GFPD Co-Founder Melissa Gamble recently shared the story of her daughter Ginny’s birth and their...
In September, our UK families got together for their very first PBD family meet up,...
We absolutely LOVE this beautiful image, created by GFPD Scientific Advisory Board member Dr. Joseph...
This article in today’s New York Times tells a familiar story about families seeking treatment...
A newly published article in the Journal of Metabolic Disease describes a “distinct subgroup within...
Once again, we will be commemorating the GFPD’s birthday on October 5th by inviting our...
Six month old Riley Brown, who has PBD-ZSD, was named “Cutest Baby” in a contest...
We are very moved today at the news that Levi Mayhew’s family, in a time...
We’re really pleased to announce that this year’s Ilan-a-thon 5k is a virtual event that...
Planning for the 2015 Dinner Dance benefiting the GFPD and honoring the memories of Adrian...