Author Archives: GFPD
The GFPD and the Rare Disease Community Urges States to Take Advantage of Funding to Screen More Babies
The GFPD was one of 12 patient organizations who recently sent a letter urging nine...
Apr
Governor Youngkin Announces Addition of Two New Disorders to Virginia’s Newborn Screening Program
RICHMOND, VA – Governor Glenn Youngkin today announced the addition of two new disorders to...
Mar
Rare Disease Day
Do you have your colorful stripes ready?! Rare Disease Day is February 28th! For 14...
Feb
GFPD Supports Legislation for Newborn Screening in Iowa
HSB 690 /SSB 3122 both passed out of their respective committees in the Iowa State...
Feb
The GFPD Creates a Diversity Committee to Promote Greater Health Equity for Warriors and their Families.
The GFPD Creates a Diversity Committee to Promote Greater Health Equity for Warriors and their...
Jan
GFPD Diversity Statement
At the Global Foundation for Peroxisomal Disorders, we realized early on that equity is a...
Jan
Tips for traveling with your GFPD Warrior this holiday season!
Traveling for everyone during the holidays can often be a stressful and frustrating experience. Add...
Dec
GFPD Inclusive Holiday Tips
Gatherings can be challenging for our GFPD warriors and their caregivers, especially when being held...
Dec
Hospice and Palliative Care – Making Special Moments Possible
“We recommend calling in hospice care.” The words that every terminally ill patient and their...
Nov