Author Archives: GFPD
Pound the Pavement for Peter
Pound the Pavement for Peter returns this year on March 24th for the eighth annual...
Mar
Health on Earth Episode featuring Christine Yergeau of McGill University
McGill graduate, Christine Yergeau sat down with CKUT’s Health on Earth Podcast to discuss peroxisomal...
Rare Disease Day
The GFPD is excited to once again be...
Peoria family promotes Rare Diseases Day for 7-year-old son
It was a horrible diagnosis, but looking back, Pamela Marshall is thankful her son Ethan...
Newsmaker: Tulsa-based Peroxisomal foundation names director, board
The Tulsa-based Global Foundation for Peroxisomal Disorders has named Melissa Bryce Gamble as its first...
Champion of the 2017 AmorChem KNOCK OUT event: Team Braverman!
Dr. Braverman’s work focuses on genes responsible for the proper function of peroxisomes, which are...
Texas Parents Calm Baby with Kisses Before Learning He’s Blind: ‘We Didn’t Know What Was Wrong’
Gideon Jolicoeur, 4, was born with a rare condition that impacts his hearing and eyesight...
How You Can Help
When our son passed away our lives changed forever. Throughout the first year we found...
Dec
Family makes every moment count with terminal son
Jaxon’s health has had a backslide lately. The hospice nurses hope he will make it...
Surviving the firsts, (and seconds, thirds, fourths and…..) after the loss of a child with Zellweg
It was Christmas time. I was opening a box of decorations and as I looked...
Nov