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    The Global Foundation for Peroxisomal DisordersThe Global Foundation for Peroxisomal Disorders
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    • Peroxisomal Disorders
      • Facts at a Glance
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      • What are peroxisomal disorders
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    Brain injury awareness
    Brain Awareness Week March 13-19, 2023

    Brain Awareness Week is a global campaign during the week of March 13-19, 2023. There...

    15
    Mar
    Advocacy Resources: Elevate your elevator pitch with David Lapidus

    David Lapidus, Board Member for The GFPD, helped train the GFPD Rare Disease Day team...

    07
    Mar
    GFPD Advocacy Initiatives to Improve the Lives of Individuals with Peroxisomal Disorders

    The GFPD is bringing a team of 20 individuals to advocate for rare disease initiatives...

    01
    Mar
    GFPD Patient Ambassador Jayla Morrison and Mother, Courtney, Advocate in Colorado for Peroxisomal Disorders Awareness

    Becoming a teenager is a big milestone for any young American, but Jayla Morrison’s 13th...

    02
    Feb
    not all supplements are safe
    Not All Supplements Are Safe

    Having a rare, multi-system disease like a peroxisomal disorder often means taking multiple medications and...

    11
    Jan
    GFPD joins with 125 other patient advocacy groups urging congress to support critical rare disease priorities

    The GFPD is proud to be one of 126 organizations, representing or treating patients impacted...

    16
    Nov
    Financial Impact
    GFPD and the Financial Impact of Rare Disease

    Earlier this year, the GFPD received a grant from Global Genes to support our conference...

    01
    Oct
    F2FC Groups Now Enrolling
    F2FC Groups Now Enrolling

    Do you want to connect with other GFPD families? We are excited to share about...

    23
    Aug
    Walk Run Ride SEP 30 - OCY 2
    The third annual GFPD Warrior Walk Run Ride on September 30th – October 2nd

    The third annual GFPD Warrior Walk Run Ride is quickly approaching! Celebrate all GFPD Warriors...

    08
    Aug
    WODC
    The GFPD’s Corin Chapman and Catherine Argyriou present at the World Orphan Drug Congress in Boston

    GFPD Board Member, Corin Chapman and Catherine Argyriou, postdoctoral fellow, Braverman Lab, McGill University recently...

    02
    Aug
    Rare Disease Day

    Do you have your colorful stripes ready?! Rare Disease Day is February 28th! For 14...

    23
    Feb
    The GFPD Creates a Diversity Committee to Promote Greater Health Equity for Warriors and their Families.

    The GFPD Creates a Diversity Committee to Promote Greater Health Equity for Warriors and their...

    28
    Jan
    GFPD Diversity Statement
    GFPD Diversity Statement

    At the Global Foundation for Peroxisomal Disorders, we realized early on that equity is a...

    04
    Jan
    travel tips
    Tips for traveling with your GFPD Warrior this holiday season!

    Traveling for everyone during the holidays can often be a stressful and frustrating experience. Add...

    16
    Dec
    Inclusion tips
    GFPD Inclusive Holiday Tips

    Gatherings can be challenging for our GFPD warriors and their caregivers, especially when being held...

    08
    Dec
    Hospice and Palliative Care - Making Special Moments Possible
    Hospice and Palliative Care – Making Special Moments Possible

    “We recommend calling in hospice care.” The words that every terminally ill patient and their...

    16
    Nov
    National Disability Employment Awareness Month

    This year, NDEAM’s theme is “America’s Recovery: Powered by Inclusion,” focusing on employment/economic opportunity, as...

    16
    Oct
    Oct is Liver awareness month
    October is Liver Awareness Month

    October is liver awareness month and we reached out to Dr. Nancy Braverman at McGill...

    06
    Oct
    #PAUSEforTheGFPD

    Pause for The GFPD is officially 1 week away! Below are 8 great ways you...

    28
    Sep
    Happy First Day of Summer!!

    Happy first day of summer! Due to Covid-19, we haven’t been able to do a...

    20
    Jun
    Building our Little Room – Follow up from “Discovering Our Connections- GFPD Virtual Meetup”

    Recently I attended the Discovering Our Connections Virtual Family Meetup hosted by the GFPD. I...

    05
    Jun
    History of peroxisome biogenesis disorder-Zellweger spectrum disorder (PBD-ZSD) Terminology

          The GFPD was founded in 2010 to fill an unmet need to...

    21
    May
    Mother’s Day

    I have often been asked what it is like being the mom to a child...

    10
    May
    Honoring Our Bereaved Mothers

    Alone and in the darkness, often feeling so incredibly hopeless: this was the reality of...

    03
    May
    GFPD “Sensing Connections” Grief Support Group | Remembrance & Support

    Alone. In the darkness, often feeling so incredibly hopeless. This was my reality of my...

    26
    Apr
    Recent Posts
    • Brain Awareness Week March 13-19, 2023 March 15, 2023
    • Advocacy Resources: Elevate your elevator pitch with David Lapidus March 7, 2023
    • GFPD Advocacy Initiatives to Improve the Lives of Individuals with Peroxisomal Disorders March 1, 2023
    • The GFPD is pleased to support the BENEFIT Act, to elevate the patient voice in the FDA drug development process. February 23, 2023
    • GFPD Patient Ambassador Jayla Morrison and Mother, Courtney, Advocate in Colorado for Peroxisomal Disorders Awareness February 2, 2023
    • Not All Supplements Are Safe January 11, 2023
    • GFPD joins with 125 other patient advocacy groups urging congress to support critical rare disease priorities November 16, 2022
    • GFPD and the Financial Impact of Rare Disease October 1, 2022
    • GFPD joins with over 100 rare disease organizations to support Accelerating Kids’ Access to Care Act September 8, 2022
    • F2FC Groups Now Enrolling August 23, 2022
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      GFPD Values

      Our Mission

      To improve the lives of individuals with Peroxisomal Disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

      GFPD Diversity Statement

      Peroxisomal disorders impact individuals of every race, ethnicity, socio-economic status, sex, gender, sexual orientation, belief system, ability, and age. Using our values of inclusion and community as our guide, The GFPD is committed to promoting acceptance and advocating for equality and equity in healthcare and educational settings while combating prejudices, discrimination, and biases. We will engage in this important dialogue with our diverse community by listening and learning from our families, researchers, and professionals.

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      Tulsa, OK 74153

      CONTACT US

      Email: contactus@thegfpd.org

      Phone: ‪(918) 998-5798‬

      Fax: (918) 516-0227

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      • Welcome
      • Peroxisomal Disorders
        • Facts at a Glance
        • How do I get a diagnosis?
        • Signs and Symptoms
        • Types of peroxisomal disorders
        • What are peroxisomal disorders
      • About Us
        • Achievement Timeline
        • Board of Directors
        • Impact Report
        • Medical and Scientific Advisors
        • Our History
        • Our Mission
        • Our Partners
        • Our Team
        • Our Work
      • Support & Resources
        • A Letter to Newly Diagnosed Parents
        • Bereavement Resources
        • Care Resources
        • Equipment Exchange
        • Family Directory
        • GFPD Support Groups
        • Information for Newly Diagnosed Patients
        • Meet our GFPD Warriors
        • Request Support
      • Research
        • Clinical Trials
        • Current Research
        • Fellowships
        • Past Scientific Conferences
        • Scholarly Articles
      • Events
        • Conferences
        • Hues for Hope
        • Pause for the GFPD
        • Rare Disease Day
        • Walk Run Ride
      • More
        • Advocate
        • Community Directory
        • Donate
        • Fundraise
        • Join a Committee
        • News
        • Shop GFPD Gear
        • Take Action
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