We Provide Worldwide Support and Research to Families and Individuals with Peroxisomal Disorders.

The Global Foundation for Peroxisomal Disorders maintains the most comprehensive list of patients with a peroxisomal disorder in the world. Our Family Directory (formerly known from 2010-2018 as the GFPD Family Registry) is a comprehensive and secure database. We have grown our Family Directory from just 48 families in 2010 to currently connecting more than 600 families from over 40 countries. 

At The GFPD, we want all of our families, extended families, and adult patients, to have the opportunity to connect with others. These patients and families have an array of diverse experiences creating an invaluable source of support. We invite you to fill out a few questions on the form below to give us more information about you and your family to help is better provide support and be able to share resources, research opportunities, updates, and more!

Joining our Family Directory allows the GFPD to:

  • Stay in touch with you.
  • Connect you with resources and other families in your area.
  • Keep you up to date on research opportunities.
  • Invite you to in-person and virtual events happening  
  • Provide you with access to private, online support groups. 
  • Offer you peer to peer support.
  • Share educational materials and resources for professionals serving individuals with peroxisomal disorders.