Category Archives: Blog
2024 #PAUSEfortheGFPD Op-Eds
We are grateful to the Guise, Gratton, and DelSorbo families for composing Op-Eds in support...
Nov
THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS ANNOUNCES NEW EXECUTIVE DIRECTOR
After co-founding The Global Foundation for Peroxisomal Disorders (GFPD), and 14 years of tireless dedication,...
Sep
BACK TO SCHOOL SERIES: TACTILE TECHNIQUES FOR DEAFBLIND LEARNERS
As summer draws to a close in the US, families across the country are preparing...
Sep
BACK TO SCHOOL SERIES: INDIVIDUALIZED EDUCATION PROGRAM (IEP)
As summer draws to a close in the US, families across the country are preparing...
Sep
BACK TO SCHOOL SERIES: MODIFICATIONS AND ACCOMMODATIONS
As summer draws to a close in the US, families across the country are preparing...
Aug
BACK TO SCHOOL SERIES: PYRAMID OF LEARNING
As summer draws to a close in the US, families across the country are preparing...
Aug
The Impact of Community Connections for GFPD Warriors
One of the most impactful aspects of the GFPD Family and Scientific Conferences is the...
Jul
Italian Family Making a Global Impact and Shines a Light on Rare Disease Day
Rare Disease Week is held every year during the last week of February and Rare Disease...
GFPD Family And Scientific Conference: Warrior Camp Fellowship
Global Rare Disease Organization to Host 2024 Family and Scientific Conference to Include Fellowship Program...
Dec
GFPD Family and Scientific Conference – Externally Led – Patient Focused Drug Development
Global Rare Disease Organization to Host 2024 Family and Scientific Conference to Include Patient Focused...
Nov