In honor of World Rare Disease Day, blogger Jennifer Hazard wrote about her nephew Jack and his life with PBD-ZSD on her website Cute Potato:
http://cutepotato.com/2014/02/28/show-your-love-redux-running-for-hope/
We love hearing about Jack’s recent successes and look forward to seeing him, along with his family, at the Ilan-a-thon 5k Family Run in Baltimore, MD in June!