“How was your conference?” It’s a question many people have asked me. Others have no...
What is Leukodystrophy? Leukodystrophy causes the myelin, or “white matter,” of the brain to progressively...
October 5th marks the sixth birthday of the Global Foundation for Peroxisomal Disorders. In just...
Ilan-a-thon is all about the colors! Well, not really, it’s all about the people, but...
Following June’s Ilan-a-thon Family 5k, a friend of Ilan and his family shared some thoughts...
The summer is off to a great start for the field of PBD-ZSD research! This...
I attended the first annual Tee it Up for the GFPD in honor of two-year-old...
Ann Duquette is a children’s book author, educator, dog lover and grandmother to Riley (age...
The GFPD has partnered with the Wynne Mateffy Research Foundation to fund a research project...
Attendees at the Tee It Up For The GFPD reception and auction got a first...