https://everylifefoundation.org/voter-voice/?vvsrc=%2fcampaigns%2f80975%2frespond...
Over the past year, millions of family caregivers found themselves needing to isolate or take...
At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be...
On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy...
To remember their daughter and help other families who are in a similar situation, Christopher...
Archer is one of fewer than 1,000 children living worldwide with PBD-ZSD. ...
Happy first day of summer! Due to Covid-19, we haven’t been able to do a...
Most peroxisomal disorders are rare, genetic (autosomal recessive) conditions that are often terminal and affect...
PBD-ZSD affects approximately one in 50,000 live births and while the exact number of individuals...
Peroxisomal Biogenesis Disorder (also known as Zellweger Spectrum Disorder), is a rare, genetic, condition affecting...