The GFPD was one of 12 patient organizations who recently sent a letter urging nine...
RICHMOND, VA – Governor Glenn Youngkin today announced the addition of two new disorders to...
HSB 690 /SSB 3122 both passed out of their respective committees in the Iowa State...
At the Global Foundation for Peroxisomal Disorders, we realized early on that equity is a...
Traveling for everyone during the holidays can often be a stressful and frustrating experience. Add...
Gatherings can be challenging for our GFPD warriors and their caregivers, especially when being held...
“We recommend calling in hospice care.” The words that every terminally ill patient and their...
This year, NDEAM’s theme is “America’s Recovery: Powered by Inclusion,” focusing on employment/economic opportunity, as...
October is liver awareness month and we reached out to Dr. Nancy Braverman at McGill...
The GFPD is proud to partner with The EveryLife Foundation for Rare Diseases and several...