Author Archives: GFPD
Researcher to Conduct PBD-ZSD Natural History Study
The Global Foundation for Peroxisomal Disorders is assisting Dr. Nancy Braverman, M.S., M.D. (Associate Professor...
Hearts Advocating Needs for Deafblind Services: The Newsletter of the Illinois Advocates for the Deafblind (IADB)
Maria McCarrick, mother of Katherine McCarrick, contributed this article in the most recent newsletter for...
December 2011 Update
Follow the link below to read the GFPD’s year-end update letter from President Shannon Butalla:...
Webinar with University of Alberta Researchers
Follow the link below to hear a 2011 presentation by researchers from the University of...
Aspen Pollock in the News
Aspen Pollock, a thirteen-year-old girl with a Peroxisome Biogenesis Disorder, won first place at the...
Oct
First ever multi-cellular model of rare disease developed at the University of Alberta
First ever multi-cellular model of rare disease developed at the University of Alberta. http://www.med.ualberta.ca/Home/NewsEvents/News/article.cfm?ID=2288
Pound the Pavement for PBDs- Tulsa, Ok- “Jogging for Ginny”
Pound the Pavement for PBDs is the official Run/ Walk Fundraising Event for the Global...
Zellfest 2012
Jennifer Murphy and her son, Clayton were featured on the news in San Antonio to...
GFPD Conference Updates
We had an amazing first conference in Omaha, Nebraska July 31 – August 2nd! Thanks...
Thank You For Visiting!
Thanks for visiting the online home of The Global Foundation for Peroxisomal Disorders (GFPD). We...