Author Archives: GFPD
Support local baby Oct. 5 on Pause for the GFPD Awareness Day
Archer is one of fewer than 1,000 children living worldwide with PBD-ZSD. That is why...
Gainesville parents raise awareness of rare disorder, PBD, which claimed daughter’s life
To remember their daughter and help other families who are in a similar situation, Christopher...
Gainesville parents raise awareness of rare disorder, PBD, which claimed daughter’s life
To remember their daughter and help other families who are in a similar situation, Christopher...
Support local baby Oct. 5 on Pause for the GFPD Awareness Day
Archer is one of fewer than 1,000 children living worldwide with PBD-ZSD. That is why...
Happy First Day of Summer!!
Happy first day of summer! Due to Covid-19, we haven’t been able to do a...
20
Jun
Jun
Building our Little Room – Follow up from “Discovering Our Connections- GFPD Virtual Meetup”
Recently I attended the Discovering Our Connections Virtual Family Meetup hosted by the GFPD. I...
05
Jun
Jun
History of peroxisome biogenesis disorder-Zellweger spectrum disorder (PBD-ZSD) Terminology
The GFPD was founded in 2010 to fill an unmet need to...
21
May
May
Honoring Our Bereaved Mothers
Alone and in the darkness, often feeling so incredibly hopeless: this was the reality of...
03
May
May