Category Archives: Blog
Kennedy Krieger Institute Launching Moser Center for Leukodystrophies
The Kenney Krieger Institute of Baltimore, MD, is launching the Moser Center for Leukodystrophies. The...
GFPD Fall 2013 e-Newsletter
Read the GFPD 2013 Fall e-Newsletter for updates on GFPD news, our Family Spotlight story...
Diego and Adrian’s 2nd Annual Dinner Dance Benefits GFPD
GFPD Dinner Dance – October 5, 2013 – Turlock, CA The Alfaro family of...
Oct
Remembering Jordan: GFPD Family in the News
The Highlands Today edition of the Tampa Tribune recently shared the story of one PBD...
Save the Date: 2nd Annual Ilan-a-thon 5k in Baltimore, MD
Save the date for the second annual Ilan-a-thon 5k Race! More information to come. ...
Oct
NORD Provides New State Insurance InformationNORD Provides New State Insurance Information
The National Organization for Rare Disorders (NORD) has issued an interactive map detailing state-specific information...
Upcoming Event: 2nd Annual Dinner Dance to Honor Diego and Adrian Alfaro
The Second Annual GFPD Dinner Dance benefiting the Global Foundation for Peroxisomal Disorders in memory...
Aug
GFPD Awards Four Grants
The Global Foundation for Peroxisomal Disorders is pleased to announce the funding of four research...
Aug
Livi Menard in the News
The Clayton News-Star writes about the Menard family’s upcoming trip to Lincoln, NE to participate...
Kloefkorn Cubs for GFPD!
A big thank you to the 4th Grade Students at Kloefkorn Elementary in Lincoln, Nebraska...
Jul