Do you have your colorful stripes ready?! Rare Disease Day is February 28th! For 14...
The GFPD Creates a Diversity Committee to Promote Greater Health Equity for Warriors and their...
At the Global Foundation for Peroxisomal Disorders, we realized early on that equity is a...
Traveling for everyone during the holidays can often be a stressful and frustrating experience. Add...
Gatherings can be challenging for our GFPD warriors and their caregivers, especially when being held...
“We recommend calling in hospice care.” The words that every terminally ill patient and their...
This year, NDEAM’s theme is “America’s Recovery: Powered by Inclusion,” focusing on employment/economic opportunity, as...
October is liver awareness month and we reached out to Dr. Nancy Braverman at McGill...
Pause for The GFPD is officially 1 week away! Below are 8 great ways you...
Happy first day of summer! Due to Covid-19, we haven’t been able to do a...
Recently I attended the Discovering Our Connections Virtual Family Meetup hosted by the GFPD. I...
The GFPD was founded in 2010 to fill an unmet need to...
I have often been asked what it is like being the mom to a child...
Alone and in the darkness, often feeling so incredibly hopeless: this was the reality of...
Alone. In the darkness, often feeling so incredibly hopeless. This was my reality of my...
February 2020 was Gwendolyn and my first Rare Disease Week. Gwendolyn is my 21 month...
Anna Violet says “Happy Spring Time” to all of her PBD family! Anna Violet has...
Our family’s journey to receiving Anna Violet’s diagnosis took approximately three months, but time moves...
Most peroxisomal disorders are rare, genetic (autosomal recessive) conditions that are often terminal and affect...
A patient with either type of peroxisomal disorder (peroxisomal biogenesis disorder or single enzyme protein...
After following a year in the life of Archer in 2019, this year, we will...
As 2019 draws to a close, I’m filled with gratitude for our past and present...
It is hard to believe 2019 is coming to a close soon. As a new...
“Christmas is usually one of my favorite holidays. I am one of ‘those’ parents who...
“You may often hear or see the phrase “GFPD is family,” and I fully and...
