Category Archives: Blog
National Volunteer Week: Fast Five Questions with Bishop Kelley High School Junior Brian Limekiller
Tell me about the volunteer work you’ve done for the GFPD. My school hosted a...
Apr
National Volunteer Week: Longtime Volunteer Helps Connect Families with the Global Foundation for Peroxisomal Disorders
Pamela Marshall has been the Support Group Coordinator for the Global Foundation for Peroxisomal Disorders...
How to Work with Doctors and Hospice Care
Claire Helms is a wife, mother and family practice nurse who lives in Louisiana. Her...
Apr
Pound the Pavement for Peter
Pound the Pavement for Peter returns this year on March 24th for the eighth annual...
Mar
Rare Disease Day
The GFPD is excited to once again be...
How You Can Help
When our son passed away our lives changed forever. Throughout the first year we found...
Dec
Surviving the firsts, (and seconds, thirds, fourths and…..) after the loss of a child with Zellweg
It was Christmas time. I was opening a box of decorations and as I looked...
Nov
The GFPD Fall Newsletter
Happy Thanksgiving week everyone! We have mailed out our fall newsletter but it is...
The family of Thomas Thériault honors their son on Pause for PBD
This year, we wanted to do something to honor our son, Thomas, and all the...
Nov
A Mother’s Story: Krista Cowan Discusses her PBD Journey with 11-year old Jadin
Tell me about Jadin’s birth. Were there any complications? Jadin Charles Cowan was born on...
Oct