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The Global Foundation for Peroxisomal DisordersThe Global Foundation for Peroxisomal Disorders
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Healthcare screening for babies
The GFPD and the Rare Disease Community Urges States to Take Advantage of Funding to Screen More Babies

The GFPD was one of 12 patient organizations who recently sent a letter urging nine...

08
Apr
Governor Youngkin Announces Addition of Two New Disorders to Virginia’s Newborn Screening Program

RICHMOND, VA – Governor Glenn Youngkin today announced the addition of two new disorders to...

23
Mar
Rare Disease Day

Do you have your colorful stripes ready?! Rare Disease Day is February 28th! For 14...

23
Feb
EveryLife Foundation for Rare Diseases
GFPD Supports Legislation for Newborn Screening in Iowa

HSB 690 /SSB 3122 both passed out of their respective committees in the Iowa State...

20
Feb
The GFPD Supports North Carolina HB 736

https://everylifefoundation.org/voter-voice/?vvsrc=%2fcampaigns%2f80975%2frespond...

11
May
The GFPD advocates for Paid Leave for Family Caregivers Across the Lifespan

Over the past year, millions of family caregivers found themselves needing to isolate or take...

29
Apr
The GFPD advocates for Paid Leave for Family Caregivers Across the Lifespan
April 26, 2021

Over the past year, millions of family caregivers found themselves needing to isolate or take...

The GFPD joins with the TS Alliance to Advocate for Prioritization of Individuals with Rare Diseases and their Caregivers to have Immediate access to COVID-19 Vaccines.

On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy...

25
Mar
The GFPD (along with hundreds of other U.S. nonprofits) advocates for additional 2021 COVID relief, led by the National Council of Nonprofits.

At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be...

22
Mar
The GFPD (along with hundreds of other U.S. nonprofits) advocates for additional 2021 COVID relief, led by the National Council of Nonprofits.
March 2, 2021

At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be...

The GFPD joins with the TS Alliance to Advocate for Prioritization of Individuals with Rare Diseases and their Caregivers to have Immediate access to COVID-19 Vaccines.
February 12, 2021

On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy...

UNMC researcher heads $3.3 million national study

Dr. Rizzo said several of the diseases are so rare that between 500 and 1,000...

03
Feb
Letter: Pause for PBD, think of Ethan

Oct. 5 is a special day for our family as we celebrate Pause for PBD,...

03
Feb
Business Perspective with Melissa Bryce Gamble: Use this checklist to start your nonprofit

Melissa Bryce Gamble is president and co-founder of the Global Foundation for Peroxisomal Disorders, which...

03
Feb
Pause for PBD

Melissa Bryce Gamble shares the story of her daughter Ginny's battle with a peroxisome biogenesis...

03
Feb
Jersey County Journal – Letter to Editor for Pause for PBD

The Jersey County Journal featured a letter to the editor, from Vicky Maag, about our...

03
Feb
A walk for a child with a rare disease in Saint-Quentin

Thomas Thériault, of Saint-Quentin, will celebrate his second birthday on November 24. His community recently...

03
Feb
This unicorn wheelchair costume is truly magical

She's five-years-old, loves all things pink and glitter, and will be sporting a pretty magical...

03
Feb
NJ mom to run Philly marathon to bring attention to rare disease

De Jesus says that it was a specialist in Canada who diagnosed Jaxson with Peroxisomal...

03
Feb
Family makes every moment count with terminal son

Jaxon’s health has had a backslide lately. The hospice nurses hope he will make it...

03
Feb
Texas Parents Calm Baby with Kisses Before Learning He’s Blind: ‘We Didn’t Know What Was Wrong’

Gideon Jolicoeur, 4, was born with a rare condition that impacts his hearing and eyesight...

03
Feb
Champion of the 2017 AmorChem KNOCK OUT event: Team Braverman!

Dr. Braverman’s work focuses on genes responsible for the proper function of peroxisomes, which are...

03
Feb
Newsmaker: Tulsa-based Peroxisomal foundation names director, board

The Tulsa-based Global Foundation for Peroxisomal Disorders has named Melissa Bryce Gamble as its first...

03
Feb
Peoria family promotes Rare Diseases Day for 7-year-old son

It was a horrible diagnosis, but looking back, Pamela Marshall is thankful her son Ethan...

03
Feb
Health on Earth Episode featuring Christine Yergeau of McGill University

McGill graduate, Christine Yergeau sat down with CKUT’s Health on Earth Podcast to discuss peroxisomal...

03
Feb
Kick It For Max

Kick It For MaxA local high school soccer team is helping their coach’s family....

03
Feb

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    GFPD Values

    Our Mission

    To improve the lives of individuals with Peroxisomal Disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

    GFPD Diversity Statement

    Peroxisomal disorders impact individuals of every race, ethnicity, socio-economic status, sex, gender, sexual orientation, belief system, ability, and age. Using our values of inclusion and community as our guide, The GFPD is committed to promoting acceptance and advocating for equality and equity in healthcare and educational settings while combating prejudices, discrimination, and biases. We will engage in this important dialogue with our diverse community by listening and learning from our families, researchers, and professionals.

    CONTACT

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    Tulsa, OK 74153

    CONTACT US

    Email: contactus@thegfpd.org
    Phone: ‪(405) 418-6061‬
    Fax: (918) 516-0227

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    © 2022 by The GFPD.

    Images on this site were contributed by families and may not be used without permission.

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    • Welcome
    • Peroxisomal Disorders
      • What are peroxisomal disorders
      • Types of peroxisomal disorders
      • Signs and Symptoms
      • How do I get a diagnosis?
      • Facts at a Glance
    • About Us
      • Our Work
      • Our Mission
      • Our History
      • Achievement Timeline
      • Board of Directors
      • Scientific Advisory Board
      • Our Team
      • Our Partners
      • Impact Reports
    • Support and Resources
      • Family Directory
      • A Letter to Newly Diagnosed Parents
      • Information for Newly Diagnosed Patients
      • Care Resources
      • Bereavement Resources
      • Support Groups
      • Meet our GFPD Warriors
      • Equipment Exchange
    • Research
      • Current Research
      • Clinical Trials
      • Scholarly Articles
      • Past Scientific Conferences
    • Events
      • GFPD 2022 Family & Scientific Conference
    • More
      • Take Action
      • Advocate
      • Pause for The GFPD
      • Fundraise
      • Donate
      • Join a Committee
      • Shop
      • News
    • For Researchers
    • Blog