Join the GFPD November 13th – 15th in Los Angeles, CA for our West Coast Regional Meetup!  

This in-person gathering brings together families, caregivers, individuals with peroxisomal disorders, healthcare professionals, researchers, and medical experts for a weekend of connection, learning, and community. 

These meetups help reduce isolation, provide valuable education, and create meaningful opportunities to connect with others who understand the realities of living with a rare disease. 

REGISTER TODAY

Location and Hotel Information

Homewood Suites by Hilton Los Angeles International Airport 

6151 W. Century Blvd., Los Angeles, CA 90045

The GFPD has secured a discounted room block at $165.00/night for attendees. 

IMPORTANT NOTE: To receive this rate, you will receive a specific hotel reservation link after registering for the meetup via the GFPD registration link. 

Guests booking within the GFPD room block receive the discounted room rate, a reduced overnight parking rate of $15.00 per night (regularly $60.00 per night), complimentary breakfast, and complimentary Wi-Fi. 

Travel Stipends & Accessibility Support

To help reduce financial barriers, the GFPD offers limited travel stipends for families, including bereaved families, who need assistance attending. Stipends may be used toward travel-related expenses, including mileage/gas, lodging, or other associated costs with attending this meetup.   

Apply by October 28th, 2026

Travel stipend decisions will be shared promptly, with all applicants notified no later than October 30th 

APPLY FOR A TRAVEL STIPEND

What To Expect

Friday 

  • Hotel Check-In 
  • GFPD West Coast Regional Meetup Check-In and Community Connection  

Saturday 

  • Breakfast (included) 
  • Welcome and Sessions for families, caregivers, patients, and professionals 
  • Community Lunch & Connect (provided by the GFPD)  
  • Sessions for families, caregivers, patients, and professionals to share experiences, learn from one another, and build community  
  • Evening: informal, laid-back time to connect with attendees and continue conversations  

Sunday 

  • Breakfast (included) 
  • Morning Community Connection  
  • Meetup concludes by lunchtime, allowing families time to travel home  

Detailed agenda coming soon!

Who Should Attend?

  • GFPD Warriors
  • Families and Caregivers
  • GFPD Medical & Scientific Advisors
  • Advocates and Professionals

Whether you’re newly diagnosed or a longtime community member, this event is designed to support connection, education, and shared experience.

Questions?

For any questions about the meetup, registration, or travel stipends, please reach out to:

Katie Sacra, Director of Family and Community Engagement at katie@thegfpd.org

Ryan Maple, Executive Director at ryan@thegfpd.org

Sponsorship or donation inquiries to support meetups should be directed to:

Kevin Johnson, Partnership Advisor kevin@thegfpd.org