Join the GFPD on August 21st – 23rd for our Northeast Regional Meetup in Newark, DE! This is a three-day, in-person gathering designed to connect families, caregivers, researchers, and medical experts impacted by peroxisomal disorders.

These meetups reduce isolation, provide education, and create meaningful opportunities to build community — because no family should navigate a rare disease alone.

REGISTER

Location and Hotel Information

Embassy Suites by Hilton Newark Wilmington South, 654 South College Avenue, Newark, Delaware, 19713, USA 

The GFPD has secured a discounted room block at $165.00/night for attendees. 

IMPORTANT NOTE: To receive this rate, you will receive a specific hotel reservation link after registering for the meetup via the GFPD registration link. 

Guests booking within the GFPD block receive the discounted rate, complimentary parking, free breakfast, Wi-Fi, and access to the evening reception. 

Travel Stipends & Accessibility Support

To help reduce financial barriers, the GFPD offers limited travel stipends for families, including bereaved families, who need assistance attending. Stipends may be used toward travel-related expenses, including mileage/gas, lodging, or other associated costs with attending this meetup.   

Apply by July 31, 2026 

Travel stipend decisions will be shared promptly, with all applicants notified no later than August 3, 2026. 

APPLY FOR STIPEND

What To Expect

Friday

  • Check in
  • GFPD Northeast Regional Meetup Check-In and Community Connection
  • Welcome reception

Saturday

  • Breakfast (included) 
  • Welcome and Sessions for families, caregivers, patients, and professionals 
  • Community Lunch & Connect (provided by GFPD)  
  • Sessions for families, caregivers, patients, and professionals to share experiences, learn from one another, and build community  
  • Evening: informal, laid-back time to connect with attendees and continue conversations  

Sunday

  • Breakfast (included)
  • Morning connection and closing reflections 
  • Meetup concludes by lunchtime, allowing families time to travel home 

Detailed agenda coming soon!

Who Should Attend?

  • GFPD Warriors
  • Families and Caregivers
  • GFPD Medical & Scientific Advisors
  • Advocates and Professionals

Whether you’re newly diagnosed or a longtime community member, this event is designed to support connection, education, and shared experience.

Questions?

For any questions about the meetup, registration, or travel stipends, please reach out to:

Katie Sacra, Director of Family and Community Engagement at katie@thegfpd.org

Ryan Maple, Executive Director at ryan@thegfpd.org

Sponsorship or donation inquiries to support meetups should be directed to:

Kevin Johnson, Partnership Advisor at kevin@thegfpd.org