Author Archives: GFPD
The GFPD Fall Newsletter
Happy Thanksgiving week everyone! We have mailed out our fall newsletter but it is...
NJ mom to run Philly marathon to bring attention to rare disease
De Jesus says that it was a specialist in Canada who diagnosed Jaxson with Peroxisomal...
The family of Thomas Thériault honors their son on Pause for PBD
This year, we wanted to do something to honor our son, Thomas, and all the...
Nov
This unicorn wheelchair costume is truly magical
She's five-years-old, loves all things pink and glitter, and will be sporting a pretty magical...
A walk for a child with a rare disease in Saint-Quentin
Thomas Thériault, of Saint-Quentin, will celebrate his second birthday on November 24. His community recently...
A Mother’s Story: Krista Cowan Discusses her PBD Journey with 11-year old Jadin
Tell me about Jadin’s birth. Were there any complications? Jadin Charles Cowan was born on...
Oct
Jersey County Journal – Letter to Editor for Pause for PBD
The Jersey County Journal featured a letter to the editor, from Vicky Maag, about our...
GFPD Dinner Dance to Bring Modesto, California Community Together on 10/7/2017
The GFPD Dinner Dance is a biennial fundraiser that Jose and Carolina Alfaro began in...
Oct
Pause for PBD
Melissa Bryce Gamble shares the story of her daughter Ginny's battle with a peroxisome biogenesis...
Business Perspective with Melissa Bryce Gamble: Use this checklist to start your nonprofit
Melissa Bryce Gamble is president and co-founder of the Global Foundation for Peroxisomal Disorders, which...