This article in today’s New York Times tells a familiar story about families seeking treatment for their children suffering from a rare disease. Like those families, our families also rely on Dr. Nancy Braverman of McGill University in Montreal for much of our hope. Dr. Braverman is a researcher dedicated to PBD-ZSD and other related rare diseases, and attends our Family & Scientific Conferences to meet with our families and children with PBD.
We’re so pleased to read of her successes with RCDP and wish the RhizoKids families and children the best of luck with their future drug trial.