The New Year is here and we at the GFPD have hit the ground running,...
In a years-long effort, GFPD Family and Scientific Liaison Dr. Mousumi Bose has headed up...
Carolina and Jose Alfaro recently celebrated the lives of their children with their third Dinner...
The Fall 2015 e-Newsletter has been released and features stories about all the work our...
Contributed by Jennifer Hazard of Cute Potato When communities work together to support one...
When Max was diagnosed with PBD, my husband and I were devastated to learn that...
GFPD Co-Founder Melissa Gamble recently shared the story of her daughter Ginny’s birth and their...
In September, our UK families got together for their very first PBD family meet up,...
We absolutely LOVE this beautiful image, created by GFPD Scientific Advisory Board member Dr. Joseph...
This article in today’s New York Times tells a familiar story about families seeking treatment...