Author Archives: GFPD
The Voice’s Kiki deVille: ‘I’ve learnt it’s OK to laugh again’
Read about “The Voice” contestant and PBD mom Kiki deVille’s experience with her son Dexter,...
Upcoming Ilan-a-thon 5k Race in the News
The Baltimore Guide has written about the upcoming Ilan-a-thon 5k race. The 2nd Annual Ilan-a-thon...
Invitation to FDA Public Meeting on Neurologic Manifestations of Inborn Errors of Metabolism
The FDA is looking for patient advocate voices at their Public Meeting on Neurologic Manifestations...
Get to Know 2014 Ilan-a-Thon Honoree Livi Menard
Recently, I had the privilege of interviewing Jen Menard, mother to this year’s Ilan-a-thon honoree,...
May
Pound the Pavement for Peter 5k a HUGE Success!
Congratulations to the Pound the Pavement for Peter team for another successful 5k run in...
Madeline Holt in the News
Sixteen month old Madeline Holt is in the news, along with her mother Meagan. Meagan...
GFPD Family Profiled on CutePotato.com
In honor of World Rare Disease Day, blogger Jennifer Hazard wrote about her nephew Jack...
GFPD Families Celebrate World Rare Disease Day 2014
GFPD families are celebrating World Rare Disease Day by wearing jeans. Here are just a...
Mar
Save the Date for Pound the Pavement for Peter in Atlanta, GA
Save the date for the Pound the Pavement for Peter 5k Race! This year’s race...
Support GFPD with AmazonSmile
Now when you shop at AmazonSmile, Amazon with donate to Global Foundation for Peroxisomal Disorders....
Feb