Category Archives: News

The GFPD advocates for Paid Leave for Family Caregivers Across the Lifespan
April 26, 2021

Over the past year, millions of family caregivers found themselves needing to isolate or take...

The GFPD joins with the TS Alliance to Advocate for Prioritization of Individuals with Rare Diseases and their Caregivers to have Immediate access to COVID-19 Vaccines.

On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy...

25
Mar
The GFPD (along with hundreds of other U.S. nonprofits) advocates for additional 2021 COVID relief, led by the National Council of Nonprofits.

At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be...

22
Mar
The GFPD (along with hundreds of other U.S. nonprofits) advocates for additional 2021 COVID relief, led by the National Council of Nonprofits.
March 2, 2021

At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be...

The GFPD joins with the TS Alliance to Advocate for Prioritization of Individuals with Rare Diseases and their Caregivers to have Immediate access to COVID-19 Vaccines.
February 12, 2021

On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy...

UNMC researcher heads $3.3 million national study

Dr. Rizzo said several of the diseases are so rare that between 500 and 1,000...

03
Feb
Letter: Pause for PBD, think of Ethan

Oct. 5 is a special day for our family as we celebrate Pause for PBD,...

03
Feb
Business Perspective with Melissa Bryce Gamble: Use this checklist to start your nonprofit

Melissa Bryce Gamble is president and co-founder of the Global Foundation for Peroxisomal Disorders, which...

03
Feb
Pause for PBD

Melissa Bryce Gamble shares the story of her daughter Ginny's battle with a peroxisome biogenesis...

03
Feb
Jersey County Journal – Letter to Editor for Pause for PBD

The Jersey County Journal featured a letter to the editor, from Vicky Maag, about our...

03
Feb