October 5 is a special day for our family as we celebrate Pause for PBD, the annual awareness day for The Global Foundation for Peroxisomal Disorders (GFPD). I invite the Telegraph readership to join our family and do an act of kindness to mark the day. Raising public awareness truly makes a difference. It gives families hope and can lead to new, life-saving treatments. I encourage everyone reading this to get involved by visiting the GFPD website: www.thegfpd.org, or finding us on Facebook and twitter @globalfoundpd or Instagram @thegfpd to learn about what you can do to support individuals and families impacted by PBD.
My daughter, Kenna, is 9 years old and is one of 175 children living worldwide with Peroxisomal Biogenesis Disorder (PBD). Kenna is a happy little girl who loves Elmo, Pete the Cat books, and listening to children’s music. She attends Eastwood Elementary School. Kenna leaves everyone she encounters with a smile.