & June MacMurray Foundation](https://thegfpd.org/donators/the-fred-june-macmurray-foundation/) - [The Hubbell Foundation](https://thegfpd.org/donators/the-hubbell-foundation-2/) - [The Village Partners T eam RE/Max](https://thegfpd.org/donators/the-village-partners-t-eam-re-max-2/) - [Consultant](https://thegfpd.org/donators/consultant-2/) - [The Williams Companies, Inc.](https://thegfpd.org/donators/the-williams-companies-inc/) - [Thomas T. & Bernice F. Irvin Foundation,](https://thegfpd.org/donators/thomas-t-bernice-f-irvin-foundation/) - [Inc](https://thegfpd.org/donators/inc/) - [Andy Thome](https://thegfpd.org/donators/andy-thome/) - [Stacey Thompson](https://thegfpd.org/donators/stacey-thompson/) - [Katheryn Tilley](https://thegfpd.org/donators/katheryn-tilley/) - [Brian and Maggie Tims](https://thegfpd.org/donators/brian-and-maggie-tims/) - [Jonathan Trapani](https://thegfpd.org/donators/jonathan-trapani/) - [Melissa and Morgan Philippi](https://thegfpd.org/donators/melissa-and-morgan-philippi/) - [Lisa Pione](https://thegfpd.org/donators/lisa-pione/) - [T ony Pona](https://thegfpd.org/donators/t-ony-pona/) - [John Pryor](https://thegfpd.org/donators/john-pryor/) - [PulteGroup, Inc.](https://thegfpd.org/donators/pultegroup-inc/) - [Linda Rader](https://thegfpd.org/donators/linda-rader-2/) - [Emily Rakowski](https://thegfpd.org/donators/emily-rakowski/) - [Dr. Gerald Raymond](https://thegfpd.org/donators/dr-gerald-raymond/) - [Stephanie Reed](https://thegfpd.org/donators/stephanie-reed/) - [Kara Reel-Spencer](https://thegfpd.org/donators/kara-reel-spencer/) - [Katherine Rigsby](https://thegfpd.org/donators/katherine-rigsby/) - [Dr. Bill Rizzo](https://thegfpd.org/donators/dr-bill-rizzo/) - [Michael Rupinski](https://thegfpd.org/donators/michael-rupinski/) - [Jaclynne Sayers](https://thegfpd.org/donators/jaclynne-sayers/) - [Seer Interactive](https://thegfpd.org/donators/seer-interactive/) - [Erin Shafer](https://thegfpd.org/donators/erin-shafer/) - [Eric and Rene Siegel](https://thegfpd.org/donators/eric-and-rene-siegel/) - [Brigham Slaughter](https://thegfpd.org/donators/brigham-slaughter/) - [Katie Slavish](https://thegfpd.org/donators/katie-slavish/) - [Snyder Family Foundation](https://thegfpd.org/donators/snyder-family-foundation/) - [Robert Miller](https://thegfpd.org/donators/robert-miller/) - [Sarah and Hope Mineau](https://thegfpd.org/donators/sarah-and-hope-mineau/) - [Joe Monk](https://thegfpd.org/donators/joe-monk/) - [Ann Moser](https://thegfpd.org/donators/ann-moser/) - [Jill Mross](https://thegfpd.org/donators/jill-mross/) - [Rich Munizzo](https://thegfpd.org/donators/rich-munizzo/) - [Sam Murphy](https://thegfpd.org/donators/sam-murphy/) - [Janet Nagreski-Frizzell](https://thegfpd.org/donators/janet-nagreski-frizzell/) - [NBT Bank](https://thegfpd.org/donators/nbt-bank/) - [NCHS Lady Iron Soccer](https://thegfpd.org/donators/nchs-lady-iron-soccer/) - [Julie Newton](https://thegfpd.org/donators/julie-newton/) - [Betty Nichols](https://thegfpd.org/donators/betty-nichols/) - [Chris and Rachel Ostertag](https://thegfpd.org/donators/chris-and-rachel-ostertag/) - [Patty Otis](https://thegfpd.org/donators/patty-otis/) - [Erica Ott](https://thegfpd.org/donators/erica-ott/) - [Robert Parent](https://thegfpd.org/donators/robert-parent/) - [Michael Parent](https://thegfpd.org/donators/michael-parent/) - [Richard Percy](https://thegfpd.org/donators/richard-percy/) - [Randy and Sandy Peterson](https://thegfpd.org/donators/randy-and-sandy-peterson/) - [Amy Lambrecht](https://thegfpd.org/donators/amy-lambrecht/) - [Jeffery Lanier](https://thegfpd.org/donators/jeffery-lanier/) - [Elizabeth and Kurt Larson](https://thegfpd.org/donators/elizabeth-and-kurt-larson/) - [Amanda and Kirk Leesman](https://thegfpd.org/donators/amanda-and-kirk-leesman/) - [Linda and Ralph Lehmann](https://thegfpd.org/donators/linda-and-ralph-lehmann/) - [Katie Lenzini](https://thegfpd.org/donators/katie-lenzini/) - [Stacey Leon](https://thegfpd.org/donators/stacey-leon/) - [Phillip Loftus](https://thegfpd.org/donators/phillip-loftus/) - [T ed Logan](https://thegfpd.org/donators/t-ed-logan/) - [Vicky and Shannon Maag](https://thegfpd.org/donators/vicky-and-shannon-maag/) - [Michelle Mancias](https://thegfpd.org/donators/michelle-mancias/) - [Linda and Curtis Maple](https://thegfpd.org/donators/linda-and-curtis-maple/) - [David Marquardt](https://thegfpd.org/donators/david-marquardt/) - [Lesley and William Matinelli](https://thegfpd.org/donators/lesley-and-william-matinelli/) - [Mary McClintock](https://thegfpd.org/donators/mary-mcclintock/) - [T om McMillin](https://thegfpd.org/donators/t-om-mcmillin/) - [Carolyn and Richard Menard](https://thegfpd.org/donators/carolyn-and-richard-menard/) - [Andrew Meo](https://thegfpd.org/donators/andrew-meo/) - [Meghan Meyers](https://thegfpd.org/donators/meghan-meyers/) - [ISU Athletics](https://thegfpd.org/donators/isu-athletics/) - [Mark Johnson](https://thegfpd.org/donators/mark-johnson/) - [Johnson & Johnson](https://thegfpd.org/donators/johnson-johnson/) - [Joe Kahn](https://thegfpd.org/donators/joe-kahn/) - [Stephen Kauffman](https://thegfpd.org/donators/stephen-kauffman/) - [Jared Kauffman](https://thegfpd.org/donators/jared-kauffman/) - [Elizabeth Keller](https://thegfpd.org/donators/elizabeth-keller/) - [Daniel Kidd](https://thegfpd.org/donators/daniel-kidd/) - [Nancy and Joel Kindle](https://thegfpd.org/donators/nancy-and-joel-kindle/) - [Martha Kindred](https://thegfpd.org/donators/martha-kindred/) - [Adrienne and Josh Kingsley](https://thegfpd.org/donators/adrienne-and-josh-kingsley/) - [Gretchen Kirby](https://thegfpd.org/donators/gretchen-kirby/) - [Sam Knackmuhs](https://thegfpd.org/donators/sam-knackmuhs/) - [Jeff Koehler](https://thegfpd.org/donators/jeff-koehler/) - [Hetal Kommes](https://thegfpd.org/donators/hetal-kommes/) - [Eric Laffey](https://thegfpd.org/donators/eric-laffey/) - [Gordie Garbe](https://thegfpd.org/donators/gordie-garbe/) - [Beau Gentry](https://thegfpd.org/donators/beau-gentry/) - [Erica Golle](https://thegfpd.org/donators/erica-golle/) - [Donna Grant](https://thegfpd.org/donators/donna-grant/) - [Gary Grant](https://thegfpd.org/donators/gary-grant/) - [Susan Halifax](https://thegfpd.org/donators/susan-halifax/) - [Eric and Kristi Hammons](https://thegfpd.org/donators/eric-and-kristi-hammons/) - [Sharon Harris](https://thegfpd.org/donators/sharon-harris/) - [Burt Haun](https://thegfpd.org/donators/burt-haun/) - [Jay and Kelli Hensley](https://thegfpd.org/donators/jay-and-kelli-hensley/) - [Faith and Joe Herbers](https://thegfpd.org/donators/faith-and-joe-herbers/) - [Kelley and Daniel Hobbs](https://thegfpd.org/donators/kelley-and-daniel-hobbs/) - [Maureen Hubschmitt](https://thegfpd.org/donators/maureen-hubschmitt/) - [Illnois State Credit Union](https://thegfpd.org/donators/illnois-state-credit-union/) - [Sharolyn Irwin](https://thegfpd.org/donators/sharolyn-irwin/) - [Steve Ellis](https://thegfpd.org/donators/steve-ellis/) - [Kelsey Endris](https://thegfpd.org/donators/kelsey-endris/) - [Cheri and Bob Ervin](https://thegfpd.org/donators/cheri-and-bob-ervin/) - [Laura Ewan](https://thegfpd.org/donators/laura-ewan/) - [Lynne Flowers](https://thegfpd.org/donators/lynne-flowers/) - [Susan and David Fowler](https://thegfpd.org/donators/susan-and-david-fowler/) - [Don Franke](https://thegfpd.org/donators/don-franke/) - [Franke Construction Partnership,](https://thegfpd.org/donators/franke-construction-partnership/) - [LLC](https://thegfpd.org/donators/llc/) - [The Fresh Coast Flock](https://thegfpd.org/donators/the-fresh-coast-flock/) - [Richard Freud](https://thegfpd.org/donators/richard-freud/) - [Marcia Gallagher](https://thegfpd.org/donators/marcia-gallagher/) - [Marty Gallagher](https://thegfpd.org/donators/marty-gallagher/) - [Patty and Greg Garbe](https://thegfpd.org/donators/patty-and-greg-garbe/) - [Jared Garbe](https://thegfpd.org/donators/jared-garbe/) - [Bryan Crabtree](https://thegfpd.org/donators/bryan-crabtree/) - [Crabtree Financial Services, LLC](https://thegfpd.org/donators/crabtree-financial-services-llc/) - [Keith Creighton](https://thegfpd.org/donators/keith-creighton/) - [Kaitlin Creighton](https://thegfpd.org/donators/kaitlin-creighton/) - [Christine Creighton](https://thegfpd.org/donators/christine-creighton/) - [CriticalArc](https://thegfpd.org/donators/criticalarc/) - [Mary Cuppari](https://thegfpd.org/donators/mary-cuppari/) - [Linda Damery](https://thegfpd.org/donators/linda-damery/) - [Nate Damery](https://thegfpd.org/donators/nate-damery/) - [Daniels](https://thegfpd.org/donators/daniels/) - [Patricia and Robert Dauer](https://thegfpd.org/donators/patricia-and-robert-dauer/) - [Kelly and Matt Dauer-Hubschmitt](https://thegfpd.org/donators/kelly-and-matt-dauer-hubschmitt/) - [Dean Davis](https://thegfpd.org/donators/dean-davis/) - [Ditch Witch Worx](https://thegfpd.org/donators/ditch-witch-worx/) - [Shannon Draayer](https://thegfpd.org/donators/shannon-draayer/) - [John Dunnett](https://thegfpd.org/donators/john-dunnett/) - [E&J Gallo Winery](https://thegfpd.org/donators/ej-gallo-winery/) - [Ashley Bowen](https://thegfpd.org/donators/ashley-bowen/) - [Bryant Bridge of Hope Foundation](https://thegfpd.org/donators/bryant-bridge-of-hope-foundation/) - [Phyllis Anderson and Steve Anderson](https://thegfpd.org/donators/phyllis-anderson-and-steve-anderson/) - [Kilian and Jessie Bryce](https://thegfpd.org/donators/kilian-and-jessie-bryce/) - [Rhonda Bryce](https://thegfpd.org/donators/rhonda-bryce/) - [Budrovich Companies](https://thegfpd.org/donators/budrovich-companies/) - [Victoria Burdick](https://thegfpd.org/donators/victoria-burdick/) - [Allison Buss](https://thegfpd.org/donators/allison-buss/) - [Adrienne Cannell](https://thegfpd.org/donators/adrienne-cannell/) - [Ulysses Caravias](https://thegfpd.org/donators/ulysses-caravias/) - [Terry and Corin Chapman](https://thegfpd.org/donators/terry-and-corin-chapman/) - [David Church](https://thegfpd.org/donators/david-church/) - [John Colbert](https://thegfpd.org/donators/john-colbert/) - [Suzanne Collins](https://thegfpd.org/donators/suzanne-collins/) - [John Copenhaver](https://thegfpd.org/donators/john-copenhaver/) - [Alison Correll](https://thegfpd.org/donators/alison-correll/) - [Allegis Group Foundation](https://thegfpd.org/donators/allegis-group-foundation/) - [Matt Anderson](https://thegfpd.org/donators/matt-anderson/) - [Collin Anderson](https://thegfpd.org/donators/collin-anderson/) - [Jacob Anderson](https://thegfpd.org/donators/jacob-anderson/) - [Bad Habit Brewing Company LLC](https://thegfpd.org/donators/bad-habit-brewing-company-llc/) - [Lois Balk](https://thegfpd.org/donators/lois-balk/) - [Rich and Jane Beal](https://thegfpd.org/donators/rich-and-jane-beal/) - [Tom Berkemeier](https://thegfpd.org/donators/tom-berkemeier/) - [J Gordan and Sandra Bidner](https://thegfpd.org/donators/j-gordan-and-sandra-bidner/) - [Dr. Marcel Binstock](https://thegfpd.org/donators/dr-marcel-binstock/) - [Joseph and Julie Blandford](https://thegfpd.org/donators/joseph-and-julie-blandford/) - [Bloomington-Normal YMCA](https://thegfpd.org/donators/bloomington-normal-ymca/) - [Beth Boggs](https://thegfpd.org/donators/beth-boggs/) - [Joanna Bowen](https://thegfpd.org/donators/joanna-bowen/) - [Lighthouse Financial Advisors](https://thegfpd.org/donators/lighthouse-financial-advisors/) - [Leslie and Michael Umfleet](https://thegfpd.org/donators/leslie-and-michael-umfleet/) - [Uncle Bill's Self Storage](https://thegfpd.org/donators/uncle-bills-self-storage/) - [Uptown Gifts Boutique](https://thegfpd.org/donators/uptown-gifts-boutique/) - [Jamie Usher](https://thegfpd.org/donators/jamie-usher/) - [Christopher Usher](https://thegfpd.org/donators/christopher-usher/) - [Westminster Village Inc](https://thegfpd.org/donators/westminster-village-inc/) - [Nikki Wetzel](https://thegfpd.org/donators/nikki-wetzel/) - [Whalen](https://thegfpd.org/donators/whalen/) - [Peggy Whelan](https://thegfpd.org/donators/peggy-whelan/) - [Beth Whisman](https://thegfpd.org/donators/beth-whisman/) - [Joe and Diane White](https://thegfpd.org/donators/joe-and-diane-white/) - [Becky White](https://thegfpd.org/donators/becky-white/) - [Justin White](https://thegfpd.org/donators/justin-white/) - [Joan and Roger Yurt](https://thegfpd.org/donators/joan-and-roger-yurt/) - [Patricia Zengel](https://thegfpd.org/donators/patricia-zengel/) - [Kay Ziebarth](https://thegfpd.org/donators/kay-ziebarth/) - [Michael Zurek](https://thegfpd.org/donators/michael-zurek/) - [Steven Wolock](https://thegfpd.org/donators/steven-wolock/) - [Jennifer Wood](https://thegfpd.org/donators/jennifer-wood/) - [Sharon Wood](https://thegfpd.org/donators/sharon-wood/) - [Laura Woodring](https://thegfpd.org/donators/laura-woodring/) - [Phyllis Woods](https://thegfpd.org/donators/phyllis-woods/) - [Michael and Ellen Woods](https://thegfpd.org/donators/michael-and-ellen-woods/) - [Woods Giving Fund](https://thegfpd.org/donators/woods-giving-fund/) - [Jeanette Word](https://thegfpd.org/donators/jeanette-word/) - [Ashley Wright](https://thegfpd.org/donators/ashley-wright/) - [Lisa Wyatt](https://thegfpd.org/donators/lisa-wyatt/) - [Emily Yoder](https://thegfpd.org/donators/emily-yoder/) - [Yoga Lab](https://thegfpd.org/donators/yoga-lab/) - [Gary York](https://thegfpd.org/donators/gary-york/) - [Kerry Young](https://thegfpd.org/donators/kerry-young/) - [Greg Yount](https://thegfpd.org/donators/greg-yount/) - [Angie Turner](https://thegfpd.org/donators/angie-turner/) - [David Turner](https://thegfpd.org/donators/david-turner/) - [Lauren Ullrich](https://thegfpd.org/donators/lauren-ullrich/) - [Paul Watkins](https://thegfpd.org/donators/paul-watkins/) - [Mohamed Wazeer](https://thegfpd.org/donators/mohamed-wazeer/) - [Emily Webb](https://thegfpd.org/donators/emily-webb/) - [Richard Weber](https://thegfpd.org/donators/richard-weber/) - [Larry Weber](https://thegfpd.org/donators/larry-weber/) - [Deborah Webster](https://thegfpd.org/donators/deborah-webster/) - [Arlene Weeks](https://thegfpd.org/donators/arlene-weeks/) - [Kathy Wefler](https://thegfpd.org/donators/kathy-wefler/) - [CJ Weigel](https://thegfpd.org/donators/cj-weigel/) - [Kristen Weikle](https://thegfpd.org/donators/kristen-weikle/) - [Bruce Weldy](https://thegfpd.org/donators/bruce-weldy/) - [Olivia Wellinger](https://thegfpd.org/donators/olivia-wellinger/) - [Rachel Wells](https://thegfpd.org/donators/rachel-wells/) - [Victoria Wentzell](https://thegfpd.org/donators/victoria-wentzell/) - [Marie Werhan](https://thegfpd.org/donators/marie-werhan/) - [Deb Wolf](https://thegfpd.org/donators/deb-wolf/) - [The Vein Specialists](https://thegfpd.org/donators/the-vein-specialists/) - [Fred and Hilda Theile](https://thegfpd.org/donators/fred-and-hilda-theile/) - [Christina Theile](https://thegfpd.org/donators/christina-theile/) - [Jane Thomas](https://thegfpd.org/donators/jane-thomas/) - [Scott Thomas](https://thegfpd.org/donators/scott-thomas/) - [Mike Thorsen](https://thegfpd.org/donators/mike-thorsen/) - [Kathy Thurston](https://thegfpd.org/donators/kathy-thurston/) - [Claire Tidmore](https://thegfpd.org/donators/claire-tidmore/) - [Tanya Tiegler](https://thegfpd.org/donators/tanya-tiegler/) - [Tilley Wood Creations](https://thegfpd.org/donators/tilley-wood-creations/) - [Timelis Restorations](https://thegfpd.org/donators/timelis-restorations/) - [Times Past Inn](https://thegfpd.org/donators/times-past-inn/) - [Clair Turbeville](https://thegfpd.org/donators/clair-turbeville/) - [Judy Turbeville](https://thegfpd.org/donators/judy-turbeville/) - [Patti Watkins](https://thegfpd.org/donators/patti-watkins/) - [Jen Walker](https://thegfpd.org/donators/jen-walker/) - [Audrey Walker](https://thegfpd.org/donators/audrey-walker/) - [Juanita Walker](https://thegfpd.org/donators/juanita-walker/) - [Walmart Supercenter #1319](https://thegfpd.org/donators/walmart-supercenter-1319/) - [Waters](https://thegfpd.org/donators/waters/) - [BenJAMIN Waters](https://thegfpd.org/donators/benjamin-waters/) - [Kristyn Wilson](https://thegfpd.org/donators/kristyn-wilson/) - [Ryan Wilson](https://thegfpd.org/donators/ryan-wilson/) - [Eli Winn](https://thegfpd.org/donators/eli-winn/) - [Ryan Winn](https://thegfpd.org/donators/ryan-winn/) - [Alison Wion](https://thegfpd.org/donators/alison-wion/) - [Jennifer Wissinger](https://thegfpd.org/donators/jennifer-wissinger/) - [WLGT](https://thegfpd.org/donators/wlgt/) - [Matthew Woehrmann](https://thegfpd.org/donators/matthew-woehrmann/) - [The Pledgeling Foundation](https://thegfpd.org/donators/the-pledgeling-foundation/) - [The Progressive Insurance Foundation](https://thegfpd.org/donators/the-progressive-insurance-foundation/) - [Matthew Sykes](https://thegfpd.org/donators/matthew-sykes/) - [Edward Tanton](https://thegfpd.org/donators/edward-tanton/) - [Mandi Tappin](https://thegfpd.org/donators/mandi-tappin/) - [Michael Targon](https://thegfpd.org/donators/michael-targon/) - [Aondover Tarhule](https://thegfpd.org/donators/aondover-tarhule/) - [Diane Tarr](https://thegfpd.org/donators/diane-tarr/) - [Shannon TayloeJoel Taylor](https://thegfpd.org/donators/shannon-tayloejoel-taylor/) - [Camille Taylor](https://thegfpd.org/donators/camille-taylor/) - [Anna T eeter](https://thegfpd.org/donators/anna-t-eeter/) - [Gavin and Sara T elfer](https://thegfpd.org/donators/gavin-and-sara-t-elfer/) - [Steven T emple](https://thegfpd.org/donators/steven-t-emple/) - [Thacker-Grigsby T elephone Company, LLC](https://thegfpd.org/donators/thacker-grigsby-t-elephone-company-llc/) - [The Marshall and Kathryn Duke Trust](https://thegfpd.org/donators/the-marshall-and-kathryn-duke-trust/) - [The Picklr](https://thegfpd.org/donators/the-picklr/) - [Tanya Voss](https://thegfpd.org/donators/tanya-voss/) - [Jack Wagner](https://thegfpd.org/donators/jack-wagner/) - [Richard Sauer](https://thegfpd.org/donators/richard-sauer/) - [Sarah Scanlon](https://thegfpd.org/donators/sarah-scanlon/) - [Karen Scavo](https://thegfpd.org/donators/karen-scavo/) - [Sue Schaefer](https://thegfpd.org/donators/sue-schaefer/) - [Monica Schaefer](https://thegfpd.org/donators/monica-schaefer/) - [Masarnen and Massie Schemmel](https://thegfpd.org/donators/masarnen-and-massie-schemmel/) - [Merry Schmied](https://thegfpd.org/donators/merry-schmied/) - [Betty and Ron Sine](https://thegfpd.org/donators/betty-and-ron-sine/) - [Mrs. Peggy Sintek-Hall](https://thegfpd.org/donators/mrs-peggy-sintek-hall/) - [Chris Smart](https://thegfpd.org/donators/chris-smart/) - [Holly Smelson](https://thegfpd.org/donators/holly-smelson/) - [Carol Smith](https://thegfpd.org/donators/carol-smith/) - [Patrick Smith](https://thegfpd.org/donators/patrick-smith/) - [Holly Smith](https://thegfpd.org/donators/holly-smith/) - [Smith](https://thegfpd.org/donators/smith/) - [Tiffany Sykes](https://thegfpd.org/donators/tiffany-sykes/) - [Balys Platukis](https://thegfpd.org/donators/balys-platukis/) - [Tamara Pleskach](https://thegfpd.org/donators/tamara-pleskach/) - [Nancy Plourde](https://thegfpd.org/donators/nancy-plourde/) - [Jessica Plummer](https://thegfpd.org/donators/jessica-plummer/) - [Plush Moon T errarium Co](https://thegfpd.org/donators/plush-moon-t-errarium-co/) - [Michael Poine](https://thegfpd.org/donators/michael-poine/) - [Yunus Emre Polat](https://thegfpd.org/donators/yunus-emre-polat/) - [Sandra Richardson](https://thegfpd.org/donators/sandra-richardson/) - [Megan Richardson](https://thegfpd.org/donators/megan-richardson/) - [Karen Richcreek](https://thegfpd.org/donators/karen-richcreek/) - [Nancy Ridenour](https://thegfpd.org/donators/nancy-ridenour/) - [T eresa Riemer](https://thegfpd.org/donators/t-eresa-riemer/) - [Brittany Riley](https://thegfpd.org/donators/brittany-riley/) - [Raegan Rinchiuso](https://thegfpd.org/donators/raegan-rinchiuso/) - [Lincoln Rinehart](https://thegfpd.org/donators/lincoln-rinehart/) - [Carl Sarnblad](https://thegfpd.org/donators/carl-sarnblad/) - [Natalie Stout](https://thegfpd.org/donators/natalie-stout/) - [Dale Strachan](https://thegfpd.org/donators/dale-strachan/) - [Abbi Strader](https://thegfpd.org/donators/abbi-strader/) - [Richard Stroyan](https://thegfpd.org/donators/richard-stroyan/) - [Brett Stuckey](https://thegfpd.org/donators/brett-stuckey/) - [William Sulaski](https://thegfpd.org/donators/william-sulaski/) - [Catherine Sullivan](https://thegfpd.org/donators/catherine-sullivan/) - [Katherine Swidarski](https://thegfpd.org/donators/katherine-swidarski/) - [O'Brien Auto T eam of Bloomington-Normal](https://thegfpd.org/donators/obrien-auto-t-eam-of-bloomington-normal/) - [Michael Odlyzko](https://thegfpd.org/donators/michael-odlyzko/) - [Kathleen Odonnell](https://thegfpd.org/donators/kathleen-odonnell/) - [Kathleen O'Donnell](https://thegfpd.org/donators/kathleen-odonnell-2/) - [Priscilla Offen](https://thegfpd.org/donators/priscilla-offen/) - [Ohmfit Active Wear](https://thegfpd.org/donators/ohmfit-active-wear/) - [Donna Oklok](https://thegfpd.org/donators/donna-oklok/) - [Bruce Olson](https://thegfpd.org/donators/bruce-olson/) - [Amanda Plattner](https://thegfpd.org/donators/amanda-plattner/) - [Kathleen Riccardi](https://thegfpd.org/donators/kathleen-riccardi/) - [Sharon and Steve Salz](https://thegfpd.org/donators/sharon-and-steve-salz/) - [Lewis Sanderow](https://thegfpd.org/donators/lewis-sanderow/) - [Mary M. Sanders](https://thegfpd.org/donators/mary-m-sanders/) - [Tre Santamaria](https://thegfpd.org/donators/tre-santamaria/) - [Trekeith Santamaria](https://thegfpd.org/donators/trekeith-santamaria/) - [Meghan Santos](https://thegfpd.org/donators/meghan-santos/) - [Amanda Sappington](https://thegfpd.org/donators/amanda-sappington/) - [Fredrik Sarnblad](https://thegfpd.org/donators/fredrik-sarnblad/) - [Hannah Sievers](https://thegfpd.org/donators/hannah-sievers/) - [Marc Silber](https://thegfpd.org/donators/marc-silber/) - [Sheryl Silberstein](https://thegfpd.org/donators/sheryl-silberstein/) - [Jessica Simao](https://thegfpd.org/donators/jessica-simao/) - [Nelly Johana Simbaqueba](https://thegfpd.org/donators/nelly-johana-simbaqueba/) - [Rhonda Simonson](https://thegfpd.org/donators/rhonda-simonson/) - [Bonnie Simpson](https://thegfpd.org/donators/bonnie-simpson/) - [Katie Simpson](https://thegfpd.org/donators/katie-simpson/) - [Jeri Peters](https://thegfpd.org/donators/jeri-peters/) - [Dave & Jeri Peters](https://thegfpd.org/donators/dave-jeri-peters/) - [Sarah Petersons](https://thegfpd.org/donators/sarah-petersons/) - [Kristi Petri](https://thegfpd.org/donators/kristi-petri/) - [Donna Phelps](https://thegfpd.org/donators/donna-phelps/) - [Dionne Phillips](https://thegfpd.org/donators/dionne-phillips/) - [Eileen Piantedosi](https://thegfpd.org/donators/eileen-piantedosi/) - [Brian Plath](https://thegfpd.org/donators/brian-plath/) - [Arianna Reeves](https://thegfpd.org/donators/arianna-reeves/) - [Jennifer Reimer](https://thegfpd.org/donators/jennifer-reimer/) - [Kristine Relitz](https://thegfpd.org/donators/kristine-relitz/) - [Michael Remmes](https://thegfpd.org/donators/michael-remmes/) - [Tamarra Rennick Bernstein](https://thegfpd.org/donators/tamarra-rennick-bernstein/) - [Kristen Renzi](https://thegfpd.org/donators/kristen-renzi/) - [Julie Reynolds](https://thegfpd.org/donators/julie-reynolds/) - [Sue Steeve](https://thegfpd.org/donators/sue-steeve/) - [Brenda Stein](https://thegfpd.org/donators/brenda-stein/) - [Kathleen Steinchen](https://thegfpd.org/donators/kathleen-steinchen/) - [Betty Steinlicht](https://thegfpd.org/donators/betty-steinlicht/) - [Mary Stephens](https://thegfpd.org/donators/mary-stephens/) - [Gregory Stephens](https://thegfpd.org/donators/gregory-stephens/) - [Beth Stern Elgeneidy](https://thegfpd.org/donators/beth-stern-elgeneidy/) - [Janet Stewart](https://thegfpd.org/donators/janet-stewart/) - [Kenneth Oakes](https://thegfpd.org/donators/kenneth-oakes/) - [Dina Oakes](https://thegfpd.org/donators/dina-oakes/) - [Armandina Oakes](https://thegfpd.org/donators/armandina-oakes/) - [Matt and Sandra Obradovich](https://thegfpd.org/donators/matt-and-sandra-obradovich/) - [Carol OBrien](https://thegfpd.org/donators/carol-obrien/) - [Charleigh O'Brien](https://thegfpd.org/donators/charleigh-obrien/) - [Roxanne Runion](https://thegfpd.org/donators/roxanne-runion/) - [Robert Ryan](https://thegfpd.org/donators/robert-ryan/) - [Bob Ryan](https://thegfpd.org/donators/bob-ryan/) - [Megan Ryan](https://thegfpd.org/donators/megan-ryan/) - [Austin Sabin](https://thegfpd.org/donators/austin-sabin/) - [Katie and T ed Sacra](https://thegfpd.org/donators/katie-and-t-ed-sacra/) - [DiAnne Saine](https://thegfpd.org/donators/dianne-saine/) - [Julie Shell](https://thegfpd.org/donators/julie-shell/) - [Paul Sherman](https://thegfpd.org/donators/paul-sherman/) - [Dana Shetley](https://thegfpd.org/donators/dana-shetley/) - [Mandi Shirley](https://thegfpd.org/donators/mandi-shirley/) - [Gretchen Shisler](https://thegfpd.org/donators/gretchen-shisler/) - [Rachel Shrum](https://thegfpd.org/donators/rachel-shrum/) - [Keilah Shumaker](https://thegfpd.org/donators/keilah-shumaker/) - [Darren Sickerson](https://thegfpd.org/donators/darren-sickerson/) - [Roberta Penn](https://thegfpd.org/donators/roberta-penn/) - [Judith Pennock](https://thegfpd.org/donators/judith-pennock/) - [Christi Pepe](https://thegfpd.org/donators/christi-pepe/) - [Amalia Pepek](https://thegfpd.org/donators/amalia-pepek/) - [Zak Perry](https://thegfpd.org/donators/zak-perry/) - [Jamie Pesso](https://thegfpd.org/donators/jamie-pesso/) - [Louise Peterman](https://thegfpd.org/donators/louise-peterman/) - [Pete Read](https://thegfpd.org/donators/pete-read/) - [Redbird Property Management Inc](https://thegfpd.org/donators/redbird-property-management-inc/) - [Jennifer Redd](https://thegfpd.org/donators/jennifer-redd/) - [T odd Redilla](https://thegfpd.org/donators/t-odd-redilla/) - [Judith Redilla](https://thegfpd.org/donators/judith-redilla/) - [Karen Reed](https://thegfpd.org/donators/karen-reed/) - [Rachel Reed](https://thegfpd.org/donators/rachel-reed/) - [Chris Rees](https://thegfpd.org/donators/chris-rees/) - [Micki Rubinstein](https://thegfpd.org/donators/micki-rubinstein/) - [Starcrest Cleaners](https://thegfpd.org/donators/starcrest-cleaners/) - [Kyle Stark](https://thegfpd.org/donators/kyle-stark/) - [Stark Excavating, Inc.](https://thegfpd.org/donators/stark-excavating-inc/) - [John North](https://thegfpd.org/donators/john-north/) - [Cindy Nourie](https://thegfpd.org/donators/cindy-nourie/) - [Cindy Nourie](https://thegfpd.org/donators/cindy-nourie-2/) - [Cindy Nowak](https://thegfpd.org/donators/cindy-nowak/) - [Cynthia Nowak](https://thegfpd.org/donators/cynthia-nowak/) - [James Nussbaum](https://thegfpd.org/donators/james-nussbaum/) - [Hillary Nussbaum](https://thegfpd.org/donators/hillary-nussbaum/) - [Kurtis Nysmith](https://thegfpd.org/donators/kurtis-nysmith/) - [Mary Penn](https://thegfpd.org/donators/mary-penn/) - [Alan Sender](https://thegfpd.org/donators/alan-sender/) - [Paul Serotkin](https://thegfpd.org/donators/paul-serotkin/) - [Melissa Serotkin](https://thegfpd.org/donators/melissa-serotkin/) - [Hallie Sharp](https://thegfpd.org/donators/hallie-sharp/) - [Mary Sharrow](https://thegfpd.org/donators/mary-sharrow/) - [Amanda Shear](https://thegfpd.org/donators/amanda-shear/) - [Mandy Shear](https://thegfpd.org/donators/mandy-shear/) - [Elizabeth Sheehan](https://thegfpd.org/donators/elizabeth-sheehan/) - [Rebecca Stack](https://thegfpd.org/donators/rebecca-stack/) - [Rose Stadel](https://thegfpd.org/donators/rose-stadel/) - [Ashley Stahl](https://thegfpd.org/donators/ashley-stahl/) - [John Stamm](https://thegfpd.org/donators/john-stamm/) - [Kylea Stanton](https://thegfpd.org/donators/kylea-stanton/) - [Kristen Rainer](https://thegfpd.org/donators/kristen-rainer/) - [Duane Ralston](https://thegfpd.org/donators/duane-ralston/) - [Ann Randall](https://thegfpd.org/donators/ann-randall/) - [Helen Rarick](https://thegfpd.org/donators/helen-rarick/) - [Nundhini Ravi](https://thegfpd.org/donators/nundhini-ravi/) - [Diana Ropp](https://thegfpd.org/donators/diana-ropp/) - [Ray Ropp](https://thegfpd.org/donators/ray-ropp/) - [Holly Rosenthal](https://thegfpd.org/donators/holly-rosenthal/) - [Rosie's Pub](https://thegfpd.org/donators/rosies-pub/) - [Frances Ross](https://thegfpd.org/donators/frances-ross/) - [Cindy Rousey](https://thegfpd.org/donators/cindy-rousey/) - [James Ruane](https://thegfpd.org/donators/james-ruane/) - [Nancy Ruane](https://thegfpd.org/donators/nancy-ruane/) - [Lola Nogueira](https://thegfpd.org/donators/lola-nogueira/) - [Nancy and Bob Noll](https://thegfpd.org/donators/nancy-and-bob-noll/) - [Kim and Kenny Noll](https://thegfpd.org/donators/kim-and-kenny-noll/) - [Normal Parks & Rec](https://thegfpd.org/donators/normal-parks-rec/) - [Peach State Truck Centers](https://thegfpd.org/donators/peach-state-truck-centers/) - [Carrigan Peak](https://thegfpd.org/donators/carrigan-peak/) - [Antwain Peaks](https://thegfpd.org/donators/antwain-peaks/) - [Laura Pearson](https://thegfpd.org/donators/laura-pearson/) - [Lindsay Peck](https://thegfpd.org/donators/lindsay-peck/) - [Emily Pecot](https://thegfpd.org/donators/emily-pecot/) - [Michael Peege](https://thegfpd.org/donators/michael-peege/) - [Abby Pelster](https://thegfpd.org/donators/abby-pelster/) - [Andrew Rabe](https://thegfpd.org/donators/andrew-rabe/) - [Linda Rader](https://thegfpd.org/donators/linda-rader/) - [Rader Family Farms LLC](https://thegfpd.org/donators/rader-family-farms-llc/) - [Carl Sneed](https://thegfpd.org/donators/carl-sneed/) - [Gretchen Snow](https://thegfpd.org/donators/gretchen-snow/) - [Jamie Soper](https://thegfpd.org/donators/jamie-soper/) - [Barbara Sorensen](https://thegfpd.org/donators/barbara-sorensen/) - [Jim Spachman](https://thegfpd.org/donators/jim-spachman/) - [Melissa Spaur](https://thegfpd.org/donators/melissa-spaur/) - [Van Spence](https://thegfpd.org/donators/van-spence/) - [Beau Spillane](https://thegfpd.org/donators/beau-spillane/) - [Kristine Spreen](https://thegfpd.org/donators/kristine-spreen/) - [Kathleen Nixon](https://thegfpd.org/donators/kathleen-nixon/) - [No Laying Up](https://thegfpd.org/donators/no-laying-up/) - [Daniel Noa](https://thegfpd.org/donators/daniel-noa/) - [Amanda Noascono](https://thegfpd.org/donators/amanda-noascono/) - [Laura Schwieterman](https://thegfpd.org/donators/laura-schwieterman/) - [Leslie Scola](https://thegfpd.org/donators/leslie-scola/) - [Abby Scott](https://thegfpd.org/donators/abby-scott/) - [Rubee Scrivani](https://thegfpd.org/donators/rubee-scrivani/) - [Elizabeth Sederstrom](https://thegfpd.org/donators/elizabeth-sederstrom/) - [Sue Seibring](https://thegfpd.org/donators/sue-seibring/) - [Steve Seibring](https://thegfpd.org/donators/steve-seibring/) - [BettySandraRob Smith](https://thegfpd.org/donators/bettysandrarob-smith/) - [Matthew Smith](https://thegfpd.org/donators/matthew-smith/) - [Nicole Smith](https://thegfpd.org/donators/nicole-smith/) - [Grace Smith](https://thegfpd.org/donators/grace-smith/) - [Verda Smith](https://thegfpd.org/donators/verda-smith/) - [Jimmy Smith](https://thegfpd.org/donators/jimmy-smith/) - [Ryan Smith](https://thegfpd.org/donators/ryan-smith/) - [Debbie Rogalla](https://thegfpd.org/donators/debbie-rogalla/) - [Rohrer Agency, LLC](https://thegfpd.org/donators/rohrer-agency-llc/) - [Cassandra D. Root](https://thegfpd.org/donators/cassandra-d-root/) - [Keri Roper](https://thegfpd.org/donators/keri-roper/) - [Carol Ropp](https://thegfpd.org/donators/carol-ropp/) - [Megan Schram](https://thegfpd.org/donators/megan-schram/) - [Eve Schroeder](https://thegfpd.org/donators/eve-schroeder/) - [Kevin Schultz](https://thegfpd.org/donators/kevin-schultz/) - [Gloria Schuth](https://thegfpd.org/donators/gloria-schuth/) - [Jennifer Schutter](https://thegfpd.org/donators/jennifer-schutter/) - [Schwab Charitable](https://thegfpd.org/donators/schwab-charitable/) - [Cassandra Schwartz](https://thegfpd.org/donators/cassandra-schwartz/) - [Carrie Schweikart](https://thegfpd.org/donators/carrie-schweikart/) - [Diane Schwelle](https://thegfpd.org/donators/diane-schwelle/) - [Linda Roberts](https://thegfpd.org/donators/linda-roberts/) - [Jen Roberts](https://thegfpd.org/donators/jen-roberts/) - [Benjamin Roberts](https://thegfpd.org/donators/benjamin-roberts/) - [Vickie Robertson](https://thegfpd.org/donators/vickie-robertson/) - [Kelly Robertson](https://thegfpd.org/donators/kelly-robertson/) - [John Robertson](https://thegfpd.org/donators/john-robertson/) - [Mike Robinson](https://thegfpd.org/donators/mike-robinson/) - [Margaret Roche](https://thegfpd.org/donators/margaret-roche/) - [Jarrett Rodgers](https://thegfpd.org/donators/jarrett-rodgers/) - [Michele Rodgers](https://thegfpd.org/donators/michele-rodgers/) - [Zehn Porter](https://thegfpd.org/donators/zehn-porter/) - [Matt Potts](https://thegfpd.org/donators/matt-potts/) - [Hannah Prange](https://thegfpd.org/donators/hannah-prange/) - [Karen Pratt](https://thegfpd.org/donators/karen-pratt/) - [Lisa Precil](https://thegfpd.org/donators/lisa-precil/) - [Walter and Rebecca Preston](https://thegfpd.org/donators/walter-and-rebecca-preston/) - [Debbie and Ron Price](https://thegfpd.org/donators/debbie-and-ron-price/) - [Sheila Price](https://thegfpd.org/donators/sheila-price/) - [Donna Pritchett](https://thegfpd.org/donators/donna-pritchett/) - [Laura Proctor](https://thegfpd.org/donators/laura-proctor/) - [John and Nancy Pye](https://thegfpd.org/donators/john-and-nancy-pye/) - [Sally Pyne](https://thegfpd.org/donators/sally-pyne/) - [Brenda Quinn](https://thegfpd.org/donators/brenda-quinn/) - [Christine Quinn](https://thegfpd.org/donators/christine-quinn/) - [Suzanne Quinn](https://thegfpd.org/donators/suzanne-quinn/) - [Hilary Ritchie](https://thegfpd.org/donators/hilary-ritchie/) - [Casey Palmer](https://thegfpd.org/donators/casey-palmer/) - [Evan Pardue](https://thegfpd.org/donators/evan-pardue/) - [Parker](https://thegfpd.org/donators/parker/) - [Parkway Auto Laundry](https://thegfpd.org/donators/parkway-auto-laundry/) - [Marcy Parnes](https://thegfpd.org/donators/marcy-parnes/) - [Emma Partridge](https://thegfpd.org/donators/emma-partridge/) - [Jeff and T erry Paskey](https://thegfpd.org/donators/jeff-and-t-erry-paskey/) - [Pastor](https://thegfpd.org/donators/pastor/) - [Saurabh Patel](https://thegfpd.org/donators/saurabh-patel/) - [Sayna Patel](https://thegfpd.org/donators/sayna-patel/) - [Beverly Patton](https://thegfpd.org/donators/beverly-patton/) - [Amy Paxton](https://thegfpd.org/donators/amy-paxton/) - [Elizabeth Poppe](https://thegfpd.org/donators/elizabeth-poppe/) - [Stacey Nelson](https://thegfpd.org/donators/stacey-nelson/) - [Joseph Nemeth](https://thegfpd.org/donators/joseph-nemeth/) - [Russell Neumann](https://thegfpd.org/donators/russell-neumann/) - [Leah Nevett](https://thegfpd.org/donators/leah-nevett/) - [Maria and Sam Newton](https://thegfpd.org/donators/maria-and-sam-newton/) - [Phong Nguyen](https://thegfpd.org/donators/phong-nguyen/) - [Trista Nichols](https://thegfpd.org/donators/trista-nichols/) - [Sharon and Stan Nielsen](https://thegfpd.org/donators/sharon-and-stan-nielsen/) - [Phil Niemi](https://thegfpd.org/donators/phil-niemi/) - [Frank And Kathy Niepagen](https://thegfpd.org/donators/frank-and-kathy-niepagen/) - [Kathy Niepagen](https://thegfpd.org/donators/kathy-niepagen/) - [Kathy Nixon](https://thegfpd.org/donators/kathy-nixon/) - [One Mission Fundraising Inc.](https://thegfpd.org/donators/one-mission-fundraising-inc/) - [Shannan Orender](https://thegfpd.org/donators/shannan-orender/) - [Emily O'Sullivan](https://thegfpd.org/donators/emily-osullivan/) - [John O'T oole](https://thegfpd.org/donators/john-ot-oole/) - [Courtney Mumm](https://thegfpd.org/donators/courtney-mumm/) - [Don Munson](https://thegfpd.org/donators/don-munson/) - [Derek Munson](https://thegfpd.org/donators/derek-munson/) - [Amanda Murawski](https://thegfpd.org/donators/amanda-murawski/) - [Michelle Murdock](https://thegfpd.org/donators/michelle-murdock/) - [Nanci Murphy](https://thegfpd.org/donators/nanci-murphy/) - [Carrie Mustard](https://thegfpd.org/donators/carrie-mustard/) - [Ken Myszka](https://thegfpd.org/donators/ken-myszka/) - [Ryen Nagle](https://thegfpd.org/donators/ryen-nagle/) - [Sandra NanceLeeAnn Nash](https://thegfpd.org/donators/sandra-nanceleeann-nash/) - [Aja Nathans](https://thegfpd.org/donators/aja-nathans/) - [Gayle Nauman-Cole](https://thegfpd.org/donators/gayle-nauman-cole/) - [Social Committee Needham High School](https://thegfpd.org/donators/social-committee-needham-high-school/) - [Laura Moseley](https://thegfpd.org/donators/laura-moseley/) - [Joyce Moser](https://thegfpd.org/donators/joyce-moser/) - [Howard Mount](https://thegfpd.org/donators/howard-mount/) - [Mountain Comprehensive Care Center](https://thegfpd.org/donators/mountain-comprehensive-care-center/) - [Luke Mraz](https://thegfpd.org/donators/luke-mraz/) - [Denise Muehleck](https://thegfpd.org/donators/denise-muehleck/) - [Jeffrey Mueller](https://thegfpd.org/donators/jeffrey-mueller/) - [Philippe Muller](https://thegfpd.org/donators/philippe-muller/) - [Kathleen Mulligan](https://thegfpd.org/donators/kathleen-mulligan/) - [T oni and Leon Mullins](https://thegfpd.org/donators/t-oni-and-leon-mullins/) - [Heather Mullins](https://thegfpd.org/donators/heather-mullins/) - [Irene Mullins](https://thegfpd.org/donators/irene-mullins/) - [Sena McLellan](https://thegfpd.org/donators/sena-mclellan/) - [Shaylin McNally](https://thegfpd.org/donators/shaylin-mcnally/) - [Amy McNatt](https://thegfpd.org/donators/amy-mcnatt/) - [Laura McNicholas](https://thegfpd.org/donators/laura-mcnicholas/) - [David McQuillan](https://thegfpd.org/donators/david-mcquillan/) - [Heather McSwiggin](https://thegfpd.org/donators/heather-mcswiggin/) - [Hannah Meece](https://thegfpd.org/donators/hannah-meece/) - [Robert Meeker](https://thegfpd.org/donators/robert-meeker/) - [Lynette Mehall](https://thegfpd.org/donators/lynette-mehall/) - [Scott Meiss](https://thegfpd.org/donators/scott-meiss/) - [Matthew Melick](https://thegfpd.org/donators/matthew-melick/) - [Mellondorf, LLC](https://thegfpd.org/donators/mellondorf-llc/) - [Karen Morris](https://thegfpd.org/donators/karen-morris/) - [David Morris](https://thegfpd.org/donators/david-morris/) - [Susy Marcum](https://thegfpd.org/donators/susy-marcum/) - [Nancy Marcum](https://thegfpd.org/donators/nancy-marcum/) - [Matthew Mardis](https://thegfpd.org/donators/matthew-mardis/) - [Marla McElroy](https://thegfpd.org/donators/marla-mcelroy/) - [Cathy McFadin](https://thegfpd.org/donators/cathy-mcfadin/) - [Tiffany McFarland](https://thegfpd.org/donators/tiffany-mcfarland/) - [Jo Ann McGee](https://thegfpd.org/donators/jo-ann-mcgee/) - [Faith McGinn](https://thegfpd.org/donators/faith-mcginn/) - [Mike McGivern & Dana Gish](https://thegfpd.org/donators/mike-mcgivern-dana-gish/) - [Becky McIlwain](https://thegfpd.org/donators/becky-mcilwain/) - [John and Lorraine McIntyre](https://thegfpd.org/donators/john-and-lorraine-mcintyre/) - [Shannon McKay](https://thegfpd.org/donators/shannon-mckay/) - [Amy McLaine](https://thegfpd.org/donators/amy-mclaine/) - [Shawn McLaine](https://thegfpd.org/donators/shawn-mclaine/) - [McLean County Asphalt Co. Inc.](https://thegfpd.org/donators/mclean-county-asphalt-co-inc/) - [John and Betty MacLean](https://thegfpd.org/donators/john-and-betty-maclean/) - [Donna and Michael Maddin](https://thegfpd.org/donators/donna-and-michael-maddin/) - [Tanette Maffei](https://thegfpd.org/donators/tanette-maffei/) - [Dan Maffeo](https://thegfpd.org/donators/dan-maffeo/) - [Taylor Magill](https://thegfpd.org/donators/taylor-magill/) - [Elizabeth Majerus](https://thegfpd.org/donators/elizabeth-majerus/) - [Ankush Malhotra](https://thegfpd.org/donators/ankush-malhotra/) - [Elizabeth Malone](https://thegfpd.org/donators/elizabeth-malone/) - [Diane Mankus](https://thegfpd.org/donators/diane-mankus/) - [Katey Mankus](https://thegfpd.org/donators/katey-mankus/) - [Michelle Manley](https://thegfpd.org/donators/michelle-manley/) - [Lydia Maple](https://thegfpd.org/donators/lydia-maple/) - [Christine Maple](https://thegfpd.org/donators/christine-maple/) - [Jessica March](https://thegfpd.org/donators/jessica-march/) - [Dorothy Marcic](https://thegfpd.org/donators/dorothy-marcic/) - [Maria Lennon](https://thegfpd.org/donators/maria-lennon/) - [Dana Levins](https://thegfpd.org/donators/dana-levins/) - [Judith and William Lewis](https://thegfpd.org/donators/judith-and-william-lewis/) - [Christy Lewis](https://thegfpd.org/donators/christy-lewis/) - [Melissa Libert](https://thegfpd.org/donators/melissa-libert/) - [Debbie Lindberg](https://thegfpd.org/donators/debbie-lindberg/) - [Thomas Lindsey](https://thegfpd.org/donators/thomas-lindsey/) - [Thomas Lindsey](https://thegfpd.org/donators/thomas-lindsey-2/) - [Tracey Lindstedt](https://thegfpd.org/donators/tracey-lindstedt/) - [Jeremiah and Joan Lynch](https://thegfpd.org/donators/jeremiah-and-joan-lynch/) - [gracie lynne](https://thegfpd.org/donators/gracie-lynne/) - [Abigail Lyons](https://thegfpd.org/donators/abigail-lyons/) - [Abby Lyons](https://thegfpd.org/donators/abby-lyons/) - [Karla MacDonald](https://thegfpd.org/donators/karla-macdonald/) - [Michael Mack](https://thegfpd.org/donators/michael-mack/) - [Sue and Pat Larkin](https://thegfpd.org/donators/sue-and-pat-larkin/) - [Roxanne Hai Lash](https://thegfpd.org/donators/roxanne-hai-lash/) - [Donna Lawall](https://thegfpd.org/donators/donna-lawall/) - [Sharon Lawlis](https://thegfpd.org/donators/sharon-lawlis/) - [Sharon Lawlis](https://thegfpd.org/donators/sharon-lawlis-2/) - [Lisa Lay](https://thegfpd.org/donators/lisa-lay/) - [LB Studio Photography](https://thegfpd.org/donators/lb-studio-photography/) - [Eunice Lee](https://thegfpd.org/donators/eunice-lee/) - [Grant Lehman](https://thegfpd.org/donators/grant-lehman/) - [Tim Leighton](https://thegfpd.org/donators/tim-leighton/) - [Greg Lemenchick](https://thegfpd.org/donators/greg-lemenchick/) - [Alyx Lennon](https://thegfpd.org/donators/alyx-lennon/) - [Mallory Kiick](https://thegfpd.org/donators/mallory-kiick/) - [John Kim](https://thegfpd.org/donators/john-kim/) - [Nolan King](https://thegfpd.org/donators/nolan-king/) - [Janet King](https://thegfpd.org/donators/janet-king/) - [Scott Kinsell](https://thegfpd.org/donators/scott-kinsell/) - [John Kirincich](https://thegfpd.org/donators/john-kirincich/) - [Jake Kirk](https://thegfpd.org/donators/jake-kirk/) - [Natasha Kirk](https://thegfpd.org/donators/natasha-kirk/) - [Jacob Lane](https://thegfpd.org/donators/jacob-lane/) - [Rexie Lanier](https://thegfpd.org/donators/rexie-lanier/) - [June Lanoue](https://thegfpd.org/donators/june-lanoue/) - [Sheryl Keenan](https://thegfpd.org/donators/sheryl-keenan/) - [Denise Kelleher](https://thegfpd.org/donators/denise-kelleher/) - [Jill Keller](https://thegfpd.org/donators/jill-keller/) - [Katie Kelley](https://thegfpd.org/donators/katie-kelley/) - [Kemp's Upper Tap](https://thegfpd.org/donators/kemps-upper-tap/) - [Elizabeth Kent](https://thegfpd.org/donators/elizabeth-kent/) - [A. Raymond Kerr](https://thegfpd.org/donators/a-raymond-kerr/) - [Cody Ketelsen](https://thegfpd.org/donators/cody-ketelsen/) - [Carol Khouri](https://thegfpd.org/donators/carol-khouri/) - [Michelle Kiesewetter](https://thegfpd.org/donators/michelle-kiesewetter/) - [Jennifer Jarboe](https://thegfpd.org/donators/jennifer-jarboe/) - [Jenni's Salon & Spa](https://thegfpd.org/donators/jennis-salon-spa/) - [Josh Kauten](https://thegfpd.org/donators/josh-kauten/) - [Josh Kauten](https://thegfpd.org/donators/josh-kauten-2/) - [Karmy Kays](https://thegfpd.org/donators/karmy-kays/) - [Mitchell Keadle](https://thegfpd.org/donators/mitchell-keadle/) - [Lucy Kearns](https://thegfpd.org/donators/lucy-kearns/) - [Larry Keeley](https://thegfpd.org/donators/larry-keeley/) - [Sara Hyerdall](https://thegfpd.org/donators/sara-hyerdall/) - [Catherine Iadovito](https://thegfpd.org/donators/catherine-iadovito/) - [Illinois Wesleyan University Athletics](https://thegfpd.org/donators/illinois-wesleyan-university-athletics/) - [Lisa Indelicato](https://thegfpd.org/donators/lisa-indelicato/) - [April Ingram](https://thegfpd.org/donators/april-ingram/) - [Kate Ippolito](https://thegfpd.org/donators/kate-ippolito/) - [Ironwood Golf Course](https://thegfpd.org/donators/ironwood-golf-course/) - [Tracy Isom](https://thegfpd.org/donators/tracy-isom/) - [Laura Jaarsma](https://thegfpd.org/donators/laura-jaarsma/) - [Susan Jablonski](https://thegfpd.org/donators/susan-jablonski/) - [Ashley Jacobson](https://thegfpd.org/donators/ashley-jacobson/) - [Helen Jaeger](https://thegfpd.org/donators/helen-jaeger/) - [Myca James](https://thegfpd.org/donators/myca-james/) - [Jack Jan](https://thegfpd.org/donators/jack-jan/) - [Preston Moore](https://thegfpd.org/donators/preston-moore/) - [Amy Moore](https://thegfpd.org/donators/amy-moore/) - [Steve Morowsky](https://thegfpd.org/donators/steve-morowsky/) - [Chuck and Sue Hurliman](https://thegfpd.org/donators/chuck-and-sue-hurliman/) - [Jessica Hurst](https://thegfpd.org/donators/jessica-hurst/) - [Jill Hutchison](https://thegfpd.org/donators/jill-hutchison/) - [Renee Hutchison](https://thegfpd.org/donators/renee-hutchison/) - [Jill Hutchison](https://thegfpd.org/donators/jill-hutchison-2/) - [Renee Hutchison](https://thegfpd.org/donators/renee-hutchison-2/) - [Bruce Hutton](https://thegfpd.org/donators/bruce-hutton/) - [Jackie Hux](https://thegfpd.org/donators/jackie-hux/) - [Katy Maynard](https://thegfpd.org/donators/katy-maynard/) - [Larry McCallum](https://thegfpd.org/donators/larry-mccallum/) - [L.W. McCallum](https://thegfpd.org/donators/l-w-mccallum/) - [Michele McCarthy](https://thegfpd.org/donators/michele-mccarthy/) - [Marialys McClellan](https://thegfpd.org/donators/marialys-mcclellan/) - [Debbie McDermott](https://thegfpd.org/donators/debbie-mcdermott/) - [Claria McEldowney](https://thegfpd.org/donators/claria-mceldowney/) - [Denise Montagna](https://thegfpd.org/donators/denise-montagna/) - [Joyce Montgomery](https://thegfpd.org/donators/joyce-montgomery/) - [Dorothy Moody](https://thegfpd.org/donators/dorothy-moody/) - [Pete Moore](https://thegfpd.org/donators/pete-moore/) - [Richard Moore](https://thegfpd.org/donators/richard-moore/) - [Joseph Lamparyk](https://thegfpd.org/donators/joseph-lamparyk/) - [LeeAnna Landrum](https://thegfpd.org/donators/leeanna-landrum/) - [Sallie Lowery](https://thegfpd.org/donators/sallie-lowery/) - [Maria Lubick](https://thegfpd.org/donators/maria-lubick/) - [Lucca Grill](https://thegfpd.org/donators/lucca-grill/) - [T yler Lueck](https://thegfpd.org/donators/t-yler-lueck/) - [Richard and Elizabeth Luedke](https://thegfpd.org/donators/richard-and-elizabeth-luedke/) - [Dick Luedke](https://thegfpd.org/donators/dick-luedke/) - [Carl Luft](https://thegfpd.org/donators/carl-luft/) - [Lauren Lurkins](https://thegfpd.org/donators/lauren-lurkins/) - [Joseph Mayberry](https://thegfpd.org/donators/joseph-mayberry/) - [Denise Kaufman](https://thegfpd.org/donators/denise-kaufman/) - [Heather Kaufman](https://thegfpd.org/donators/heather-kaufman/) - [Jason Labadie](https://thegfpd.org/donators/jason-labadie/) - [Rachel Laing](https://thegfpd.org/donators/rachel-laing/) - [Tammy and Phil LaMaire](https://thegfpd.org/donators/tammy-and-phil-lamaire/) - [Janelle Lamb](https://thegfpd.org/donators/janelle-lamb/) - [Crista Lambert](https://thegfpd.org/donators/crista-lambert/) - [Haley Lamborn](https://thegfpd.org/donators/haley-lamborn/) - [Lloyd Hulit](https://thegfpd.org/donators/lloyd-hulit/) - [Stephanie Hulseberg](https://thegfpd.org/donators/stephanie-hulseberg/) - [Katherine Kaiser](https://thegfpd.org/donators/katherine-kaiser/) - [Alexis Kalish](https://thegfpd.org/donators/alexis-kalish/) - [Chad Kallal](https://thegfpd.org/donators/chad-kallal/) - [Liz Kambeitz](https://thegfpd.org/donators/liz-kambeitz/) - [Yvonne Kaminski](https://thegfpd.org/donators/yvonne-kaminski/) - [Colleen Kannaday](https://thegfpd.org/donators/colleen-kannaday/) - [Megina Mittleberg](https://thegfpd.org/donators/megina-mittleberg/) - [Lisa Mogelnicki](https://thegfpd.org/donators/lisa-mogelnicki/) - [Ryan Hubschmitt](https://thegfpd.org/donators/ryan-hubschmitt/) - [Steffany Hudson](https://thegfpd.org/donators/steffany-hudson/) - [Marty Hues](https://thegfpd.org/donators/marty-hues/) - [Jessica Hughes](https://thegfpd.org/donators/jessica-hughes/) - [Lori S. Hughes](https://thegfpd.org/donators/lori-s-hughes/) - [Janet Hughes](https://thegfpd.org/donators/janet-hughes/) - [Ben Matthews](https://thegfpd.org/donators/ben-matthews/) - [Chris Matuska](https://thegfpd.org/donators/chris-matuska/) - [Jeffrey Mavros](https://thegfpd.org/donators/jeffrey-mavros/) - [Julie Maxfield](https://thegfpd.org/donators/julie-maxfield/) - [Brian Miller](https://thegfpd.org/donators/brian-miller/) - [Linda Miller](https://thegfpd.org/donators/linda-miller/) - [Phyllis Miller](https://thegfpd.org/donators/phyllis-miller/) - [Morgan Miller](https://thegfpd.org/donators/morgan-miller/) - [Dawn Miller](https://thegfpd.org/donators/dawn-miller/) - [Megina & Hy Mittleberg](https://thegfpd.org/donators/megina-hy-mittleberg/) - [Susan Losapio](https://thegfpd.org/donators/susan-losapio/) - [Suzanne Louderman](https://thegfpd.org/donators/suzanne-louderman/) - [Jay Lovett](https://thegfpd.org/donators/jay-lovett/) - [Rhonda Massie](https://thegfpd.org/donators/rhonda-massie/) - [Michael Matejka](https://thegfpd.org/donators/michael-matejka/) - [Pierson Matejovsky](https://thegfpd.org/donators/pierson-matejovsky/) - [Elizabeth Matoka](https://thegfpd.org/donators/elizabeth-matoka/) - [Andrea Kuenzli](https://thegfpd.org/donators/andrea-kuenzli/) - [Taylor Kuenzli](https://thegfpd.org/donators/taylor-kuenzli/) - [Heather Kulisek](https://thegfpd.org/donators/heather-kulisek/) - [Brett Kurtenbach](https://thegfpd.org/donators/brett-kurtenbach/) - [Catherine Kussmann](https://thegfpd.org/donators/catherine-kussmann/) - [Patrick Loftus](https://thegfpd.org/donators/patrick-loftus/) - [Deena Long](https://thegfpd.org/donators/deena-long/) - [Brandon Long](https://thegfpd.org/donators/brandon-long/) - [Lisa Long](https://thegfpd.org/donators/lisa-long/) - [Andrew and Maria Longenecker](https://thegfpd.org/donators/andrew-and-maria-longenecker/) - [William Jones](https://thegfpd.org/donators/william-jones/) - [Lori Jones](https://thegfpd.org/donators/lori-jones/) - [Katie Jones](https://thegfpd.org/donators/katie-jones/) - [Keisha Jordan](https://thegfpd.org/donators/keisha-jordan/) - [Aaron Jorgensen](https://thegfpd.org/donators/aaron-jorgensen/) - [Creekside Junction](https://thegfpd.org/donators/creekside-junction/) - [Paul Kabbes](https://thegfpd.org/donators/paul-kabbes/) - [Jeanette Krone](https://thegfpd.org/donators/jeanette-krone/) - [Jill Kronk](https://thegfpd.org/donators/jill-kronk/) - [Alexis Kuch](https://thegfpd.org/donators/alexis-kuch/) - [Greg Meyer](https://thegfpd.org/donators/greg-meyer/) - [Alayne Meyer](https://thegfpd.org/donators/alayne-meyer/) - [Meta Mickens-Baker](https://thegfpd.org/donators/meta-mickens-baker/) - [Michael Mihm](https://thegfpd.org/donators/michael-mihm/) - [Brian Houchin](https://thegfpd.org/donators/brian-houchin/) - [Brian Houchin](https://thegfpd.org/donators/brian-houchin-2/) - [Robert Gregory Hougham](https://thegfpd.org/donators/robert-gregory-hougham/) - [Greg Hougham](https://thegfpd.org/donators/greg-hougham/) - [Marie Houghton](https://thegfpd.org/donators/marie-houghton/) - [Traci Howe](https://thegfpd.org/donators/traci-howe/) - [Ronald Hrad](https://thegfpd.org/donators/ronald-hrad/) - [Selby Hubbard](https://thegfpd.org/donators/selby-hubbard/) - [Elise Jones](https://thegfpd.org/donators/elise-jones/) - [Victoria and David Marshall](https://thegfpd.org/donators/victoria-and-david-marshall/) - [Jeff Marshall](https://thegfpd.org/donators/jeff-marshall/) - [Jason Martin](https://thegfpd.org/donators/jason-martin/) - [Karen Martin](https://thegfpd.org/donators/karen-martin/) - [Alyssa Martin](https://thegfpd.org/donators/alyssa-martin/) - [Martin's Furniture](https://thegfpd.org/donators/martins-furniture/) - [Nancy Massie](https://thegfpd.org/donators/nancy-massie/) - [Mendenhall](https://thegfpd.org/donators/mendenhall/) - [Susan Merryman](https://thegfpd.org/donators/susan-merryman/) - [Nikole Merse](https://thegfpd.org/donators/nikole-merse/) - [Gina Messamer](https://thegfpd.org/donators/gina-messamer/) - [Little Creek Barn Weddings & Events](https://thegfpd.org/donators/little-creek-barn-weddings-events/) - [Brenda Lloyd](https://thegfpd.org/donators/brenda-lloyd/) - [Lisa Lochner](https://thegfpd.org/donators/lisa-lochner/) ## Portfolio - [Lookbook Summer](https://thegfpd.org/featured_item/lookbook-summer/) - Lorem ipsum dolor sit amet, consectetuer adipiscing elit, sed diam nonummy nibh euismod tincidunt ut laoreet dolore magna aliquam erat volutpat. - [Another Print Package](https://thegfpd.org/featured_item/another-print-package/) - Lorem ipsum dolor sit amet, consectetuer adipiscing elit, sed diam nonummy nibh euismod tincidunt ut laoreet dolore magna aliquam erat volutpat. - [FL3 Print Package](https://thegfpd.org/featured_item/fl3-print-package/) - Lorem ipsum dolor sit amet, consectetuer adipiscing elit, sed diam nonummy nibh euismod tincidunt ut laoreet dolore magna aliquam erat volutpat. - [Awesome Pencil Poster](https://thegfpd.org/featured_item/awesome-pencil-poster/) - Lorem ipsum dolor sit amet, consectetuer adipiscing elit, sed diam nonummy nibh euismod tincidunt ut laoreet dolore magna aliquam erat volutpat - [Portfolio typography](https://thegfpd.org/featured_item/portfolio-typography/) - Lorem ipsum dolor sit amet, consectetuer adipiscing elit, sed diam nonummy nibh euismod tincidunt ut laoreet dolore magna aliquam erat volutpat. - [Flatsome Poster Print](https://thegfpd.org/featured_item/flatsome-poster-print/) - Lorem ipsum dolor sit amet, consectetuer adipiscing elit, sed diam nonummy nibh euismod tincidunt ut laoreet dolore magna aliquam erat volutpat. - [Magazine](https://thegfpd.org/featured_item/magazine/) - Lorem ipsum dolor sit amet, consectetuer adipiscing elit, sed diam nonummy nibh euismod tincidunt ut laoreet dolore magna aliquam erat volutpat - [Flat T-Shirt Company](https://thegfpd.org/featured_item/flat-t-shirt-company/) - Lorem ipsum dolor sit amet, consectetuer adipiscing elit, sed diam nonummy nibh euismod tincidunt ut laoreet dolore magna aliquam erat volutpat. ## Categories - [Uncategorized](https://thegfpd.org/category/uncategorized/) - [GFPD Family](https://thegfpd.org/category/gfpd-family/) - [Disability Awareness Month](https://thegfpd.org/category/disability-awareness-month/) - [News](https://thegfpd.org/category/news/) - [Blog](https://thegfpd.org/category/blog/) ## Tags - [feeding tube](https://thegfpd.org/tag/feeding-tube/) - feeding tube - [peroxisomal biogenesis disorder](https://thegfpd.org/tag/peroxisomal-biogenesis-disorder/) - peroxisomal biogenesis disorder - [g-tube](https://thegfpd.org/tag/g-tube/) - g-tube - [Family Stories](https://thegfpd.org/tag/family-stories/) - Family Stories - [zellweger syndrome](https://thegfpd.org/tag/zellweger-syndrome/) - zellweger syndrome - [zellweger spectrum disorder](https://thegfpd.org/tag/zellweger-spectrum-disorder/) - zellweger spectrum disorder - [about the disorder](https://thegfpd.org/tag/about-the-disorder/) - about the disorder - [Hues for Hope](https://thegfpd.org/tag/hues-for-hope/) - Hues for Hope - [Event](https://thegfpd.org/tag/event-d29/) - Event - [Fundraiser](https://thegfpd.org/tag/fundraiser-d3/) - Fundraiser - [Family Support](https://thegfpd.org/tag/family-support/) - Family Support - [GFPD Newsletter](https://thegfpd.org/tag/gfpd-newsletter/) - GFPD Newsletter - [Pause For PBD](https://thegfpd.org/tag/pause-for-pbd/) - Pause For PBD - [Family Conference](https://thegfpd.org/tag/family-conference/) - Family Conference - [Scientific Conference](https://thegfpd.org/tag/scientific-conference/) - Scientific Conference - [Research Grants](https://thegfpd.org/tag/research-grants/) - Research Grants - [Research Updates](https://thegfpd.org/tag/research-updates/) - Research Updates - [mouse model](https://thegfpd.org/tag/mouse-model/) - mouse model - [GFPD Families](https://thegfpd.org/tag/gfpd-families/) - GFPD Families - [Rare Disease Communiity News](https://thegfpd.org/tag/rare-disease-communiity-news/) - Rare Disease Communiity News - [F2FC Groups](https://thegfpd.org/tag/f2fc-groups/) ## Product categories - [Uncategorized](https://thegfpd.org/product-category/uncategorized/) ## Pattern Type - [pattern](https://thegfpd.org/?coblocks_pattern_type=pattern) ## Pattern Category - [columns](https://thegfpd.org/?coblocks_pattern_category=columns) ## Donator Levels - [Champions Circle](https://thegfpd.org/donator_level/champions-circle/) - [Community Circle](https://thegfpd.org/donator_level/community-circle/) - [Hope Advocates](https://thegfpd.org/donator_level/hope-advocates/) - [Difference Makers](https://thegfpd.org/donator_level/difference-makers/) ## Portfolio Categories - [Lookbook](https://thegfpd.org/featured_item_category/lookbook/) - [Design](https://thegfpd.org/featured_item_category/design/)