Category Archives: Blog
Novo Nordisk Nebraska Supports GFPD
A beautiful balloon launch with the Novo Nordisk Nebraska Districts. Thank you for your support...
Pound the Pavement for Peter 2015
Pound the Pavement for Peter is a Family 5K Run in Atlanta that was started...
GFPD Make-a-Wish Kid Donates Wish
Levi, a boy with PBD who is not well enough to travel for his Make-a-Wish...
High School Robotics Team Creates Car for GFPD Kid
A high school robotics team in Illinois built and donated a custom motorized car to...
GFPD Family Organizes Vigil for Infant Loss Rememberance Day
Meagan Holt, mother to Madeline and Olivia, organized a candle lighting event in Everett, WA...
#PauseforPBDs on October 5, 2014
unday, October 5, 2014 is The Global Foundation for Peroxisomal Disorders 4th birthday! Show support...
Recent advancements in PBD research
Exciting news about recent advancements in the study of peroxisomal disorders at the University of...
Sep
GFPD President on Rare Disease Fundraising and the Ice Bucket Challenge
GFPD President, Shannon Butalla, recently shared some thoughts on the Ice Bucket Challenge benefiting ALS...
A Military Mom of Four and Former Homeschooler Shares Her PBD Experience
Ashley Maple, mother to Sophie (10), Lydia (8), Madden (6), and Archer—who has PBD and...
Aug
GFPD Parent Brings Special Needs Shopping Carts to Her Town
Way to go, Carolina! Thanks to a GFPD mom, children with special needs in Turlock,...