Category Archives: Blog

September is Leukodystrophy Disease Awareness Month! What Do You Know About It?

What is Leukodystrophy? Leukodystrophy causes the myelin, or “white matter,” of the brain to progressively...

Family. Research. Hope.

October 5th marks the sixth birthday of the Global Foundation for Peroxisomal Disorders. In just...

Ilan-a-thon 2016: Let the colors shine!

Ilan-a-thon is all about the colors! Well, not really, it’s all about the people, but...

More than a Race, Ilan-a-thon is a Celebration

Following June’s Ilan-a-thon Family 5k, a friend of Ilan and his family shared some thoughts...

Update from the Annual GFPD Scientific Advisory Meeting

The summer is off to a great start for the field of PBD-ZSD research! This...

A Community Rallies Around the Chapman Family

I attended the first annual Tee it Up for the GFPD in honor of two-year-old...

Grandmother Writes Book to Raise Awareness and Funds for the GFPD

Ann Duquette is a children’s book author, educator, dog lover and grandmother to Riley (age...

GFPD Partners to Fund Research at NCATS

The GFPD has partnered with the Wynne Mateffy Research Foundation to fund a research project...

#GFPDisFamily Video Premiers

Attendees at the Tee It Up For The GFPD reception and auction got a first...

GFPD Receives NORD Grant to Conduct Natural History Study

We are excited to announce that the GFPD has been awarded a grant to undertake...