Category Archives: Blog
Remembering Gillian MacLean
The GFPD is heartbroken to report the sudden passing of Gillian MacLean, who worked with...
Mar
GFPD Awarded RARE Impact Innovation Grant for Pilot Study
We are very happy to announce that we have been awarded a...
Feb
GFPD/STAIR Collaboration Invites Patient Input in Research
Among medical professionals, rare diseases like Peroxisome Biogenesis Disorder-Zellweger Spectrum Disorder (PBD-ZSD) are challenging to...
Jan
Retinal Gene Therapy Trial Underway at McGill University
Our dedicated researchers worked hard over the holidays, making great progress on the PBD-ZSD retinal...
Your End of Year Gift Can Make Research a Reality
Season’s Greetings from the Global Foundation for Peroxisomal Disorders! We are wrapping up a...
GFPD Fall 2016 Newsletter
The GFPD’s Fall 2016 Newsletter features stories about all the work our families and supporters...
Nov
Developing a Game Plan for School: One Parent’s Experience with the IEP Process
This month, I had the pleasure of interviewing my sister, Kelly Dauer-Hubschmitt. Her four-year old...
My experience attending the 2016 Deafblind Symposium
“How was your conference?” It’s a question many people have asked me. Others have no...
Oct
September is Leukodystrophy Disease Awareness Month! What Do You Know About It?
What is Leukodystrophy? Leukodystrophy causes the myelin, or “white matter,” of the brain to progressively...
Family. Research. Hope.
October 5th marks the sixth birthday of the Global Foundation for Peroxisomal Disorders. In just...
Sep