Rare Disease Day Advocacy News

The last day of each February is World Rare Disease Day, a time to raise awareness for rare disease. This day allows us to focus on advocacy work being done, as well as on the need for further advances in research and the development of medical treatment options for the approximately 7,000 rare diseases that impact more than 350 million people globally.The GFPD is encouraging our families and friends to recognize this special day on social media and within their communities. Visit us on Facebook to see the social media shareables we’ve created featuring many of our children and families, and help us show the world the beautiful faces of PBD-ZSD….

Read More for advocacy news, ways to get involved, and events to attend to support the mission of the GFPD: