Category Archives: Blog
GFPD Family Organizes Vigil for Infant Loss Rememberance Day
Meagan Holt, mother to Madeline and Olivia, organized a candle lighting event in Everett, WA...
#PauseforPBDs on October 5, 2014
unday, October 5, 2014 is The Global Foundation for Peroxisomal Disorders 4th birthday! Show support...
Recent advancements in PBD research
Exciting news about recent advancements in the study of peroxisomal disorders at the University of...
Sep
GFPD President on Rare Disease Fundraising and the Ice Bucket Challenge
GFPD President, Shannon Butalla, recently shared some thoughts on the Ice Bucket Challenge benefiting ALS...
A Military Mom of Four and Former Homeschooler Shares Her PBD Experience
Ashley Maple, mother to Sophie (10), Lydia (8), Madden (6), and Archer—who has PBD and...
Aug
GFPD Parent Brings Special Needs Shopping Carts to Her Town
Way to go, Carolina! Thanks to a GFPD mom, children with special needs in Turlock,...
GFPD Summer 2014 e-Newsletter
Read the GFPD 2014 Summer e-Newsletter for GFPD news, our Family Spotlight story about the...
The Voice’s Kiki deVille: ‘I’ve learnt it’s OK to laugh again’
Read about “The Voice” contestant and PBD mom Kiki deVille’s experience with her son Dexter,...
Upcoming Ilan-a-thon 5k Race in the News
The Baltimore Guide has written about the upcoming Ilan-a-thon 5k race. The 2nd Annual Ilan-a-thon...
Get to Know 2014 Ilan-a-Thon Honoree Livi Menard
Recently, I had the privilege of interviewing Jen Menard, mother to this year’s Ilan-a-thon honoree,...
May