Category Archives: News
NJ mom to run Philly marathon to bring attention to rare disease
De Jesus says that it was a specialist in Canada who diagnosed Jaxson with Peroxisomal...
This unicorn wheelchair costume is truly magical
She's five-years-old, loves all things pink and glitter, and will be sporting a pretty magical...
A walk for a child with a rare disease in Saint-Quentin
Thomas Thériault, of Saint-Quentin, will celebrate his second birthday on November 24. His community recently...
Jersey County Journal – Letter to Editor for Pause for PBD
The Jersey County Journal featured a letter to the editor, from Vicky Maag, about our...
Business Perspective with Melissa Bryce Gamble: Use this checklist to start your nonprofit
Melissa Bryce Gamble is president and co-founder of the Global Foundation for Peroxisomal Disorders, which...
Letter: Pause for PBD, think of Ethan
Oct. 5 is a special day for our family as we celebrate Pause for PBD,...
UNMC researcher heads $3.3 million national study
Dr. Rizzo said several of the diseases are so rare that between 500 and 1,000...