The GFPD is one of 101 organizations that recently sent a letter to CMS regarding...
Brain Awareness Week is a global campaign during the week of March 13-19, 2023. There...
Congress and the Food and Drug Administration (FDA) have made considerable progress in driving forward...
Becoming a teenager is a big milestone for any young American, but Jayla Morrison’s 13th...
Having a rare, multi-system disease like a peroxisomal disorder often means taking multiple medications and...
The GFPD is proud to be one of 126 organizations, representing or treating patients impacted...
Earlier this year, the GFPD received a grant from Global Genes to support our conference...
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The third annual GFPD Warrior Walk Run Ride is quickly approaching! Celebrate all GFPD Warriors...
GFPD Board Member, Corin Chapman and Catherine Argyriou, postdoctoral fellow, Braverman Lab, McGill University recently...
The GFPD was one of 12 patient organizations who recently sent a letter urging nine...
RICHMOND, VA – Governor Glenn Youngkin today announced the addition of two new disorders to...
Do you have your colorful stripes ready?! Rare Disease Day is February 28th! For 14...
HSB 690 /SSB 3122 both passed out of their respective committees in the Iowa State...
https://everylifefoundation.org/voter-voice/?vvsrc=%2fcampaigns%2f80975%2frespond...
Over the past year, millions of family caregivers found themselves needing to isolate or take...
On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy...
At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be...
Dr. Rizzo said several of the diseases are so rare that between 500 and 1,000...
Oct. 5 is a special day for our family as we celebrate Pause for PBD,...
Melissa Bryce Gamble is president and co-founder of the Global Foundation for Peroxisomal Disorders, which...
Melissa Bryce Gamble shares the story of her daughter Ginny's battle with a peroxisome biogenesis...
The Jersey County Journal featured a letter to the editor, from Vicky Maag, about our...