Category Archives: Uncategorized
GFPD Family And Scientific Conference: Warrior Camp Fellowship
Global Rare Disease Organization to Host 2024 Family and Scientific Conference to Include Fellowship Program...
Dec
GFPD Family and Scientific Conference – Externally Led – Patient Focused Drug Development
Global Rare Disease Organization to Host 2024 Family and Scientific Conference to Include Patient Focused...
Nov
The GFPD Supports North Carolina HB 736
The GFPD is proud to partner with The EveryLife Foundation for Rare Diseases and several...
The GFPD Supports North Carolina HB 736
https://everylifefoundation.org/voter-voice/?vvsrc=%2fcampaigns%2f80975%2frespond
May
The GFPD advocates for Paid Leave for Family Caregivers Across the Lifespan
Over the past year, millions of family caregivers found themselves needing to isolate or take...
The GFPD (along with hundreds of other U.S. nonprofits) advocates for additional 2021 COVID relief, led by the National Council of Nonprofits.
At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be...
The GFPD joins with the TS Alliance to Advocate for Prioritization of Individuals with Rare Diseases and their Caregivers to have Immediate access to COVID-19 Vaccines.
On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy...
Gainesville parents raise awareness of rare disorder, PBD, which claimed daughter’s life
To remember their daughter and help other families who are in a similar situation, Christopher...
Support local baby Oct. 5 on Pause for the GFPD Awareness Day
Archer is one of fewer than 1,000 children living worldwide with PBD-ZSD. That is why...
Happy First Day of Summer!!
Happy first day of summer! Due to Covid-19, we haven’t been able to do a...
Jun