170 patient organizations have signed on to the linked letter of support urging Congress to...
Jackson Laboratory Director, Technology Evaluation and Development Aamir Zuberi, Ph.D., along with co-principal investigators Joseph Hacia,...
Thank you to the Heath family for sharing Molly Kate’s story to bring awareness of...
Thank you to the Clouse family for sharing Gwendolyn’s story for awareness around peroxisomal disorders...
Thank you to Kathleen Maynard for sharing her story with the Herald-Dispatch in order to...
The GFPD is one of 101 organizations that recently sent a letter to CMS regarding...
Brain Awareness Week is a global campaign during the week of March 13-19, 2023. There...
Congress and the Food and Drug Administration (FDA) have made considerable progress in driving forward...
Becoming a teenager is a big milestone for any young American, but Jayla Morrison’s 13th...
Having a rare, multi-system disease like a peroxisomal disorder often means taking multiple medications and...