GFPD Sensing Connections Support Group
In partnership, the GFPD and Zellweger UK provide peer-to-peer grief support for parents of individuals with a peroxisomal disorder.
These web-based, peer-to-peer meetings occur each month for 90 minutes and are led by trained facilitators. The purpose of the group is to provide emotional support, death education, and normalization of the grief process in a shared, supportive community.
To learn more, contact us.
Grief Support for Families of Children with Deaf-Blindness
The death of a child can be extremely challenging for a family. Finding resources that fit your needs can help in your healing.
The resources listed below offer an array of information and supports to help you on this journey.
The first resources listed relate to supporting children who are grieving. This is followed by a section of resources related to adult grief support.
In addition, a simple way to find services near you is to Google “grief support center in (city and state).
Many thanks to our friends at the National Center on Deaf Blindness for compiling these resources
Eluna (Originally called the Moyer Foundation)
Eluna provides resources and programs to address the critical needs of children experiencing “powerful, overwhelming and often confusing emotions associated with the death of someone close to them.”
In 2002, the Foundation created Camp Erin, which has grown into the largest free bereavement program for children and teens in the U.S. and Canada, with locations serving children in every Major League Baseball city.
The Resource Center (https://elunanetwork.org/resources/) portion of their website is ideal for parents and educators. It allows you to indicate your role and the type of resources you are looking for.
The Dougy Center
The Dougy Center provides support and training locally, nationally, and internationally to individuals and organizations seeking to assist children in grief.
The center does not charge a fee for its services. Visit their grief support programs page: https://www.dougy.org/grief-support-programs to find a program near you
Articles about Grief and Children
A brief article from The Moyer Foundation listing things to keep in mind when helping a child who is grieving
This article provides information about the emotions experienced by children who have lost a brother or sister and what parents can do to help
Art with Heart
Art with Heart is a nonprofit that helps children and teens overcome trauma through creative expression.
They publish therapeutic art books aimed at kids and teens that can be purchased on their website, offer trainings for service providers,and support partner organizations that run art therapy programs.
The Compassionate Friends
The Compassionate Friends exists to provide friendship, understanding, and hope to those going through the natural grieving process after the death of a child.
The organization has a network of more than 650 chapters with locations in all 50 states as well as Washington DC, Puerto Rico, and Guam. They offer grief support for both parents and siblings.
The MISS Foundation
The MISS Foundation is a volunteer-based organization providing C.A.R.E. (counseling, advocacy, research, and education) services to families experiencing the death of a child.
The foundation has an online support site, face-to-face support groups in some areas, and HOPE Mentors available all over the world.
Their Forums offer an online support group board 24/7, fully moderated for safe space. They have sections for families with specialty information for dads, grandparents, and siblings.
The Center for Loss & Life Transition
The Center for Loss & Life Transition offers training’s for service providers on bereavement care.
They also have a wealth of resources on their website for people who are grieving or helping others (adults or children) who have experienced a loss.