Category Archives: News

Health on Earth Episode featuring Christine Yergeau of McGill University

McGill graduate, Christine Yergeau sat down with CKUT’s Health on Earth Podcast to discuss peroxisomal...

Peoria family promotes Rare Diseases Day for 7-year-old son

It was a horrible diagnosis, but looking back, Pamela Marshall is thankful her son Ethan...

Newsmaker: Tulsa-based Peroxisomal foundation names director, board

The Tulsa-based Global Foundation for Peroxisomal Disorders has named Melissa Bryce Gamble as its first...

Champion of the 2017 AmorChem KNOCK OUT event: Team Braverman!

Dr. Braverman’s work focuses on genes responsible for the proper function of peroxisomes, which are...

Texas Parents Calm Baby with Kisses Before Learning He’s Blind: ‘We Didn’t Know What Was Wrong’

Gideon Jolicoeur, 4, was born with a rare condition that impacts his hearing and eyesight...

Family makes every moment count with terminal son

Jaxon’s health has had a backslide lately. The hospice nurses hope he will make it...

NJ mom to run Philly marathon to bring attention to rare disease

De Jesus says that it was a specialist in Canada who diagnosed Jaxson with Peroxisomal...

This unicorn wheelchair costume is truly magical

She's five-years-old, loves all things pink and glitter, and will be sporting a pretty magical...

A walk for a child with a rare disease in Saint-Quentin

Thomas Thériault, of Saint-Quentin, will celebrate his second birthday on November 24. His community recently...

Jersey County Journal – Letter to Editor for Pause for PBD

The Jersey County Journal featured a letter to the editor, from Vicky Maag, about our...