2024 #PAUSEfortheGFPD Op-Eds
We are grateful to the Guise, Gratton, and DelSorbo families for composing Op-Eds in support...
Nov
THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS ANNOUNCES NEW EXECUTIVE DIRECTOR
After co-founding The Global Foundation for Peroxisomal Disorders (GFPD), and 14 years of tireless dedication,...
Sep
BACK TO SCHOOL SERIES: TACTILE TECHNIQUES FOR DEAFBLIND LEARNERS
As summer draws to a close in the US, families across the country are preparing...
Sep
BACK TO SCHOOL SERIES: INDIVIDUALIZED EDUCATION PROGRAM (IEP)
As summer draws to a close in the US, families across the country are preparing...
Sep
BACK TO SCHOOL SERIES: MODIFICATIONS AND ACCOMMODATIONS
As summer draws to a close in the US, families across the country are preparing...
Aug
BACK TO SCHOOL SERIES: PYRAMID OF LEARNING
As summer draws to a close in the US, families across the country are preparing...
Aug
The Impact of Community Connections for GFPD Warriors
One of the most impactful aspects of the GFPD Family and Scientific Conferences is the...
Jul
Italian Family Making a Global Impact and Shines a Light on Rare Disease Day
Rare Disease Week is held every year during the last week of February and Rare Disease...
GFPD Family And Scientific Conference: Warrior Camp Fellowship
Global Rare Disease Organization to Host 2024 Family and Scientific Conference to Include Fellowship Program...
Dec
GFPD Family and Scientific Conference – Externally Led – Patient Focused Drug Development
Global Rare Disease Organization to Host 2024 Family and Scientific Conference to Include Patient Focused...
Nov
Orientation and Mobility: What is it? How can it benefit a GFPD Warrior? Who provides these services and what should I consider before requesting them?Â
The GFPD has you covered! Read below to learn all about these important services and...
Oct
Brain Awareness Week March 13-19, 2023
Brain Awareness Week is a global campaign during the week of March 13-19, 2023. There...
Mar
Advocacy Resources: Elevate your elevator pitch with David Lapidus
David Lapidus, Board Member for The GFPD, helped train the GFPD Rare Disease Day team...
Mar
GFPD Advocacy Initiatives to Improve the Lives of Individuals with Peroxisomal Disorders
The GFPD is bringing a team of 20 individuals to advocate for rare disease initiatives...
Mar
GFPD Patient Ambassador Jayla Morrison and Mother, Courtney, Advocate in Colorado for Peroxisomal Disorders Awareness
Becoming a teenager is a big milestone for any young American, but Jayla Morrison’s 13th...
Feb
Not All Supplements Are Safe
Having a rare, multi-system disease like a peroxisomal disorder often means taking multiple medications and...
Jan
GFPD joins with 125 other patient advocacy groups urging congress to support critical rare disease priorities
The GFPD is proud to be one of 126 organizations, representing or treating patients impacted...
Nov
GFPD and the Financial Impact of Rare Disease
Earlier this year, the GFPD received a grant from Global Genes to support our conference...
Oct
F2FC Groups Now Enrolling
Do you want to connect with other GFPD families? We are excited to share about...
Aug
The third annual GFPD Warrior Walk Run Ride on September 30th – October 2nd
The third annual GFPD Warrior Walk Run Ride is quickly approaching! Celebrate all GFPD Warriors...
Aug
The GFPD’s Corin Chapman and Catherine Argyriou present at the World Orphan Drug Congress in Boston
GFPD Board Member, Corin Chapman and Catherine Argyriou, postdoctoral fellow, Braverman Lab, McGill University recently...
Aug
Rare Disease Day
Do you have your colorful stripes ready?! Rare Disease Day is February 28th! For 14...
Feb
The GFPD Creates a Diversity Committee to Promote Greater Health Equity for Warriors and their Families.
The GFPD Creates a Diversity Committee to Promote Greater Health Equity for Warriors and their...
Jan
GFPD Diversity Statement
At the Global Foundation for Peroxisomal Disorders, we realized early on that equity is a...
Jan
Tips for traveling with your GFPD Warrior this holiday season!
Traveling for everyone during the holidays can often be a stressful and frustrating experience. Add...
Dec