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News

​Good Day Tulsa interview with Jen Kerckhoff and Emily Webb about Hues for Hope.

https://ktul.com/good-day-tulsa/segments/hues-for-hope

Recent Posts
  • The GFPD and the Rare Disease Community Urges States to Take Advantage of Funding to Screen More Babies April 8, 2022
  • Governor Youngkin Announces Addition of Two New Disorders to Virginia’s Newborn Screening Program March 23, 2022
  • Rare Disease Day February 23, 2022
  • GFPD Supports Legislation for Newborn Screening in Iowa February 20, 2022
  • The GFPD Creates a Diversity Committee to Promote Greater Health Equity for Warriors and their Families. January 28, 2022
  • GFPD Diversity Statement January 4, 2022
  • Tips for traveling with your GFPD Warrior this holiday season! December 16, 2021
  • GFPD Inclusive Holiday Tips December 8, 2021
  • Hospice and Palliative Care – Making Special Moments Possible November 16, 2021
  • National Disability Employment Awareness Month October 16, 2021
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    GFPD Values

    Our Mission

    To improve the lives of individuals with Peroxisomal Disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

    GFPD Diversity Statement

    Peroxisomal disorders impact individuals of every race, ethnicity, socio-economic status, sex, gender, sexual orientation, belief system, ability, and age. Using our values of inclusion and community as our guide, The GFPD is committed to promoting acceptance and advocating for equality and equity in healthcare and educational settings while combating prejudices, discrimination, and biases. We will engage in this important dialogue with our diverse community by listening and learning from our families, researchers, and professionals.

    CONTACT

    P.O. Box 33238
    Tulsa, OK 74153

    CONTACT US

    Email: contactus@thegfpd.org
    Phone: ‪(405) 418-6061‬
    Fax: (918) 516-0227

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    • Welcome
    • Peroxisomal Disorders
      • What are peroxisomal disorders
      • Types of peroxisomal disorders
      • Signs and Symptoms
      • How do I get a diagnosis?
      • Facts at a Glance
    • About Us
      • Our Work
      • Our Mission
      • Our History
      • Achievement Timeline
      • Board of Directors
      • Scientific Advisory Board
      • Our Team
      • Our Partners
      • Impact Reports
    • Support and Resources
      • Family Directory
      • A Letter to Newly Diagnosed Parents
      • Information for Newly Diagnosed Patients
      • Care Resources
      • Bereavement Resources
      • Support Groups
      • Meet our GFPD Warriors
      • Equipment Exchange
    • Research
      • Current Research
      • Clinical Trials
      • Scholarly Articles
      • Past Scientific Conferences
    • Events
      • GFPD 2022 Family & Scientific Conference
    • More
      • Take Action
      • Advocate
      • Pause for The GFPD
      • Fundraise
      • Donate
      • Join a Committee
      • Shop
      • News
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    • Blog