Category Archives: Uncategorized
THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS ANNOUNCES NEW EXECUTIVE DIRECTOR
After co-founding The Global Foundation for Peroxisomal Disorders (GFPD), and 14 years of tireless dedication,...
Sep
Developing Retinal Gene Therapy for Zellweger Spectrum Disorder Question and Answer with Catherine Argyriou, BSc (Hons.), MSc, PhD.
Where is Pex1 normally expressed in the mouse retina (e.g. what cell types)? PEX1 is...
Melissa Bryce, Executive Director, to step down in September 2024
The Global Foundation for Peroxisomal Disorders (GFPD) announces that Melissa Bryce will step down as...
Minor changes to the Inflation Reduction Act (IRA) will make a big difference for rare disease patients.
170 patient organizations have signed on to the linked letter of support urging Congress to...
NIH grant establishes Mouse Mutant Peroxisome Research Resource
Jackson Laboratory Director, Technology Evaluation and Development Aamir Zuberi, Ph.D., along with co-principal investigators Joseph Hacia,...
Pause for the GFPD
Thank you to the Heath family for sharing Molly Kate’s story to bring awareness of...
‘Pause’ for rare genetic disorder
Thank you to the Clouse family for sharing Gwendolyn’s story for awareness around peroxisomal disorders...
Letter to the editor: Oct. 5 is a day of remembrance for people with PBD
Thank you to Kathleen Maynard for sharing her story with the Herald-Dispatch in order to...