The GFPD Community Directory

Professionals, extended family, and friends are invited to join The GFPD Community Directory.

Joining our Community Directory allows The GFPD to stay in touch with you and share updates about the GFPD, support, research, advocacy, events, and more!

The GFPD Family Directory

Patients and parents of individuals with peroxisomal disorders are invited to join The GFPD Family Directory.

The Global Foundation for Peroxisomal Disorders maintains the most comprehensive list of patients with a peroxisomal disorder in the world. We have grown our Family Directory from just 48 families in 2010 to currently connecting more than 600 families from over 40 countries. Joining our directory also allows The GFPD to stay in touch with you and share updates about the GFPD, support, research, advocacy, events, and more! 

Update Contact Information with The GFPD 

For all members of our GFPD Community who would like to share a change of information with us. 

Please complete and submit your updated information to make sure we have your most up-to-date information. This will ensure we can continue sending you updates about the GFPD, research, support, advocacy, events, and more! If you have never shared your information with us before, please submit to the Community Directory or Family Directory.