Category Archives: Blog

GFPD Winter 2013 Newsletter

Check out the GFPD 2013 Winter Newsletter for research updates, information about past and future...

Upcoming Event: First Annual Ilan-a-thon 5K Memorial Run/Walk

On April 21, 2013, we will be holding the First Anual Ilan-a-thon 5K Memorial Run/Walk...

Art for Archer – Meridian, MS

Our community of Meridian, Mississippi came together on October 20, 2012 for Art for Archer....

Painting for PBDs – Louisville, KY

To mark the one year anniversary of our son Chase’s death, we hosted “Painting for...

Pound the Pavement for Peter – Atlanta, GA

The Global Foundation for Peroxisomal Disorders was very grateful to be the 2012 recipient of...

December 2012 Update

Follow the link below to read the GFPD’s year-end update letter from President Shannon Butalla:...

GFPD Fall 2012 Newsletter

The GFPD celebrated its second birthday in October 2012! Check out the GFPD Fall 2012...

Hearts Advocating Needs for Deafblind Services: The Newsletter of the Illinois Advocates for the Deafblind (IADB)

Maria McCarrick, mother of Katherine McCarrick, contributed this article in the most recent newsletter for...

December 2011 Update

Follow the link below to read the GFPD’s year-end update letter from President Shannon Butalla:...

Webinar with University of Alberta Researchers

Follow the link below to hear a 2011 presentation by researchers from the University of...