The GFPD was one of 12 patient organizations who recently sent a letter urging nine...
RICHMOND, VA – Governor Glenn Youngkin today announced the addition of two new disorders to...
Do you have your colorful stripes ready?! Rare Disease Day is February 28th! For 14...
HSB 690 /SSB 3122 both passed out of their respective committees in the Iowa State...
https://everylifefoundation.org/voter-voice/?vvsrc=%2fcampaigns%2f80975%2frespond...
Over the past year, millions of family caregivers found themselves needing to isolate or take...
On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy...
At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be...
Dr. Rizzo said several of the diseases are so rare that between 500 and 1,000...
Oct. 5 is a special day for our family as we celebrate Pause for PBD,...
Melissa Bryce Gamble is president and co-founder of the Global Foundation for Peroxisomal Disorders, which...
Melissa Bryce Gamble shares the story of her daughter Ginny's battle with a peroxisome biogenesis...
The Jersey County Journal featured a letter to the editor, from Vicky Maag, about our...
Thomas Thériault, of Saint-Quentin, will celebrate his second birthday on November 24. His community recently...
She's five-years-old, loves all things pink and glitter, and will be sporting a pretty magical...
De Jesus says that it was a specialist in Canada who diagnosed Jaxson with Peroxisomal...
Jaxon’s health has had a backslide lately. The hospice nurses hope he will make it...
Gideon Jolicoeur, 4, was born with a rare condition that impacts his hearing and eyesight...
Dr. Braverman’s work focuses on genes responsible for the proper function of peroxisomes, which are...
The Tulsa-based Global Foundation for Peroxisomal Disorders has named Melissa Bryce Gamble as its first...
It was a horrible diagnosis, but looking back, Pamela Marshall is thankful her son Ethan...
McGill graduate, Christine Yergeau sat down with CKUT’s Health on Earth Podcast to discuss peroxisomal...
Kick It For MaxA local high school soccer team is helping their coach’s family....
