Read about “The Voice” contestant and PBD mom Kiki deVille’s experience with her son Dexter,...
The Baltimore Guide has written about the upcoming Ilan-a-thon 5k race. The 2nd Annual Ilan-a-thon...
The FDA is looking for patient advocate voices at their Public Meeting on Neurologic Manifestations...
Recently, I had the privilege of interviewing Jen Menard, mother to this year’s Ilan-a-thon honoree,...
Congratulations to the Pound the Pavement for Peter team for another successful 5k run in...
Sixteen month old Madeline Holt is in the news, along with her mother Meagan. Meagan...
In honor of World Rare Disease Day, blogger Jennifer Hazard wrote about her nephew Jack...
GFPD families are celebrating World Rare Disease Day by wearing jeans. Here are just a...
Save the date for the Pound the Pavement for Peter 5k Race! This year’s race...
Now when you shop at AmazonSmile, Amazon with donate to Global Foundation for Peroxisomal Disorders....