Brain Awareness Week is a global campaign during the week of March 13-19, 2023. There...
David Lapidus, Board Member for The GFPD, helped train the GFPD Rare Disease Day team...
The GFPD is bringing a team of 20 individuals to advocate for rare disease initiatives...
Becoming a teenager is a big milestone for any young American, but Jayla Morrison’s 13th...
Having a rare, multi-system disease like a peroxisomal disorder often means taking multiple medications and...
The GFPD is proud to be one of 126 organizations, representing or treating patients impacted...
Earlier this year, the GFPD received a grant from Global Genes to support our conference...
Do you want to connect with other GFPD families? We are excited to share about...
The third annual GFPD Warrior Walk Run Ride is quickly approaching! Celebrate all GFPD Warriors...
GFPD Board Member, Corin Chapman and Catherine Argyriou, postdoctoral fellow, Braverman Lab, McGill University recently...
Do you have your colorful stripes ready?! Rare Disease Day is February 28th! For 14...
The GFPD Creates a Diversity Committee to Promote Greater Health Equity for Warriors and their...
At the Global Foundation for Peroxisomal Disorders, we realized early on that equity is a...
Traveling for everyone during the holidays can often be a stressful and frustrating experience. Add...
Gatherings can be challenging for our GFPD warriors and their caregivers, especially when being held...
“We recommend calling in hospice care.” The words that every terminally ill patient and their...
This year, NDEAM’s theme is “America’s Recovery: Powered by Inclusion,” focusing on employment/economic opportunity, as...
October is liver awareness month and we reached out to Dr. Nancy Braverman at McGill...
Pause for The GFPD is officially 1 week away! Below are 8 great ways you...
Happy first day of summer! Due to Covid-19, we haven’t been able to do a...
Recently I attended the Discovering Our Connections Virtual Family Meetup hosted by the GFPD. I...
The GFPD was founded in 2010 to fill an unmet need to...
I have often been asked what it is like being the mom to a child...
Alone and in the darkness, often feeling so incredibly hopeless: this was the reality of...
Alone. In the darkness, often feeling so incredibly hopeless. This was my reality of my...
