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    The Global Foundation for Peroxisomal DisordersThe Global Foundation for Peroxisomal Disorders
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    Brain injury awareness
    Brain Awareness Week March 13-19, 2023

    Brain Awareness Week is a global campaign during the week of March 13-19, 2023. There...

    15
    Mar
    The GFPD is pleased to support the BENEFIT Act, to elevate the patient voice in the FDA drug development process.

    Congress and the Food and Drug Administration (FDA) have made considerable progress in driving forward...

    23
    Feb
    GFPD Patient Ambassador Jayla Morrison and Mother, Courtney, Advocate in Colorado for Peroxisomal Disorders Awareness

    Becoming a teenager is a big milestone for any young American, but Jayla Morrison’s 13th...

    02
    Feb
    not all supplements are safe
    Not All Supplements Are Safe

    Having a rare, multi-system disease like a peroxisomal disorder often means taking multiple medications and...

    11
    Jan
    GFPD joins with 125 other patient advocacy groups urging congress to support critical rare disease priorities

    The GFPD is proud to be one of 126 organizations, representing or treating patients impacted...

    16
    Nov
    Financial Impact
    GFPD and the Financial Impact of Rare Disease

    Earlier this year, the GFPD received a grant from Global Genes to support our conference...

    01
    Oct
    Rare Disease Orgs Letter
    GFPD joins with over 100 rare disease organizations to support Accelerating Kids’ Access to Care Act

    ...

    08
    Sep
    Walk Run Ride SEP 30 - OCY 2
    The third annual GFPD Warrior Walk Run Ride on September 30th – October 2nd

    The third annual GFPD Warrior Walk Run Ride is quickly approaching! Celebrate all GFPD Warriors...

    08
    Aug
    WODC
    The GFPD’s Corin Chapman and Catherine Argyriou present at the World Orphan Drug Congress in Boston

    GFPD Board Member, Corin Chapman and Catherine Argyriou, postdoctoral fellow, Braverman Lab, McGill University recently...

    02
    Aug
    Healthcare screening for babies
    The GFPD and the Rare Disease Community Urges States to Take Advantage of Funding to Screen More Babies

    The GFPD was one of 12 patient organizations who recently sent a letter urging nine...

    08
    Apr
    Governor Youngkin Announces Addition of Two New Disorders to Virginia’s Newborn Screening Program

    RICHMOND, VA – Governor Glenn Youngkin today announced the addition of two new disorders to...

    23
    Mar
    Rare Disease Day

    Do you have your colorful stripes ready?! Rare Disease Day is February 28th! For 14...

    23
    Feb
    EveryLife Foundation for Rare Diseases
    GFPD Supports Legislation for Newborn Screening in Iowa

    HSB 690 /SSB 3122 both passed out of their respective committees in the Iowa State...

    20
    Feb
    The GFPD Supports North Carolina HB 736

    https://everylifefoundation.org/voter-voice/?vvsrc=%2fcampaigns%2f80975%2frespond...

    11
    May
    The GFPD advocates for Paid Leave for Family Caregivers Across the Lifespan

    Over the past year, millions of family caregivers found themselves needing to isolate or take...

    29
    Apr
    The GFPD advocates for Paid Leave for Family Caregivers Across the Lifespan
    April 26, 2021

    Over the past year, millions of family caregivers found themselves needing to isolate or take...

    The GFPD joins with the TS Alliance to Advocate for Prioritization of Individuals with Rare Diseases and their Caregivers to have Immediate access to COVID-19 Vaccines.

    On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy...

    25
    Mar
    The GFPD (along with hundreds of other U.S. nonprofits) advocates for additional 2021 COVID relief, led by the National Council of Nonprofits.

    At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be...

    22
    Mar
    The GFPD (along with hundreds of other U.S. nonprofits) advocates for additional 2021 COVID relief, led by the National Council of Nonprofits.
    March 2, 2021

    At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be...

    The GFPD joins with the TS Alliance to Advocate for Prioritization of Individuals with Rare Diseases and their Caregivers to have Immediate access to COVID-19 Vaccines.
    February 12, 2021

    On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy...

    UNMC researcher heads $3.3 million national study

    Dr. Rizzo said several of the diseases are so rare that between 500 and 1,000...

    03
    Feb
    Letter: Pause for PBD, think of Ethan

    Oct. 5 is a special day for our family as we celebrate Pause for PBD,...

    03
    Feb
    Business Perspective with Melissa Bryce Gamble: Use this checklist to start your nonprofit

    Melissa Bryce Gamble is president and co-founder of the Global Foundation for Peroxisomal Disorders, which...

    03
    Feb
    Pause for PBD

    Melissa Bryce Gamble shares the story of her daughter Ginny's battle with a peroxisome biogenesis...

    03
    Feb
    Jersey County Journal – Letter to Editor for Pause for PBD

    The Jersey County Journal featured a letter to the editor, from Vicky Maag, about our...

    03
    Feb
    A walk for a child with a rare disease in Saint-Quentin

    Thomas Thériault, of Saint-Quentin, will celebrate his second birthday on November 24. His community recently...

    03
    Feb

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      GFPD Values

      Our Mission

      To improve the lives of individuals with Peroxisomal Disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

      GFPD Diversity Statement

      Peroxisomal disorders impact individuals of every race, ethnicity, socio-economic status, sex, gender, sexual orientation, belief system, ability, and age. Using our values of inclusion and community as our guide, The GFPD is committed to promoting acceptance and advocating for equality and equity in healthcare and educational settings while combating prejudices, discrimination, and biases. We will engage in this important dialogue with our diverse community by listening and learning from our families, researchers, and professionals.

      CONTACT

      P.O. Box 33238
      Tulsa, OK 74153

      CONTACT US

      Email: contactus@thegfpd.org

      Phone: ‪(918) 998-5798‬

      Fax: (918) 516-0227

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      © 2023 by The GFPD.

      Images on this site were contributed by families and may not be used without permission.

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      • Welcome
      • Peroxisomal Disorders
        • Facts at a Glance
        • How do I get a diagnosis?
        • Signs and Symptoms
        • Types of peroxisomal disorders
        • What are peroxisomal disorders
      • About Us
        • Achievement Timeline
        • Board of Directors
        • Impact Report
        • Medical and Scientific Advisors
        • Our History
        • Our Mission
        • Our Partners
        • Our Team
        • Our Work
      • Support & Resources
        • A Letter to Newly Diagnosed Parents
        • Bereavement Resources
        • Care Resources
        • Equipment Exchange
        • Family Directory
        • GFPD Support Groups
        • Information for Newly Diagnosed Patients
        • Meet our GFPD Warriors
        • Request Support
      • Research
        • Clinical Trials
        • Current Research
        • Fellowships
        • Past Scientific Conferences
        • Scholarly Articles
      • Events
        • Conferences
        • Hues for Hope
        • Pause for the GFPD
        • Rare Disease Day
        • Walk Run Ride
      • More
        • Advocate
        • Community Directory
        • Donate
        • Fundraise
        • Join a Committee
        • News
        • Shop GFPD Gear
        • Take Action
      • For Researchers
      • Blog