GFPD is Advocacy!

Beginning in 2017, the GFPD started training our families and professionals to advocate on behalf of legislation that impacts both the peroxisomal disorder community and the rare disease community.  

To learn more about the GFPD’s advocacy efforts, email: 

Current Advocacy

Medical Nutrition Equity Act of 2021 (S.2013/ H.R. 3783)
To provide for the coverage of medically necessary food and vitamins and individual amino acids for digestive and inherited metabolic disorders under Federal health programs and private health insurance, and for other purposes.

Info Sheet: Medical Nutrition Equity Act of 2021

Petition Letter for Medical and Nutrition Act 12/19/2022

Info Sheet: COVID-19 Vaccine Letter for GFPD Families

Newborn Screening