Category Archives: Uncategorized
Support local baby Oct. 5 on Pause for the GFPD Awareness Day
Archer is one of fewer than 1,000 children living worldwide with PBD-ZSD. That is why...
Happy First Day of Summer!!
Happy first day of summer! Due to Covid-19, we haven’t been able to do a...
Jun
Types of peroxisomal disorders: peroxisomal biogenesis disorders and single enzyme protein deficienc
Most peroxisomal disorders are rare, genetic (autosomal recessive) conditions that are often terminal and affect...
Feb
#PauseForPBD: A SLU Doctoral Student Shares His Son’s Journey
PBD-ZSD affects approximately one in 50,000 live births and while the exact number of individuals...
Letter to the Editor: Do an act of kindness to mark Pause for PBD
Peroxisomal Biogenesis Disorder (also known as Zellweger Spectrum Disorder), is a rare, genetic, condition affecting...
Bloomington’s Harmony Park will be a place for every kid to play
Four nonprofits partner to develop inclusive playground
Hope Gets You Through: An Interview with Meagan Holt
Meagan Holt is a portrait of strength—she’s lost multiple babies and her two-year old daughter,...
May
GFPD Medical Advisory Board Member Awarded NIH Grant
Congratulations to GFPD Medical Advisory Board member Dr. William Rizzo who has received a five...
UNMC researcher heads $3.3 million national study
Dr. Rizzo said several of the diseases are so rare that between 500 and 1,000...