Monthly Archives: May 2014
GFPD Summer 2014 e-Newsletter
Read the GFPD 2014 Summer e-Newsletter for GFPD news, our Family Spotlight story about the...
The Voice’s Kiki deVille: ‘I’ve learnt it’s OK to laugh again’
Read about “The Voice” contestant and PBD mom Kiki deVille’s experience with her son Dexter,...
Upcoming Ilan-a-thon 5k Race in the News
The Baltimore Guide has written about the upcoming Ilan-a-thon 5k race. The 2nd Annual Ilan-a-thon...
Invitation to FDA Public Meeting on Neurologic Manifestations of Inborn Errors of Metabolism
The FDA is looking for patient advocate voices at their Public Meeting on Neurologic Manifestations...
Get to Know 2014 Ilan-a-Thon Honoree Livi Menard
Recently, I had the privilege of interviewing Jen Menard, mother to this year’s Ilan-a-thon honoree,...
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May
May
Pound the Pavement for Peter 5k a HUGE Success!
Congratulations to the Pound the Pavement for Peter team for another successful 5k run in...