Author Archives: GFPD

Letter: Pause for PBD, think of Ethan

Oct. 5 is a special day for our family as we celebrate Pause for PBD,...

Connection to other PBD families brings Montesclaros family back to 2017 Family and Scientific GFPD

The GFPD Family & Scientific Conference is for everybody – families with living children with...

Running for Riley to benefit the GFPD

Sunday, June 11th, the residents of Concord, NH will come together at White Park to...

Running for Riley to benefit the GFPD

Sunday, June 11th, the residents of Concord, NH will come together at White Park to...

Connection to other PBD families brings Montesclaros family back to 2017 Family and Scientific GFPD Conference

The GFPD Family & Scientific Conference is for everybody – families with living children with...

PBD-ZSD Focus Group to take place at the Family & Scientific Conference

The ZSD Focus Group Project A program coordinated by the Global Foundation for Peroxisomal Disorders...

Conference childcare provided by longtime volunteers and friends of the GFPD

We’re getting excited to welcome families to the 5th GFPD Family & Scientific Conference in...

Scientific collaboration bringing GFPD Conference to Washington, DC this summer

Our Conference Planning Committee has been hard at work for months getting ready for what...

Please join our family at the GFPD Conference in Washington, DC this summer

Greetings GFPD families, It is hard to believe that in less than three months many...

Remembering Gillian MacLean

The GFPD is heartbroken to report the sudden passing of Gillian MacLean, who worked with...