Category Archives: News

#PauseForPBD: A SLU Doctoral Student Shares His Son’s Journey

PBD-ZSD affects approximately one in 50,000 live births and while the exact number of individuals...

Support local baby Oct. 5 on Pause for the GFPD Awareness Day

Archer is one of fewer than 1,000 children living worldwide with PBD-ZSD. That is why...

Running for Riley Fun Run/Walk is another great race for a great cause

Riley grew up playing at White Park, ringing the chimes and riding the swings, so...

Kick It For Max

Kick It For Max A local high school soccer team is helping their coach’s family.

Health on Earth Episode featuring Christine Yergeau of McGill University

McGill graduate, Christine Yergeau sat down with CKUT’s Health on Earth Podcast to discuss peroxisomal...

Peoria family promotes Rare Diseases Day for 7-year-old son

It was a horrible diagnosis, but looking back, Pamela Marshall is thankful her son Ethan...

Newsmaker: Tulsa-based Peroxisomal foundation names director, board

The Tulsa-based Global Foundation for Peroxisomal Disorders has named Melissa Bryce Gamble as its first...

Champion of the 2017 AmorChem KNOCK OUT event: Team Braverman!

Dr. Braverman’s work focuses on genes responsible for the proper function of peroxisomes, which are...

Texas Parents Calm Baby with Kisses Before Learning He’s Blind: ‘We Didn’t Know What Was Wrong’

Gideon Jolicoeur, 4, was born with a rare condition that impacts his hearing and eyesight...

Family makes every moment count with terminal son

Jaxon’s health has had a backslide lately. The hospice nurses hope he will make it...