Join the GFPD September 25th – 27th for our Midwest–Ohio Regional Meetup, an in-person gathering designed to connect families, caregivers, researchers, and medical experts impacted by peroxisomal disorders.
These meetups help reduce isolation, provide education, and create meaningful opportunities to build community—because no family should navigate a rare disease alone.
In addition to the meetup, a family-led fundraising event, Hope With Lo, will take place in person on the morning of Saturday, September 26th. While not part of the official meetup programming, attendees are welcome and encouraged to participate!
Location and Hotel Information
INFORMATION COMING SOON!
Travel Stipends & Accessibility Support
To help reduce financial barriers, the GFPD offers limited travel stipends for families who need assistance attending.
INFORMATION COMING SOON
What To Expect
Detailed agenda coming soon!
Who Should Attend?
- GFPD Warriors
- Families and Caregivers
- GFPD Medical & Scientific Advisors
- Advocates and Professionals
Whether you’re newly diagnosed or a longtime community member, this event is designed to support connection, education, and shared experience.
Questions?
For any questions about the meetup, registration, or travel stipends, please reach out to:
Katie Sacra, Director of Family and Community Engagement at katie@thegfpd.org
Ryan Maple, Executive Director at ryan@thegfpd.org
Sponsorship or donation inquiries to support meetups should be directed to:
Kevin Johnson, Partnership Advisor kevin@thegfpd.org