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      • What are peroxisomal disorders
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    Walk Run Ride SEP 30 - OCY 2
    The third annual GFPD Warrior Walk Run Ride on September 30th – October 2nd

    The third annual GFPD Warrior Walk Run Ride is quickly approaching! Celebrate all GFPD Warriors...

    08
    Aug
    WODC
    The GFPD’s Corin Chapman and Catherine Argyriou present at the World Orphan Drug Congress in Boston

    GFPD Board Member, Corin Chapman and Catherine Argyriou, postdoctoral fellow, Braverman Lab, McGill University recently...

    02
    Aug
    Healthcare screening for babies
    The GFPD and the Rare Disease Community Urges States to Take Advantage of Funding to Screen More Babies

    The GFPD was one of 12 patient organizations who recently sent a letter urging nine...

    08
    Apr
    Governor Youngkin Announces Addition of Two New Disorders to Virginia’s Newborn Screening Program

    RICHMOND, VA – Governor Glenn Youngkin today announced the addition of two new disorders to...

    23
    Mar
    Rare Disease Day

    Do you have your colorful stripes ready?! Rare Disease Day is February 28th! For 14...

    23
    Feb
    EveryLife Foundation for Rare Diseases
    GFPD Supports Legislation for Newborn Screening in Iowa

    HSB 690 /SSB 3122 both passed out of their respective committees in the Iowa State...

    20
    Feb
    The GFPD Supports North Carolina HB 736

    https://everylifefoundation.org/voter-voice/?vvsrc=%2fcampaigns%2f80975%2frespond...

    11
    May
    The GFPD advocates for Paid Leave for Family Caregivers Across the Lifespan

    Over the past year, millions of family caregivers found themselves needing to isolate or take...

    29
    Apr
    The GFPD advocates for Paid Leave for Family Caregivers Across the Lifespan
    April 26, 2021

    Over the past year, millions of family caregivers found themselves needing to isolate or take...

    The GFPD joins with the TS Alliance to Advocate for Prioritization of Individuals with Rare Diseases and their Caregivers to have Immediate access to COVID-19 Vaccines.

    On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy...

    25
    Mar
    The GFPD (along with hundreds of other U.S. nonprofits) advocates for additional 2021 COVID relief, led by the National Council of Nonprofits.

    At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be...

    22
    Mar
    The GFPD (along with hundreds of other U.S. nonprofits) advocates for additional 2021 COVID relief, led by the National Council of Nonprofits.
    March 2, 2021

    At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be...

    The GFPD joins with the TS Alliance to Advocate for Prioritization of Individuals with Rare Diseases and their Caregivers to have Immediate access to COVID-19 Vaccines.
    February 12, 2021

    On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy...

    UNMC researcher heads $3.3 million national study

    Dr. Rizzo said several of the diseases are so rare that between 500 and 1,000...

    03
    Feb
    Letter: Pause for PBD, think of Ethan

    Oct. 5 is a special day for our family as we celebrate Pause for PBD,...

    03
    Feb
    Business Perspective with Melissa Bryce Gamble: Use this checklist to start your nonprofit

    Melissa Bryce Gamble is president and co-founder of the Global Foundation for Peroxisomal Disorders, which...

    03
    Feb
    Pause for PBD

    Melissa Bryce Gamble shares the story of her daughter Ginny's battle with a peroxisome biogenesis...

    03
    Feb
    Jersey County Journal – Letter to Editor for Pause for PBD

    The Jersey County Journal featured a letter to the editor, from Vicky Maag, about our...

    03
    Feb
    A walk for a child with a rare disease in Saint-Quentin

    Thomas Thériault, of Saint-Quentin, will celebrate his second birthday on November 24. His community recently...

    03
    Feb
    This unicorn wheelchair costume is truly magical

    She's five-years-old, loves all things pink and glitter, and will be sporting a pretty magical...

    03
    Feb
    NJ mom to run Philly marathon to bring attention to rare disease

    De Jesus says that it was a specialist in Canada who diagnosed Jaxson with Peroxisomal...

    03
    Feb
    Family makes every moment count with terminal son

    Jaxon’s health has had a backslide lately. The hospice nurses hope he will make it...

    03
    Feb
    Texas Parents Calm Baby with Kisses Before Learning He’s Blind: ‘We Didn’t Know What Was Wrong’

    Gideon Jolicoeur, 4, was born with a rare condition that impacts his hearing and eyesight...

    03
    Feb
    Champion of the 2017 AmorChem KNOCK OUT event: Team Braverman!

    Dr. Braverman’s work focuses on genes responsible for the proper function of peroxisomes, which are...

    03
    Feb
    Newsmaker: Tulsa-based Peroxisomal foundation names director, board

    The Tulsa-based Global Foundation for Peroxisomal Disorders has named Melissa Bryce Gamble as its first...

    03
    Feb
    Peoria family promotes Rare Diseases Day for 7-year-old son

    It was a horrible diagnosis, but looking back, Pamela Marshall is thankful her son Ethan...

    03
    Feb

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      GFPD Values

      Our Mission

      To improve the lives of individuals with Peroxisomal Disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

      GFPD Diversity Statement

      Peroxisomal disorders impact individuals of every race, ethnicity, socio-economic status, sex, gender, sexual orientation, belief system, ability, and age. Using our values of inclusion and community as our guide, The GFPD is committed to promoting acceptance and advocating for equality and equity in healthcare and educational settings while combating prejudices, discrimination, and biases. We will engage in this important dialogue with our diverse community by listening and learning from our families, researchers, and professionals.

      CONTACT

      P.O. Box 33238
      Tulsa, OK 74153

      CONTACT US

      Email: contactus@thegfpd.org
      Phone: ‪(405) 418-6061‬
      Fax: (918) 516-0227

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      © 2022 by The GFPD.

      Images on this site were contributed by families and may not be used without permission.

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      • Welcome
      • Peroxisomal Disorders
        • What are peroxisomal disorders
        • Types of peroxisomal disorders
        • Signs and Symptoms
        • How do I get a diagnosis?
        • Facts at a Glance
      • About Us
        • Our Work
        • Our Mission
        • Our History
        • Achievement Timeline
        • Board of Directors
        • Medical and Scientific Advisors
        • Our Team
        • Our Partners
        • Impact Reports
      • Support and Resources
        • Family Directory
        • A Letter to Newly Diagnosed Parents
        • Information for Newly Diagnosed Patients
        • Care Resources
        • Bereavement Resources
        • Support Groups
        • Meet our GFPD Warriors
        • Equipment Exchange
      • Research
        • Current Research
        • Clinical Trials
        • Scholarly Articles
        • Past Scientific Conferences
      • More
        • Take Action
        • Advocate
        • Pause for The GFPD
        • Fundraise
        • Donate
        • Join a Committee
        • News
      • For Researchers
      • Blog