Category Archives: News
The GFPD is pleased to support the BENEFIT Act, to elevate the patient voice in the FDA drug development process.
Congress and the Food and Drug Administration (FDA) have made considerable progress in driving forward...
Feb
GFPD Patient Ambassador Jayla Morrison and Mother, Courtney, Advocate in Colorado for Peroxisomal Disorders Awareness
Becoming a teenager is a big milestone for any young American, but Jayla Morrison’s 13th...
Feb
Not All Supplements Are Safe
Having a rare, multi-system disease like a peroxisomal disorder often means taking multiple medications and...
Jan
GFPD joins with 125 other patient advocacy groups urging congress to support critical rare disease priorities
The GFPD is proud to be one of 126 organizations, representing or treating patients impacted...
Nov
GFPD and the Financial Impact of Rare Disease
Earlier this year, the GFPD received a grant from Global Genes to support our conference...
Oct
The third annual GFPD Warrior Walk Run Ride on September 30th – October 2nd
The third annual GFPD Warrior Walk Run Ride is quickly approaching! Celebrate all GFPD Warriors...
Aug
The GFPD’s Corin Chapman and Catherine Argyriou present at the World Orphan Drug Congress in Boston
GFPD Board Member, Corin Chapman and Catherine Argyriou, postdoctoral fellow, Braverman Lab, McGill University recently...
Aug
The GFPD and the Rare Disease Community Urges States to Take Advantage of Funding to Screen More Babies
The GFPD was one of 12 patient organizations who recently sent a letter urging nine...
Apr
Governor Youngkin Announces Addition of Two New Disorders to Virginia’s Newborn Screening Program
RICHMOND, VA – Governor Glenn Youngkin today announced the addition of two new disorders to...
Mar