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Monthly Archives: November 2012

GFPD Fall 2012 Newsletter

November 3, 2012

The GFPD celebrated its second birthday in October 2012! Check out the GFPD Fall 2012...

Recent Posts

Inflation Reduction Act Drug Negotiation Sign On Letter to CMS April 17, 2023
Brain Awareness Week March 13-19, 2023 March 15, 2023
Advocacy Resources: Elevate your elevator pitch with David Lapidus March 7, 2023
GFPD Advocacy Initiatives to Improve the Lives of Individuals with Peroxisomal Disorders March 1, 2023
The GFPD is pleased to support the BENEFIT Act, to elevate the patient voice in the FDA drug development process. February 23, 2023
GFPD Patient Ambassador Jayla Morrison and Mother, Courtney, Advocate in Colorado for Peroxisomal Disorders Awareness February 2, 2023
Not All Supplements Are Safe January 11, 2023
GFPD joins with 125 other patient advocacy groups urging congress to support critical rare disease priorities November 16, 2022
GFPD and the Financial Impact of Rare Disease October 1, 2022
GFPD joins with over 100 rare disease organizations to support Accelerating Kids’ Access to Care Act September 8, 2022

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GFPD Values

Our Mission

To improve the lives of individuals with Peroxisomal Disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

GFPD Diversity Statement

Peroxisomal disorders impact individuals of every race, ethnicity, socio-economic status, sex, gender, sexual orientation, belief system, ability, and age. Using our values of inclusion and community as our guide, The GFPD is committed to promoting acceptance and advocating for equality and equity in healthcare and educational settings while combating prejudices, discrimination, and biases. We will engage in this important dialogue with our diverse community by listening and learning from our families, researchers, and professionals.

P.O. Box 33238 Tulsa, OK 74153
Email: contactus@thegfpd.org
Phone: ‪(918) 998-5798‬
Fax: (918) 516-0227

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