170 patient organizations have signed on to the linked letter of support urging Congress to...
Jackson Laboratory Director, Technology Evaluation and Development Aamir Zuberi, Ph.D., along with co-principal investigators Joseph Hacia,...
Thank you to the Heath family for sharing Molly Kate’s story to bring awareness of...
Thank you to the Clouse family for sharing Gwendolyn’s story for awareness around peroxisomal disorders...
Thank you to Kathleen Maynard for sharing her story with the Herald-Dispatch in order to...
Global Rare Disease Organization to Host 2024 Family and Scientific Conference to Include Fellowship Program...