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    The Global Foundation for Peroxisomal DisordersThe Global Foundation for Peroxisomal Disorders
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      • What are peroxisomal disorders
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    Blog

    Remembering Jordan: GFPD Family in the News

    The Highlands Today edition of the Tampa Tribune recently shared the story of one PBD family.

    http://highlandstoday.com/hi/local-news/remembering-jordan-20131005/

    Recent Posts
    • THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS ANNOUNCES NEW EXECUTIVE DIRECTOR September 16, 2024
    • BACK TO SCHOOL SERIES: TACTILE TECHNIQUES FOR DEAFBLIND LEARNERS September 3, 2024
    • BACK TO SCHOOL SERIES: INDIVIDUALIZED EDUCATION PROGRAM (IEP) September 3, 2024
    • BACK TO SCHOOL SERIES: MODIFICATIONS AND ACCOMMODATIONS August 28, 2024
    • BACK TO SCHOOL SERIES: PYRAMID OF LEARNING August 22, 2024
    • The Impact of Community Connections for GFPD Warriors July 25, 2024
    • Developing Retinal Gene Therapy for Zellweger Spectrum Disorder Question and Answer with Catherine Argyriou, BSc (Hons.), MSc, PhD. July 10, 2024
    • (no title) May 15, 2024
    • Melissa Bryce, Executive Director, to step down in September 2024 March 14, 2024
    • Italian Family Making a Global Impact and Shines a Light on Rare Disease Day March 4, 2024
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    GFPD Values

    Our Mission

    To improve the lives of individuals with Peroxisomal Disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

    GFPD Diversity Statement

    Peroxisomal disorders impact individuals of every race, ethnicity, socio-economic status, sex, gender, sexual orientation, belief system, ability, and age. Using our values of inclusion and community as our guide, The GFPD is committed to promoting acceptance and advocating for equality and equity in healthcare and educational settings while combating prejudices, discrimination, and biases. We will engage in this important dialogue with our diverse community by listening and learning from our families, researchers, and professionals.

    • P.O. Box 33238 Tulsa, OK 74153
    • Email: contactus@thegfpd.org
    • Phone: ‪(918) 998-5798‬
    • Fax: (918) 516-0227
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    © 2024 by The GFPD.

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      Rare Foundation Alliance
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      RDDC logo
      • Welcome
        • Welcome from the Executive Director
      • Peroxisomal Disorders
        • Facts at a Glance
        • How do I get a diagnosis?
        • Signs and Symptoms
        • Types of peroxisomal disorders
        • What are peroxisomal disorders
      • About Us
        • Achievement Timeline
        • Board of Directors
        • Impact Report
        • Medical and Scientific Advisors
        • Our History
        • Our Mission
        • Our Partners
        • Our Team
        • Our Work
      • Support & Resources
        • A Letter to Newly Diagnosed Parents
        • Bereavement Resources
        • Care Resources
        • Equipment Exchange
        • Family Directory
        • GFPD Support Groups
        • Information for Newly Diagnosed Patients
        • Meet our GFPD Warriors
        • Request Support
      • Research
        • Clinical Trials
        • Current Research
        • Fellowships
        • Past Scientific Conferences
        • Scholarly Articles
        • GFPD Patient Registry
      • Events
        • Rare Disease Day
        • 2024 Family and Scientific Conference
        • May 28, 2024 Externally-Led Patient-Focused Drug Development Meeting
        • Past Conferences
        • Hues for Hope
        • Pause for the GFPD
        • Walk Run Ride
      • More
        • Advocate
        • Community Directory
        • Donate
        • Fundraise
        • Hope Hero
        • Join a Committee
        • News
        • Shop GFPD Gear
        • Take Action
      • Donate
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