Monthly Archives: November 2017
Surviving the firsts, (and seconds, thirds, fourths and…..) after the loss of a child with Zellweg
It was Christmas time. I was opening a box of decorations and as I looked...
28
Nov
Nov
The GFPD Fall Newsletter
Happy Thanksgiving week everyone! We have mailed out our fall newsletter but it is...
NJ mom to run Philly marathon to bring attention to rare disease
De Jesus says that it was a specialist in Canada who diagnosed Jaxson with Peroxisomal...
The family of Thomas Thériault honors their son on Pause for PBD
This year, we wanted to do something to honor our son, Thomas, and all the...
07
Nov
Nov